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- NLMSF Facebook Q and A-Connect with a Clinician
- Financial Assistance Resource Information
- House Cleaning for (female only) Cancer Patients
- Meal preparation – TO HELP CONTROL SIDE EFFECTS; Customized Dietary Plans
- Transportation/Travel to Appointments
- Cancer Patient Lodging Resource Information
- Personal Care/Supplies (free wigs, chemo cold caps)
THE NEW NLMSF Q & A “CONNECT WITH A CLINICIAN” Program:
This new Foundation patient support program allows patients to ask a question of an expert, and there are SIX experts in their specialty fields who have graciously volunteered to give of their time to help patients with general questions, providing general answers, which do not take the place of a patient’s own oncologist or oncology team care and guidance.
The Q & A Volunteer Clinicians are introduced below in alphabetical order.
Here is how to post a question to one of them:
1. Post a question directly on the NLMSF FB page
2. The Clinician’s response will be posted on the NLMSF FB page.
Diagnostic Radiologist, Kaiser Permanente currently
Formerly, VP Operations, Diversified Radiology, covering
11 hospitals in Colorado.
Chief, Medical Staff for Avista and St. Joseph’s Hospitals
Denver Medical Society
LMS Survivor of 5 years
Deputy Director, Clinical Services
Holden Comprehensive Cancer Center Program
Co-Leader, Experimental Therapeutics
Professor, Univ. of Iowa. Internal Medicine; Director,
Specializes in sarcoma and melanoma, with focus
and expertise in Immunology;Member, Multidisciplinary.Oncology Group; SARC Clinical Trials participating researcher; co-founder of the Midwest Sarcoma Initiative.
Medical Oncologist who treats adult patients with sarcoma;
Expertise in sarcoma and immune-based therapies
Assistant Professor, University of Washington School of Medicine
Professor of Pathology, Dept. of Pathology
Anatomic Pathology, Immunodiagnosis Pathologist
specialty: Sarcoma/ LMS Stanford University Medical Center
Sarcoma Program Director
Washington University, St. Louis, MO
Siteman Cancer Center/Barnes & Jewish Hospital
Financial Assistance Resource Information for Patients:
The Cancer Financial Assistance Coalition (CFAC) is a consortium of organizations that help patients manage financial challenges that can emerge as a result of a cancer diagnosis.
Patient Advocacy/Support organizations, such as Sarcoma Alliance, offer financial assistance/ reimbursement for certain expenses connected to second opinion medical appointments–up to $500 upon meeting eligibility requirements. Advocacy support organizations may offer various program and services to assist with cancer care expenses. Organizations offer different types of assistance with their own eligibility/regulatory parameters. Additionally, there is no guarantee that funds would always be available. Funds are limited and the amount of funding varies, therefore each should be contacted for specific information.
- Co-Pay Relief Program – Many voluntary organizations offer some financial relief to cancer patients who cannot afford insurance coverage, co-pays, deductibles, and other associated out-of-pocket costs if eligibility requirements are met.
- Government Programs – Check into a government program to see if you may qualify. State government programs may be able to assist with medical and living expenses if eligibility requirements are met.
- Public and Nonprofit Hospitals – Contact a social worker at a local health dept. for more information.
- Patient Assistant Programs – (from pharmaceutical companies that have patient assistant programs for insurance reimbursement; referrals to co-pay relief programs; medication cost reduction offers) if eligibility requirements are met.
- Voluntary Organizations – Voluntary organizations may offer assistance with child care, transportation, or home maintenance needs. Different organizations have different types and levels of assistance with eligibility/regulatory parameters.
- Personal Financial Planning – Getting advice from a financial planner may be a valuable appointment. An accountant can help guide you on income taxes. Qualifications for tax credits can be evaluated to reduce your taxes, especially if you have significant out-of-pocket medical expenses, such as insurance deductibles. There are free and low-cost financial planning seminars as well, usually sponsored by investment management companies or even AARP.
- Health Insurance – Your own health insurance benefit entitlements need to be carefully reviewed to best understand your policy’s coverage. Your insurance company case manager can offer more personalized assistance with answering questions.
- Your Community — Local organizations or advocacy organizations can provide assistance.
- Patient Guide — Read Cancer.net’s new patient guide to financial help: “Managing the Cost of Cancer Care,” published by the American Society of Clinical Oncology.
CFAC Coalition Organizations that help patients:
- American Cancer Society
- CancerCare – cancercare.org/financial
- CancerCare Co-Payment Assistance Foundation
- HealthWell Foundation
- Patient Access Network Foundation
- Patient Services Incorporated
- National Organization for Rare Disease
- Sarcoma Alliance – for second opinion appts – stipends for travel and medical expenses
- The Max Foundation
- GO TO: http://www.cancerfac.org/reading/community.php for more information.
(Note: The other organizations are Leukemia and Lymphoma Societies and Research Foundation)
House Cleaning Help For Cancer Patients:
Cleaning for a Reason – For women cancer patients only. www.cleaningforareason.org/ Provides information about qualification criteria, an application form, and a drop-down list locator for cleaning services available in your area.
Meal Preparation Information in Support of Patients / Nutrition:
Assistance for meal plans to address treatment side effects :
The following resources provide customized assistance for important phases of a cancer journey, from initial diagnosis to after treatment/maintenance. Visit the websites to learn more; direct telephone contact information is provided:
- Cooking with Cancer.org (205 978-3570)
- Meals to Heal.org (888-721-1041)
These organizations offer meal preparation according to your request to help minimize the side effects of chemotherapy treatment. Certain foods have been found to reduce side effects such as loss of appetite, loss of taste and smell, fatigue, constipation, diarrhea, and more.
There is consultation on foods that will boost the immune system and reduce inflammation.
Online recipes and recipe videos, plus e-books are available to assist patients and offer customized nutritional counseling and meal planning.
This is a support tool to take control of your nutrition to stay strong during and after treatment, and may enhance your body’s response to treatment.
Transportation to Appointments:
- Southwest Airlines Medical Transportation Grant Program – offers complementary roundtrip tickets to nonprofit hospitals and medical transportation organizations, allowing participating entities the freedom to determine how to distribute tickets to patients and caregivers. Each participating hospital has its own guidelines for administration of the tickets. Contact the social worker, travel concierge service, or patient assistance department of the hospital facility where you receive treatment.
- CAN – Corporate Angel Network – arranges free travel on corporate jets for cancer patients, bone marrow donors, and bone marrow recipients if the program criteria are met. Call the Corporate Angel Network at (914) 328-1313 to register within three weeks of a specific appointment at a recognized cancer treatment center. Go to: http://www.corpangelnetwork.org/patient/ for more information on contacting the organization, which is helpful in providing guidance regarding this program.
- AMERICAN CANCER SOCIETY’s “ROAD TO RECOVERY” Transportation Assistance program: Providing transportation to and from treatment for cancer patients who do not have a ride or are unable to drive themselves. Volunteer drivers donate their time and use their own vehicles so patients can receive the life-saving treatments they need. To obtain details and eligibility information, please contact the American Cancer Society directly at 1 – 800-227-2345 to be matched with a volunteer, and you can enter your zip code to check for programs in your area: http://www.cancer.org/treatment/supportprogramsservices/road-to-recovery to continue finding out more about accessing this program.
Cancer Patient Lodging Resource Information:
- Hope Lodge-The American Cancer Society offers the American Cancer Society Hope Lodge, a free place where cancer patients and their caregivers can stay when they must travel out of town for medical treatment. Currently, there are 31 Hope Lodge locations throughout the United States. Click here to learn more and find a Hope Lodge location.
- Hotel Lodging-The American Cancer Society provides overnight assistance to cancer patients who must travel for outpatient treatment and need help with lodging . The program allows cancer patients of all ages, including children accompanied by a parent and patients traveling with children, to partake. For more information, contact the American Cancer Society at 1-800-227-2345.
Personal Care – Free Wigs / Chemo Cold Cap Sources:
American Cancer Society (ACS) 1- 800-227-2345
The ACS maintains wig banks at their local chapters, cleaned/ready to wear. If you have NO health insurance and are in need of help, contact your local ACS office. Some of the wigs are distributed through ACS. Some are given during local “Look Good-Feel Better” meetings, along with cosmetics and head coverings.
CancerCare 1 800 813 –HOPE (4673)
The Women’s Cancer Program – offers free wigs for women who have lost their hair as a result of cancer treatment.
Breast Cancer Network of Strength (BCNS) – 1 800 221-2141 provides wigs to women whose budgets are low. Contact the BCNS to locate the closest affiliate office near you that has a Wig Bank.
COLD CAPS – for use during Chemotherapy to preserve hair
Crickett’s Answer for Cancer
This is a nonprofit organization that provides free wigs, facials, and other pampering services in the Pennsylvania, Baltimore, Maryland, and Washington D. C. areas.
However, the organization will mail or email an enrollment packet and work with patients to either order wigs online or arrange for other products or services with vendors in clients’ local areas.
To provide services/assistance.
Pantene Beautiful Lengths
1 416 – 961-7223
The Canadian Cancer Society has joined forces with this company to encourage women to donate their hair for wigs to be made and distributed to women who have lost their hair due to cancer treatment.
Tips when considering the purchase of a wig:
- Visit a local wig salon that knows how to work with cancer patients.
- Consider the construction of a wig based on coping with cool or hot weather and whether it fits your lifestyle and fits well on your head.
- Visit the wig salon BEFORE you lose all of your hair, before your first chemotherapy appointment, because hair loss can start two weeks after your first infusion.
- Try a wig that is a little lighter than your natural shade -chemotherapy can lower red blood counts, which can make your skin pale
- Short- and medium-length wigs are easiest to care for and weigh less
OnLine wig shopping – if you know your size, style, and color, you can also access help from
The American Cancer Society’s on-line wig catalog at: Tender Loving Care.
INSURANCE: Call your health insurance company and get its policy on wigs for cancer patients. Some companies are generous and some may not be.
Resource Information for Products to Reduce Hair Loss During Chemotherapy:
DigniCap –University of Colorado Hospital is the first in the state to offer the DigniCap, an FDA-approved scalp-cooling device designed to slow hair loss from chemotherapy
POLAR COLDCAPS – www.polarcoldcaps.com
CUREDIVA – www.curediva.com
THE RAPUNZEL PROJECT – firstname.lastname@example.org