2843 E. Grand River Avenue – #230 East Lansing, MI 48823 [email protected] 303-783-0924

Support Provided by Foundation

Inform – Inspire – Empower Through Education/Advocacy/Research OUR MISSION IS OUR PASSION  “What we can do today can affect what happens tomorrow –We All Have What it Takes to Help Each Other!”  24/7  Direct Patient/Caregiver Helpline:   303  808-3437 The… Read More

COVID-19 Q and A

Someone in our patient community said that before the pandemic we as a society had stopped looking into peoples’ eyes. Now that everyone is wearing a mask we have the opportunity to really notice peoples’ eyes, look into… Read More

NLMSF Cell Line Proposal

SUBJECT: LMS CELL LINE MODELS COLLABORATION with the INTERNATIONAL LMS RESEARCH ROUNDTABLE Dear LMS Research Roundtable Member, At the first The INTERNATIONAL LMS RESEARCH ROUNDTABLE in September 2019, three workgroups were established. One of the focus workgroups is addressing… Read More

The Roundtable Workgroup descriptions:

  Description of four LMS Research Roundtable Workgroups LMS PDX MODELS / CELL LINES –  Matt Hemming Workgroup Leader [email protected]                  Goal:   To perform transcriptional profiling of diverse LMS cell lines             and draw comparisons between cell line and primary… Read More

SARCOMA TELEMEDICINE INFORMATION AND THE NLMSF MASK PROJECT:

TO:  LMS COMMUNITYFROM:  THE NATIONAL LMS FOUNDATION We have information on sarcoma telemedicine capability in some of our sarcoma centers of excellence.   Please contact me if you would like to have more information on this:  303  808-3437 or… Read More

Masks for LMS Patients and Caregivers

M A S K S   FOR  L M S   P A T I E N T S   &  C A R E G I V E R S                       … Read More

Uplifting Message

* Peace can be an anchor . . . a place of power from within*  Choose to try to temper and balance positivity in the face of the current reality –  Certain to be a challenge but it… Read More

Medicare and COVID-19

How Medicare is covering coronavirus: Medicare Coverage –  Medicare (Part B) will cover lab tests to detect COVID-19, but only if your doctor or other health care provider orders it.  You will pay no out -of-pocket costs for such… Read More

Meal Delivery- Tips for Families

MEAL DELIVERY –   MEAL PREPARATION TIPS FOR FAMILIES AND FRIENDS  –   TO HELP CANCER PATIENTS IN NEED MEAL DELIVERY / PREPARATION GUIDELINES / FAMILY-FRIENDS ONLINE SIGN UP TO DELIVER MEALS  –  GOOD INFORMATION TO BE AWARE OF DURING… Read More

Positive Patient Perspectives

Annie Achee ([email protected]) To: l-m-sarcoma Details TO:  The LMS Community From:  The  National LeioMyoSarcoma Foundation  Inform – Inspire – Empower  “What we can do today can affect what happens tomorrow” Patient / Caregiver Perspectives: Positive Patient/Caregiver Perspectives shared . . . Hoping you… Read More

Remote Site Second Opinion Information Listing

Getting a second opinion-   tips from the American Cancer Society https://www.cancer.org/latest-news/getting-a-second-opinion.htmlhttps://www.cancer.org/content/dam/CRC/PDF/Public/8438.00.pdfWhen do you need a second opinion and why –  WebMD:https://www.webmd.com/cancer/dx-next-steps-16/cancer-when-do-you-need-a-second-opinion-and-why Integrative Oncology Essentials https://integrativeoncology-essentials.com/2015/08/should-you-get-a-second-opinion-in-your-cancer-care/MAYO CLINIC’S ADVICE ON GETTING A SECOND OPINIONhttps://connect.mayoclinic.org/champions/advice-on-second-opinions/ Getting a second opinion- tips from the American Cancer Societyhttps://www.cancer.org/latest-news/getting-a-second-opinion.htmlhttps://www.cancer.org/content/dam/CRC/PDF/Public/8438.00.pdfWhen do you need a second opinion… Read More

PATIENT-CAREGIVER ADVOCACY ROUNDTABLE

The National LeioMyoSarcoma Foundation announces a signature program launched in 2020. NLMSF Patient-Caregiver Advocacy RoundtableBy coming together, we can achieve anything!   Within the LMS community, everyone has a unique experience and sharing our narratives empowers the storyteller and all those… Read More

THE SARC RESEARCH ADVOCACY COUNCIL-” “Representing Patients/Families/Caregivers”

THE SARC RESEARCH ADVOCACY COUNCIL The NLMSF is a member of the  SARC Research Advocacy Council tobring the voice of LMS patient community  to the table through to: *  Developing recommendations and providing input based on experience and understanding… Read More

NLMSF RESEARCH ROUNDTABLE-“SCIENTIFIC RESEARCH THINK TANK”

 The NLMSF – SPAEN INTERNATIONAL RESEARCH ROUNDTABLE THE HEROES OF HOPE AMONG US! The International Scientific Think Tank –  Roundtable has been established in 2019.   The membership represents researchers, research clinicians from around the world – dedicated and committed to this LMS focus… Read More

NLMSF NCI MyPART Announcement-“FOR PATIENT PARTICIPATION”

                                                               THE NATIONAL LEIOMYOSARCOMA FOUNDATION ( NLMSF)  JOINS THE  NCI  MyPART  NETWORK The NLMSF has joined the National Cancer Institute (NCI) My Pediatric and Adult Rare Tumor (MyPART) Network as an advocacy partner to represent the LMS… Read More

Rare Artist Reception Photos

The Rare Artist Reception, a most important event of  the 2017 Rare Disease Week in Washington, D.C. showcased Rare Disease artists from 2015 and 2016 entries. The artists of these beautiful artworks are patients – of all ages,… Read More