National LeioMyoSarcoma Foundation

helping to empower and educate about leiomyosarcoma a rare smooth tissue cancer

Randa Laouar

NLMSF Life Change

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Helpful articles by the American Society of Clinical Oncology: HEALTHY LIVING AFTER CANCER – from Cancer.Net – 

https://www.cancer.net/survivorship/healthy-living/healthy-living-after-cancer

FOOD and CANCER –
https://www.cancer.net/navigating-cancer-care/prevention-and-healthy-living/food-and-cancer-risk

COPING WITH CANCER –
https://www.cancer.net/coping-with-cancer

LIFE AFTER CANCER –
https://www.cancer.net/survivorship/life-after-cancer

REBUILDING QUALITY OF LIFE DURING AND AFTER TREATMENT –

https://nlmsflifechange.com/ 

LMS LIFELINE BUDDY PROGRAM

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LMS LIFELINE BUDDY PROGRAM
for Patients and Caregivers

The NLMSF LifeLine Buddy Program offers one -on-one
support for an LMS patient/survivor or caregiver.  Being
paired with someone who has been in a similar phase of
the LMS diagnosis/treatment journey can be a “lifeline”
to help build courage, strength, resilience.

Through the NLMSF , the LMS LifeLine Buddy volunteers
want to “pay it forward” for the sake of the LMS Community.
This program has been ongoing and appreciated by patients and
their families.

LMS LifeLine Buddies cannot offer medical advice, but
rather, offer “armchair support” via telephone or virtual meet up,
to share perspectives from similar experiences.   LifeLine
Buddies are good listeners and  want to provide a shoulder
of support.  Knowing you are not alone in the LMS journey can
be an invaluable source of comfort.

The NLMSF is always with you.  You can reach the Foundation
any time of the day or night – 24/7.  The contact number is on
the NLMSF website 

If you would like to learn more about this The LMS LIFELINE
BUDDY PROGRAM and participate as someone in need of a
Buddy or be a Buddy volunteer, please contact Annie Achee
at annieachee@aol.com.

SURVIVORS INSPIRE PEER NETWORK

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A new initiative that brings together survivors of the journey to share their experiences with life after treatment and hear tips, suggestions, and new information from guest speakers at different sarcoma centers of excellence.    

Focus areas of discussion include:

  • What is important to experience after treatment with continued  support of the oncology care team?
  • Perspectives on how to shape “what’s next” –  what should be the  next steps in rebuilding quality of life after treatment has ended?
  • Impact of Survivorship Care Planning after treatment.
  • Integrative Medicine involvement in building such a Plan.

Sharing perspectives on what is working for you and learning from
each other will be inspiring and empowering!  We invite you to also visit our special website focused specifically on survivorship:  Life Change –  A New Normal.   

Our network meets by conference call on the third Thursday of the month at 7:00 pm ET.  Email annie@nlmsf.org to register.

EDUCATIONAL WORKSHOPS OF THE
                NATIONAL LEIOMYOSARCOMA FOUNDATION
 
               Featuring Guest Speakers on important topics
                 selected by the participants in these groups:
 
Monthly meetings of the –
 
*  Patient-Caregiver Advocacy Roundtable
 
*  Survivors Inspire Peer Network