SIDE EQ-Patients Registry


The Free, Interactive platform, which enables patients to track and manage their side effects –  knowing in advance, in preparation for cancer treatment, hearing from others during cancer treatment – to improve the quality of life and thrive after treatment is completed.
Patients and caregivers can input, track, and share their side effects through a personalized dashboard as well as learn helpful tips and best practices from top healthcare professionals and other patients. A win-win for patients to learn from each other – share information that can help and receive supportive information from the medical community as well.   The LINK:
This helpful program is brought to you through the collaborative partnership with the Life Raft Group who originated SIDE EQ,  and the National Leiomyosarcoma Foundation –  keeping its promise to bridge resources to assist patients and their families.  We are grateful to the LifeRaft Group.
Announcement in Cure Magazine: 

Announcement in Global Genes:

CANCER.NET also provides side effects management information:

Reaching For the Cure Together

The International Leiomyosarcoma Research Roundtable launches in 2019.  More information will follow as this initiative will help further advance LMS -specific investigational research.
The LMS COMMUNITY LIVE SUPPORT HELPLINE is open  9 am - 9 pm ET:  888-264-4670.
Consent to donate your tumor tissue before surgery.  For details go to:
Contribute to LMS Research 
"Invest" in Research - Support / Contribute to LMS Research Projects for 2018 -Click here for more info