Building Community Awareness of a Rare Cancer like Leiomyosarcoma creates the opportunity to know more about LMS and what can be done to support and promote the much needed LMS Research.
Lily’s Lemonade for a Cause Raises Money for Leiomyosarcoma
Ten year-old Lily has run a lemonade stand for five years now. This is no ordinary business but one with a purpose where 100% of the proceeds are donated. When asked why she does it, she responds, “I like to help others.”
This year’s stand was held on May 20. Despite torrential downpour, it was opened from 9-3 and raised a total of $8,350. This year’s cause was special. Money was raised to support Leiomyosarcoma research in memory of her father who lost his three-year battle to this rare form of cancer in November 2015.
Lily’s Lemonade has raised a total of more than $26,000 in its five years of operation – all for the benefit of cancer patients and their caregivers! The first year in 2013, the $600 raised went towards care packages that Lily made and handed out at the Simon Cancer Center where her father was being treated. Since then, the funds have supported either local families with loved ones battling cancer, or not-for-profit organizations that support caregivers and patients. What once was a little stand evolved into more of a community event that patrons looked forward to every year.
Lily’s Lemonade occurs on Indiana Lemonade Day, which is part of National Lemonade Day. Next time you see lemonade stand on the street, please support a young entrepreneur.
Ladies Golf Association Annual Memorial Tournament
Longest Beard Contest No Shave November
OHS Powder Puffs – Oakville High School – St. Louis
Every year Oakville High School holds a Powder Puff game and donates all profits to a charity of our choosing. The junior and senior girls get matching shirts and play football against each other for a night filled with fun. Profits are made from t-shirt orders and tickets to watch the event. This year Sydney Stern (Junior Class President) recommended we donate to NLMSF. We picked a few charities and let the entire Student Council vote on who should get the money. We are happy to donate the money to NLMSF because we know it will be used for good research and help raise awareness for this rare disease.
Event at Montana State University Football Game – Miles City Connection Tailgate Party
An Awareness Event for Leiomyosarcoma was held at the “Miles City Connection” tailgate at the MSU Bozeman “Bobcat” football game during the annual “Cap on Cancer” game. In memory of Brenda Falconer, an avid fan and supporter who devoted many hours to help with the Tailgate functions, we handed out purple ribbon pins, had a small display with literature, and educated many fans about our quest in the fight for research and a cure. This is our 2nd years’ event. Thanks to the National Leiomyosarcoma Foundation for providing brochures; and thanks to friends and family who made the purple ribbon pins; constructed the large wood displays of the purple ribbon; and the special purple hats made in honor of our beloved Brenda.
Here is a link to Brenda’s Obituary for additional information:
DEREK’s WALK/RUN – ANNUAL LMS RESEARCH FUNDRAISING EVENT FOR THE NLMSF
Mrs. Maureen Kehoe – Foundation Supporter and annual Event Sponsor
In April of 2006, Derek was diagnosed with Leiomyosarcoma (LMS). Derek was an athlete, playing basketball at Nazareth Area High School as well as his freshman year at Albright College until his diagnosis that spring. Derek had an infectious smile that brought sunshine to all he met. After a six-month battle against this disease, Derek lost his fight in late October of that same year at the young age of 19. Since Derek’s passing the Nazareth community has come together and organized the Together for Derek 5k. Each year, the race is held on the Saturday of Memorial Day weekend. This past year on May 28, 2016, we held our 10th Together for Derek 5k and again this year the race was very successful. We were able to raise over $12,000.00 in Derek’s name for the research of LMS. Not only has the race been able to raise money for research, but the race has brought awareness about LMS and in doing so we have found out that LMS is not as rare as has been once thought.
Five years after Derek’s passing, the mother of one of Derek’s basketball coaches had been diagnosed with LMS. After a courageous battle against this disease, she lost her fight just a few weeks ago. We need to continue the fight. Even though this year was our last year for the Together for Derek 5k, our fight has not ended. Derek’s friend will be organizing a 3 on 3 basketball tournament in Derek’s name. It is our hope that a cure to not only this type of cancer, but to all types of cancer that continue to affect the lives of so many people, may be realized.
May 28, 2016 in Nazareth, Pennsylvania
LMS RESEARCH NETWORK INITIATIVE
A very special event started on November 8, 2015 on behalf of LMS patients and to acknowledge the heroes among us- our LMS researchers. Dr. Mitchell D. Achee, currently a five-year survivor, launched the first Bi-Annual LEIOMYOSARCOMA RESEARCH NETWORK INITIATIVE (LMSRNI). Hosted on his own, with no patient advocacy organization involved, was a special event on behalf of all LMS patients – to ignite further hope for the future.
This was a casual gathering of LMS-only researchers who came together to have conversations on potential research partnering and research paper collaboration. It worked! The researchers connected with each other, and are on their way to furthering their collaborative efforts on publications and projects associated with LMS research.
This event will once again be hosted by Dr. Achee in Maui, Hawaii, the next location for the Connective Tissue Oncology Society Conference in 2018.