The National Leiomyosarcoma Foundation is comprised of volunteer Board members committed to the foundation's vision.
The Board members serving the Foundation are here for YOU – for patients, families, and caregivers. They are passionate about answering your questions and being available to respond to requested assistance. They represent and work for you.
The Board members have been touched by LMS in some way, whether as a survivor/thriver, or as a family member of someone who has been diagnosed with LMS.
President, Medical Research Liasion
As the President of the Foundation, I am devoted to the work of this Foundation,carried out through the lens of a sarcoma coalition network approach/platform. The "mission that matters" with the Foundation is a strong focus on patient advocacy through education, research funding support, and reaching out to other complimentary organizations to amplify patient/family/caregiver resource assistance. My coalition-related efforts offer increased awareness of the Foundation's focus on behalf of patients, families, and caregivers. As a caregiver myself, I am passionate about the well being of the LMS community being served by this Foundation through the collaborative/partnering perspective. I am honored and totally committed to helping patients and their families through the Foundation's mission and purpose. Our place in the sarcoma research community landscape is growing, respected, and encouraged by the researchers who are part of who we are - our everyday Heroes, along with patients - our Champions of Hope.
Community Outreach, Special Projects
Having lived in Cincinnati, Ohio for 44 years, I consider myself a Cincinnatian even though I was raised and educated near Detroit, Michigan. My background was in primary and intermediate education. After 30 years of teaching primary and intermediate grades, I moved on to a supervisory student teacher position for the Miami of Ohio University.
Not unlike others, when my daughter, Annemarie, at age 46 was diagnosed with peritoneal Leiomyosarcoma (LMS), my world changed its course. As a result, my passion was totally focused on being an active member of the National Leiomyosarcoma Foundation (NLMSF). My tenacity to investigate, rise to the challenge to fight this disease, through research and awareness, let my husband John and I to actively join the Foundation in 2011. In 2012, I became recording secretary, for two years and now the membership chairperson.
My husband, John, vice-president since 2013 of the NLMSF, joined me, as did close friends, to organize/coordinate the 2-5K runs in Cincinnati. I held numerous fundraisers from home parties to “wine and dine” events, to Shop for Cause with Macy’s department store.
Fortunately, our daughter is in remission. It warms my heart to meet other survivors who may still be battling the disease and leave me saddened when I hear of the LMS angels we lose. Rather than concentrate on me, I would like to concentrate on you and them.
My dream is to see the NLMSF increase its following/membership, as well as fundraising efforts through regions with others who agree with our very necessary cause. Thank you to those who have joined us, and to you who have not, please consider it. “Together we can... Reach for the Cure.”
Treasurer, Fundraising Campaign Support
Medical Advisory Chair, Fundraising Campaign
Mitch is a leiomyosarcoma survivor, diagnosed in 2011. He is a Board Certified Diagnostic Radiologist practicing for over 30 years in Denver, Colorado. He received a B.A. from Johns Hopkins University and his M.D. from the University of Virginia. He completed his internship in Internal Medicine and his residency in Diagnostic Radiology at Fitzsimons Army Medical Center in Colorado. He has served on both Active Duty and in the Reserves in the Army. Mitch has served in various leadership roles in his practice, at hospitals and for the Denver Medical Society. Mitch has developed a strong interest in cancer patient support and advocacy and sarcoma research. He is a member of the Connective Tissue Oncology Society (CTOS), the Radiological Society of North America and the America Roentgen Ray Society and the American College of Radiology.
Secretary, Community Outreach
I am a Psychotherapist in private practice with a degree in Social Work. I was diagnosed with Uterine Leiomyosarcoma (ULMS) in 2010. Since then, I have had several recurrences and have been through chemotherapy, radiation, and a major surgery as well as several more minor procedures.
I first came across the NLMSF in 2012, and attended HugFest in Ann Arbor, Michigan in April of 2013. It was such a wonderful experience to meet other survivors and caregivers, and to hear about the exciting new developments in sarcoma research and treatment. It can be such an isolating experience to have a rare disease like Leiomyosarcoma and I realize how important it is to connect with others who have had similar experiences. It is also very rewarding to be involved in fundraising and advocacy work, and I feel honored to be joining the Board of the National Leiomyosarcoma Foundation as Secretary.
I am a certified packaging engineer with twenty years in the medical device arena. I recently lost my wife to Leiomyosarcoma. She was still a young 60 years when LMS took her from me. At her initial diagnosis we quickly realized how little attention was being given to LMS versus other cancers (breast, prostate, lung, pancreatic, and so on). After her death I have made it a priority to honor her by volunteering with the LMS Foundation, with my goal of increasing awareness and education about this terrible disease.
I live in Jacksonville, Florida and intend to retire here at the end of 2017. My plan is to actively support the mission and vision of the NLMSF. If I can help to return one life from LMS then I have achieved my goal of honoring my wife.
John H. Wood Volunteer firstname.lastname@example.org