Be Your Own Advocate

Learn to be your own advocate. Keep a copy of all your medical records at home – you never know when you will need to send a copy to a treatment center. RESEARCH, RESEARCH, RESEARCH – if you don’t know how, it is time to learn.

Family members will try to help but you must become your own advocate. You may have to educate doctors and nurses about LMS (remember, many of them have never seen a LMS patient). By being your own advocate, you will help your family and friends learn about this disease and they can help advocate for you when you may be too tired or weak.

There are many benefits to keeping track of your own medical records: providing new doctors the information for proper diagnosis, providing family members with health records for future diagnosis, and portability are just a few.

Reaching For the Cure Together

The Sarcoma Coalition is a nonprofit collaboration of 21 sarcoma advocacy organizations from around the country working toward a common purpose: To provide resources and support for those dealing with sarcoma – from patients and their families to allies in the research and medical communities.  Click Here to learn more.
Contribute to LMS Research 
"Invest" in Research - Support / Contribute to LMS Research Projects for 2018 -Click Here for more info