Patient Education

Upcoming Programs:

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UPCOMING PROGRAMS REMAINING FOR 2017:

OCTOBER 7, 2017:   OHSU  KNIGHT CANCER INSTITUTE – PORTLAND
KNIGHT CANCER INSTITUTE, Portland, OR   –  SARCOMA EDUCATION PROGRAM WITH DR, LARA DAVIS

DETAILS / CONTACT LINK TO REGISTER:  https://runsignup.com/Race/OR/Portland/PatientEducationConferencePortland

Hope to see LMS patients and families/caregivers you there if you are in the area!

DETAILS / CONTACT LINK TO REGISTER:  https://runsignup.com/Race/OR/Portland/PatientEducationConferencePortland
Hope to see LMS patients and families/caregivers you there if you are in the area!

The Program Agenda:

9:00-9:10         Welcome
9:10-9:30         Sarcoma Overview
9:30-9:50         Immunotherapy
9:50-10:10       Clinical Trials: What & Why
10:20-11:00     Complementary Therapy Breakout Sessions
11:20-11:40     Nutrition
11:40-12:30     Lunch with MD Panel Discussion
12:30-12:50     Survivorship
1:00-1:30         Networking

Speakers: Dr. Lara Davis, Dr. Arthur Hung, Dr. Kenneth Gundle, Dr. Skye Mayo and Dr. Susan Lindemulder

OCTOBER 14, 2017:  DANA FARBER CANCER INSTITUTE – BOSTON

GIST/Soft Tissue Sarcoma Symposium

From Diagnosis to Survivorship: Living with Sarcoma and GIST in the 21st Century
An educational event for patients and families

Saturday, October 14, 2017
7:30 a.m. – 2:15 p.m.
Dana-Farber Cancer Institute
450 Brookline Ave., (Lavine Family Dining Pavilion, 3rd floor)
Boston, MA 02215
Join us for a free educational event for patients and their families featuring GIST and soft-tissue sarcoma experts from Dana-Farber/Brigham and Women’s Hospital. Our experts will share updates on research advances and emerging therapies for GIST and sarcomas, as well as topics including pain management, nutrition, exercise, and complementary therapies. Each presentation will include time for audience questions.
Please RSVP via email for this free event by October 6. To RSVP, email Paige Tobie (paige_tobie@dfci.harvard.edu) with your name and the number of people who will be attending. To respond by phone, please call 617-632-5368.
 
PATIENT/FAMILY PROGRAMS HELD in 2017:
UCLA / RONALD REAGAN MEDICAL CENTER – SARCOMA DEPT.
February 18, 2017
FOX CHASE CANCER CENTER –  Sarcoma Center
March 11, 2017
FRED HUTCHINSON CANCER CENTER –  Sarcoma Center
April 9, 2017
 PREVIOUS PROGRAMS:
  1. April 21, 2017 with Dr. Seth Pollack- This event was a great success! Below are pictures from our event, hope you enjoy! 
  2. MARCH 11, 2017:   “TOGETHER FACING LMS” –  PATIENT /FAMILY EDUCATION SYMPOSIUM  with Dr. Sujana Movva-
    FOX CHASE / NLMSF collaborative patient/family/education  bi-annual program.

    Below are pictures from our event. Enjoy!

2. February 18, 2017, with Dr. Arun Singh –UCLA, Santa Monica, CA:     PATIENT/FAMILY EDUCATION SYMPOSIUM

UCLA/NLMSF collaborative bi-annual patient/family/caregiver education program.

Youtube presentation by Dr. Arun Singh, Research Oncologist, Sarcoma Dept. of UCLA/Ronald Reagan Medical Center:

 

 

2.  SITEMAN CANCER CENTER/BARNES & JEWISH HOSPITAL-St. Louis, MO  with Dr. Brian Van Tine,  Dr. Scott Okuno of Mayo Clinic,  Dr. M. Milhelm of the Univ. of Iowa. Held October 8, 2016. Highlights of the program coming soon.

Below are pictures from our event. Hope you enjoy!

NLMSF PATIENT EDUCATION SYMPOSIUM

PROGRAM AGENDA:

  1. Introductions- Dr. Angela Hirbe
  2. What is a Clinical Trial- Dr. Mark Agulnik
  3. Chemotherapy Trials- Dr. Scott Okuno
  4. Immunotherapy and LMS – Dr. Mohammed Milhelm
  5. Metabolism Therapies coming for Trial- Dr. Brian Van Tine
  6. Surgery Advances for ULMS- Dr. Matt Anderson
  7. Advances in LMS surgery- Dr. Jeffrey Moley
  8. Psychosocial Support- Dr. Yasmin Asvat
  9. “Subduing the Cancer Dragon” with Nationally recognized inspirational speaker and author HEIDI BRIGHT –  author of THRIVER SOUP
4. MD ANDERSON RELAY VIDEOS

5.   DANA-FARBER CANCER INSTITUTE
Sarcoma Conference held on September 17, 2016  –   visit the Educational videos page for the link to the conference highlights. Summary notes available upon request to annie@nlmsf.org

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