Reaching For the Cure Together
Disclaimer
Information provided on the NLMSF website and Facebook page as well as any referenced information links are provided for informational purposes only and do not represent medical advice or opinions. All information provided has a referenced source indicated for further access to the information being provided to followers. Followers are responsible for interactions with this website, the Facebook page, and any links relative to the medical information offered/posted.
Q & A Patient / Clinician Disclaimer:
Please be advised that only general questions may be directed to a volunteer clinician, and to only expect a general response – one that does not take the place of your medical care team/oncologist’s guidance and care.
Please do not include personal information such as your full name, date of birth, personal medical information in any emails sent through the Foundation’s open Facebook group or webpage on its website. No one can diagnose your condition from email or any other written communication and communication via the Foundation’s Facebook group / website cannot replace the relationship you have with your health care provider(s).
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ANNOUNCING A DEDICATED HELPLINE FOR LMS PATIENTS / FAMILIES / CAREGIVERS
ANNOUNCING A DEDICATED HELPLINE
FOR LMS PATIENTS / FAMILIES / CAREGIVERS
EFFECTIVE SEPTEMBER 1, 2018
Monday through Friday 9 am – 9 pm EST
The National LeioMyoSarcoma Foundation (NLMSF) has entered into a collaborative alliance with the CANCER SUPPORT COMMUNITY (CSC) for a dedicated Live Support Helpline for LMS Patients, Families / Caregivers. A designated telephone number support helpline will become available September 1st. Counseling support will be offered in English and Spanish. The telephone number will be conveyed in another announcement by September 1st.
The Cancer Support Helpline staff will be available to counsel LMS patients or their loved ones, needing one on one support and guidance in navigating the LMS diagnosis, treatment / coping and caregiving journey. The opportunity to receive information and guidance from trusted, well-trained C S C professionals/counselors is a valuable and important service.
All information, counseling, and navigation services are provided at no cost to callers in both English and Spanish.
For questions pertaining to this new support service offered through the National Leiomyosarcoma Foundation and the Cancer Support Community partnership, please contact Annie Achee at [email protected].
It is the hope of the NLMSF and CSC, that patients/ families/caregivers will utilize this dedicated direct helpline support service, established to offer peace of mind that there will always be an available counselor on the phone to “be there” for immediate support.
NOTE: Medical advice is not provided, and must be directed back to the patient’s oncology care team. Information provided on clinical trials and genomic/genetic testing must always be further discussed with your oncologist/oncology care team.
Cancer Support Helpline services include, but are not limited to:
The National LeioMyoSarcoma Foundation and the Cancer Support Community have come together in the spirit of collaboration and advocacy, to bring personalized, vital resource support to meet the needs of LMS patients/ families/caregivers.
A C H I E V I N G M O R E – T O G E T H E R!
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Inform – Inspire – Empower
Our Mission is our Passion:
“What we can do today can affect what happens tomorrow”
Think Tank of the Sarcoma Research Community in support of advancing
LMS-specific precision research initiatives
The National LeioMyoSarcoma Foundation (NLMSF) is a 501(c)(3) Non-Profit Charitable Organization and a member of the GuideStar Exchange.
National LeioMyoSarcoma Foundation – NLMSF
2843 E. Grand River Avenue – #230
East Lansing, MI 48823
Sarcoma Coalition – We are here for you.
The Sarcoma Coalition brings together advocacy groups throughout the United States,
to build bridges of collaborative resource advocacy and support and Sarcoma Research
Community alliances.
By working together, the Sarcoma Coalition members extend their advocacy strength
and provide a united presence for patients and their families/caregivers.
“Achieving More Together!”