Newly Diagnosed with Leiomyosarcoma-Initial Steps

newly diagnosed with leiomyosarcoma

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If you Have Been Newly Diagnosed with Leiomyosarcoma, you may Have Some of the Questions Below:

What do I do now?

What do I need to know?

Important considerations/decisions

NAVIGATING THE  INITIAL DIAGNOSIS  – IMPORTANT  CONSIDERATIONS

First and foremost,  you must find a SARCOMA SPECIALIST,  preferably one who has treated many patients with Leiomyosarcoma.

Finding the Right Treatment Center – Surgeon and Oncologist for You:

  1. Ask your primary care physician who he or she would recommend as a Medical and/or  Surgical Oncologist ( Sarcoma Specialist) familiar with the treatment  of Leiomyosarcoma.  If they have no suggestions then refer to the list of Sarcoma Centers , all of which have experience in the treatment of  Leiomyosarcomas.
  2. Make sure to ask if the Oncologist, and the Sarcoma Center you select, accept your health insurance plan.
  3. It is essential that you have a family member, friend, or caregiver accompany you to your appointments with the Oncologists.  They should take notes of what is said that can be reviewed by you after the appointment.
  4. Have a medical appointment organizer notebook to help you keep all your important paperwork such as lab test results, radiology/imaging reports, pathology reports, current medications as well as the notes and questions you have written down in good order and ready for each appointment. Staying organized allows you to be better prepared for all your appointments.
  5. Make sure that you write down the questions you want to ask the Surgeon or Oncologist and take them with you to your appointment. (To view questions to consider asking – go to the “Questions to Ask Your Surgeon or Oncologist” tab on this website).

Dr. Seth Pollack, a leading medical oncologist and sarcoma specialist, encourages patients to find the doctors most equipped to treat their disease, one who will communicate with them and find the most effective treatment options for them.

Reaching For the Cure Together