The National Leiomyosarcoma Foundation is comprised of volunteer Board members committed to the foundation's vision.
The Board members serving the Foundation are here for YOU – for patients, families, and caregivers. They are passionate about answering your questions and being available to respond to requested assistance. They represent and work for you.
The Board members have been touched by LMS in some way, whether as a survivor/thriver, or as a family member of someone who has been diagnosed with LMS.
President, Medical Research Liasion
As the President of the Foundation, I am devoted to the work of this Foundation,carried out through the lens of a sarcoma coalition network approach/platform. The "mission that matters" with the Foundation is a strong focus on patient advocacy through education, research funding support, and reaching out to other complimentary organizations to amplify patient/family/caregiver resource assistance. My coalition-related efforts offer increased awareness of the Foundation's focus on behalf of patients, families, and caregivers. As a caregiver myself, I am passionate about the well being of the LMS community being served by this Foundation through the collaborative/partnering perspective. I am honored and totally committed to helping patients and their families through the Foundation's mission and purpose. Our place in the sarcoma research community landscape is growing, respected, and encouraged by the researchers who are part of who we are - our everyday Heroes, along with patients - our Champions of Hope.
Community Outreach, Special Projects
Having lived in Cincinnati, Ohio for 44 years, I consider myself a Cincinnatian even though I was raised and educated near Detroit, Michigan. My background was in primary and intermediate education. After 30 years of teaching primary and intermediate grades, I moved on to a supervisory student teacher position for the Miami of Ohio University.
Not unlike others, when my daughter, Annemarie, at age 46 was diagnosed with peritoneal Leiomyosarcoma (LMS), my world changed its course. As a result, my passion was totally focused on being an active member of the National Leiomyosarcoma Foundation (NLMSF). My tenacity to investigate, rise to the challenge to fight this disease, through research and awareness, let my husband John and I to actively join the Foundation in 2011. In 2012, I became recording secretary, for two years and now the membership chairperson.
My husband, John, vice-president since 2013 of the NLMSF, joined me, as did close friends, to organize/coordinate the 2-5K runs in Cincinnati. I held numerous fundraisers from home parties to “wine and dine” events, to Shop for Cause with Macy’s department store.
Fortunately, our daughter is in remission. It warms my heart to meet other survivors who may still be battling the disease and leave me saddened when I hear of the LMS angels we lose. Rather than concentrate on me, I would like to concentrate on you and them.
My dream is to see the NLMSF increase its following/membership, as well as fundraising efforts through regions with others who agree with our very necessary cause. Thank you to those who have joined us, and to you who have not, please consider it. “Together we can... Reach for the Cure.”
Treasurer, Fundraising Campaign Support
Medical Advisory Chair, Fundraising Campaign
Mitch is a leiomyosarcoma survivor, diagnosed in 2011. He is a Board Certified Diagnostic Radiologist practicing for over 30 years in Denver, Colorado. He received a B.A. from Johns Hopkins University and his M.D. from the University of Virginia. He completed his internship in Internal Medicine and his residency in Diagnostic Radiology at Fitzsimons Army Medical Center in Colorado. He has served on both Active Duty and in the Reserves in the Army. Mitch has served in various leadership roles in his practice, at hospitals and for the Denver Medical Society. Mitch has developed a strong interest in cancer patient support and advocacy and sarcoma research. He is a member of the Connective Tissue Oncology Society (CTOS), the Radiological Society of North America and the America Roentgen Ray Society and the American College of Radiology.
Mary Anne is the proud Mother of two married sons and the Grandmother of five precious grandchildren that give her strength and courage to be brave and march forward on this journey with LMS.
In May 2014, she was diagnosed Leiomyosarcoma Stage IV Cancer with lung and bone metastasis and she is currently in treatment at Dana-Farber Cancer Institute, Boston, MA
Mary Anne is also a gracious and experienced volunteer and dedicated to the support of sarcoma patients and caregivers.
She is currently the founder and administrator for
the Sarcoma Sunflower Brigade of Boston, MA, and
also an administrator for another Facebook group, Leiomyosarcoma LMS support group as well.
Mary Anne has had a very extensive and successful
career in the areas of corporate and high-tech marketing, sales, and business management. She was the Owner and President of the Transition Resources Plus, a business and career consulting business.She worked in the High-tech computer market place as a Senior Account Manager and as a Technical Recruiter managing major corporate accounts and on-site computer consultants.
She is a volunteer mentor for the One on One Program at the Dana Farber Cancer Institute, Boston, MA. Mary Anne participates and is active with several important Dana Farber sponsored patient/family programs at the Blum Resource and the Zakim Integrative Therapy Centers. Including an active member of Dana Farber’s Sarcoma Support Group.
Mary Anne’s education and overall professional background centers around marketing, sales, and business management. She is committed to bringing support groups
and the NLMSF together to unite a mission and purpose of building community awareness and promoting funding for LMS and Sarcoma research. She graduated from the New England School of Art and Design, and Northeaster University, Boston, MA.
Mary Ann has expressed how honored she is to become a board member and become part of the NLMSF team. She is dedicated to working toward awareness, knowledge sharing, advocacy and will always be supportive of our fundraising to help with more research to finding more treatments and one day a cure for Sarcoma and LMS.
Secretary, Community Outreach
I am a Psychotherapist in private practice with a degree in Social Work. I was diagnosed with Uterine Leiomyosarcoma (ULMS) in 2010. Since then, I have had several recurrences and have been through chemotherapy, radiation, and a major surgery as well as several more minor procedures.
I first came across the NLMSF in 2012, and attended HugFest in Ann Arbor, Michigan in April of 2013. It was such a wonderful experience to meet other survivors and caregivers, and to hear about the exciting new developments in sarcoma research and treatment. It can be such an isolating experience to have a rare disease like Leiomyosarcoma and I realize how important it is to connect with others who have had similar experiences. It is also very rewarding to be involved in fundraising and advocacy work, and I feel honored to be joining the Board of the National Leiomyosarcoma Foundation as Secretary.
John H. Wood Volunteer firstname.lastname@example.org