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Current and Past:

November 19th, 2018

HEADLINES

  • Cancer Care Webinar Alert –  Dec. 11 Survivorship perspectives
  • Need someone to call Medicare for you?  Medicare Guidance provided
  • Update information on the Cancer Cell Line Project – and how Patients can move research forward through tumor donation
  • Why is Pumpkin good to eat –  health benefits for your body from WebMD
  • Specialized Diet and reducing the risk of cancer –  In The News from MDLINX

Link: NLMSF Navigator

November 13th, 2018

HEADLINES

  • INSTRUCTIONAL VIDEO FOR CAREGIVERS –  caregiver resource information by Caregiver Action Network and CAREGIVING HELP NOW!
  • Study of cancer metabolism upends the Warburg effect
  • Metabolic targets –  a YouTube presentation by Dr. Brian Van Tine
  • Researchers Develop Novel Two-Pronged Method Targeting Cancer Cells
  • Telomerase And Chromosomes  – by Research Oncologist
  • How Much Sugar is Too much Sugar –  by WebMD

Link: NLMSF Navigator

November 6th, 2018

HEADLINES

  • Clinical Trial ALERTS –  from Columbia University, and the Mayo Clinic (3 locations)
  • Compassion – the heart of Commitment – Social Security Matters
  • Preparing for your Consultation / Questions to ask your Radiation Therapist
  • Update on Trabectedin for soft tissue sarcomas – from the Journal of Clinical Oncology
  • Special Note from Dr. N. Somaiah from MD Anderson about treatment with Trabectedin
  • Mobile Communications –  About Medicare Coverage
  • A new investigational study on EPIGENETICS to treat cancer
  • Well-being for Caregivers –  To Cleanse or Detox – what are the differences?  Pros & Cons

Link: NLMSF Navigator

October 30rd, 2018

HEADLINES

  • Clinical Trial Alert for Leiomyosarcoma at Dana Farber and Fox Chase
  • Reclassify cancers to improve treatment, researchers say
  • MD Anderson Cancer Center partners with Scripps
  • Two Clinical Trials to be aware of at the Mayo Clinic for Leiomyosarcoma
  • Managing Your Cancer Care During a Weather Emergency or Disaster –  Important information to hold  on to for any future weather disaster
  • Are Generics as good as Brand Name Drugs?

Link: NLMSF Navigator

October 23rd, 2018

HEADLINES

  • Clinical Trial Phase III at MD Anderson that is currently recruiting
    LMS patients.
  • TRIAGE Cancer –   Webinar link on Insurance Guidance, and
  • US Map for State Laws for your rights/protection  when you become ill
  • SURVIVORSHIP CARE PLANNING – Important consideration as treatment is completed
  • The importance of Cancer Treatment Oral Health Care

Link: NLMSF Navigator

October 16th, 2018

HEADLINES:

  • REMINDER:  Register for the Moffitt Cancer Center LMS
    Patient Education Symposium  – Nov. 3 in Tampa, Florida
    Contact Annie Achee at 303  783-0924 or 303  808-3437 or
    email:  annieachee@aol.com for more info or to register.
  • Dana Farber Clinical Trial that is enrolling for LMS Patients
  • In case you missed the special announcement –  The NLMSF  International L M S Research Roundtable initiative
  • The New SARCOMA COALITION
  • Glucose Could Replace Toxic Metal Agent in MRI Scans
  • An Article from ASCO on “Misinformation puts patients at risk.” and a reminder of the  NLMSF Connect With a Clinician Program
  • WELL-BEING:  What can a good nap do for you?

Link: NLMSF Navigator

October 9th, 2018

HEADLINES:

  • Clinical Trial –  to be aware of
    The NOBEL PEACE PRIZE in Medicine –  awarded to two Cancer
    Immunologists who made two key cancer discoveries
  • Flu Shot Confusion –   CDC guidance from National Jewish Hospital
  • The DEDICATED LIVE  LMS COMMUNITY SUPPORT HELPLINE – Is Active!
  • Excellent Guidance Regarding Social Security / Medicare –
    Easy to understand, and the HELPLINE can provide further Support You! and an informational webinar on: When the Insurance Company says “NO”  –  helpful Webinar information
  • MOFFITT CANCER CENTER / NLMSF  L M S PATIENT/FAMILY/CAREGIVER EDUCATION Symposium on November 3.  Registration Details: http://nlmsf.org/facing-sarcoma-together-3
  • A Recent study on the impact of obesity and sarcoma –  by the University of Iowa with Dr. Mohammed Milhem

Link: NLMSF Navigator

October 2nd, 2018

HEADLINES:

  • Dr. Robin Jones, renowned sarcoma research oncologist –  Oct. 2  webinar on  Olaratumab in Soft Tissue Sarcoma  (participation information below)
  • Be Informed / Prepared for the FLU season
  • New links to clinical trial information from the Stanford Medical Health –   A collaboration with the NLMSF Information to be found in the NLMSF Leiomyosarcoma.info research update website
  • MOFFITT CANCER CENTER  /  NLMSF partnership for November 3, 2018
    L M S  Educational Symposium for Patients/Families/Caregivers (Information Flyer below)
  • A Webinar by Dr. Rich Haas, Ph.D, Netherlands Cancer Institute,  on the” Role of Radiotherapy in Sarcomas and Recent Developments.”  (Webinar from Sept. 19th)
  • Clinical Trial –  Recruiting for L M S  PATIENTS:   A Phase III Trial of Anlotinib in Metastatic or Advanced Alveolar Soft Part Sarcoma, Leiomyosarcoma and Synovial Sarcoma (APROMISS)
  • CLINICAL TRIAL: Phase II that includes  LMS https://clinicaltrials.gov/ct2/show/NCT03114527

Link: NLMSF Navigator

September 26th, 2018

HEADLINES:

  • NLMSF – MOFFITT Cancer Center partnership for an LMS Education  Symposium
  • NEW  ANNUAL INTERNATIONAL LMS RESEARCH INITIATIVE LAUNCHED  – Startin in 2019.  An impactful step forward for LMS Research led by the NLMSF
  • Discovery and characterization of novel, recurrent, targetable ALK fusion in LMS.
  • Systemic Treatment of Metastatic / Recurrent ULMS
  • Signs that you are not getting enough Vitamin B6
  • CAREGIVER REMINDERS

Link: NLMSF Navigator

September 20th, 2018

HEADLINES:

  • Uterine LMS Study of interest – a possible method to distinguish leiomyosarcoma from leiomyoma
  • Dr. Costales, Cleveland Clinic –  on the Study of Adjuvant Therapy in Uterine LMS – an OncLive presentation
  • Revisiting Health Insurance Guidelines for Patients (originally posted last year by the NLMSF)
  • Dana Farber weighs in on the following topics:
                      -The Microbiome Emerges as a Hot Topic in Cancer                               (OncLive presentation)
– Can Probiotics help Cancer Patients?
– Can Vitamin D prevent or slow cancer?

 

September 11th, 2018

HEADLINES:

*   OncLive Video presentations from renowned research oncologists:  Case Study: LMS and Disseminated Metastases plus  Immunotherapy for Soft Tissue Sarcoma
*  Seeking a second opinion –  it’s important and it is part of what is important in this difficult journey
*  A new and special  NLMSF website – for survivors!  Life Change – “A New Normal”
*  Detox –  an interesting article to be aware of
*  State Governors’ Proclamations for Sarcoma  /  LMS Awareness for July of each year

Link: NLMSF Navigator

September 4th, 2018

HEADLINES:

*   LMS COMMUNITY SUPPORT  LIVE   HELPLINE   –  A VITAL RESOURCE FOR PATIENTS/ FAMILIES/ CAREGIVERS
*  What Patients should know about CANCER  LINQ – its potential impact in oncology
*  CANCER SURVIVORSHIP –  A video presentation with Dr. Lidia Schapira
*  CARE COORDINATION  –  ERROR RISK IN ONCOLOGY –  an interesting study to be aware of
An additional reason to be our own best advocates!

Link: NLMSF Navigator

August 28th, 2018

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August 21st, 2018

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August 13th, 2018

HEADLINES:

* Clinical Trial Alert – at the NIH

*  Clinical Trial at Dana Farber Cancer Institute – Phase 2  – enrolling

*  QUESTIONS TO ASK YOUR ONCOLOGIST ABOUT CLINICAL TRIALS

*  Interview with Dr. Breelyn Wilky, Research Oncologist, Sylvester Cancer Center,  Miami, Florida

*  The Gene – An Intimate History –  an ASCO announcement for a presentation to be released in 2020 on  PBS.

August 5th, 2018

HEADLINES:

*  ASK THE RESEARCHER  –  Three weigh in on a question

*  Treating Sarcomas in older adults with soft tissue sarcoma –  Dr. Vicki Keedy of Cancer.Net – a PodCast

*   A guide to Immuno-Oncology –  for patients and families/caregivers –  Videos

*  Learn about more LMS Clinical Trials – see link

to listings from the www.leiomyosarcoma.info website

*   “Talking to My Doctor ”  –  guidance to support you –  a Video

*  REMINDER:  CANCER SUPPORT COMMUNITY / NLMSF –  FREE / LIVE SUPPORT HELPLINE COMING SEPT. 1

NLMSF Navigator

July 29th, 2018

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July 22nd, 2018

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July 17th, 2018

Special Helpline Support Service for LMS Patients

July 15th, 2018

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July 8th, 2018

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July 1st, 2018

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Jun 24th, 2018

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Jun 21st, 2018

Webinar Alert

Jun 17th, 2018

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Jun 10th, 2018

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Jun 3rd, 2018

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May 27th, 2018

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May 27th, 2018

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May 20th, 2018

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May 14th, 2018

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May 5th, 2018

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April 22nd, 2018

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April 15th, 2018

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April 10th, 2018

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April 8th, 2018

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April 4th, 2018

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April 1st, 2018

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March 25, 2018

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March 23, 2018

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March 18, 2018

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March 14, 2018

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March 11, 2018

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March 4, 2018

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Feb 25, 2018

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Feb 18, 2018

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Feb 13, 2018

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Feb 4, 2018

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Jan 28, 2018

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Jan 21, 2018

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Jan 14, 2018

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Jan 8, 2018

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Jan 3, 2018

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Dec 17, 2017

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Dec 11, 2017 

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Dec 3, 2017

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Nov 27, 2017

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Nov 19, 2017

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Nov 6, 2017 

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Nov 4, 2017 

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Oct 29, 2017

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Oct 22, 2017

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Oct 15, 2017 

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Oct 8, 2017

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Oct 1, 2017 

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Sep 25, 2017

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Sep 17, 2017

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Sep 10, 2017

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Sep 04, 2017

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Aug 20, 2017

NLMSF E-Bulletin 

Aug 13, 2017

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Aug 6, 2017

NLMSF E-Bulletin 

Jul 30, 2017

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Jul 23, 2017

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Jul 20, 2017

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Jul 13, 2017

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Jul 07, 2017

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Jun 26, 2017

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Jun 19, 2017

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Jun 11, 2017 

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Jun 08, 2017 

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Jun 01, 2017 

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May 28, 2017

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May 25, 2017

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May 21, 2017 

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May 18, 2017

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May 11, 2017 

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May 07, 2017

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May 04, 2017

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Apr 27, 2017 

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Apr 20, 2017 

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Apr 13, 2017 

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Apr 09, 2017 

Apr 06, 2017 

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Apr 02, 2017 

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Mar 31, 2017 

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March 30, 2017

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March 16, 2017

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March 12, 2017

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March 09, 2017

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March 05, 2017

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February 26, 2017

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February 25, 2017

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February 23, 2017

NLMSF E-Bulletin (copy 02)

February 19, 2017

NLMSF E-Bulletin 

February 16, 2017

NLMSF E-BULLETIN

February 13, 2017

NLMSF E-Bulletin

February 12, 2017

NLMSF E-Bulletin

February 07, 2017

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February 02, 2017

NLMSF E-Bulletin

January 29, 2017

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January 26, 2017 

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January 22, 2017

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January 19, 2017

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January 15, 2017

NLMSF E-Bulletin

January 12, 2017

NLMSF-E Bulletin

December 29, 2016

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December 18, 2016

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December 09, 2016

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December 04, 2016

E-Bulletin

November 27, 2016

NLMSF E-Bulletin

November 20, 2016

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November 14, 2016

Newsletter 5

November 11, 2016

Newsletter 4

November 06, 2016

NLMSF E-Bulletin

October 30, 2016

NLMSF E-Bulletin

September 21, 2016

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September 15, 2016-

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Reaching For the Cure Together

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ALERTS:
The International Leiomyosarcoma Research Roundtable launches in 2019.  More information will follow as this initiative will help further advance LMS -specific investigational research.
The LMS COMMUNITY LIVE SUPPORT HELPLINE is open  9 am - 9 pm ET:  888-264-4670.
Consent to donate your tumor tissue before surgery.  For details go to:  https://leiomyosarcoma.info/cancer-cell-line-project/
Contribute to LMS Research 
"Invest" in Research - Support / Contribute to LMS Research Projects for 2018 -Click here for more info
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