2843 E. Grand River Avenue – #230 East Lansing, MI 48823 [email protected] 303-783-0924

Patient Messaging

I recommend that people that are newly diagnosed with any sarcoma, but certainly LMS –  seek a Sarcoma Specialist immediately. Sarcomas are difficult to diagnose in the first place, so if you have a lump or bump anywhere- … Read More

THE SARC RESEARCH ADVOCACY COUNCIL-” “Representing Patients/Families/Caregivers”

THE SARC RESEARCH ADVOCACY COUNCIL The NLMSF is a member of the  SARC Research Advocacy Council tobring the voice of LMS patient community  to the table through to: *  Developing recommendations and providing input based on experience and understanding… Read More


The Heroes Among Us – The Research Scientific Think Tank * Moving forward with work groups addressing major topics identified for proposed studies * Work groups taking action between annual meetings* 2020, 2021 Scientific Research Think Tank Roundtable meetings… Read More


                                                               THE NATIONAL LEIOMYOSARCOMA FOUNDATION ( NLMSF)  JOINS THE  NCI  MyPART  NETWORK The NLMSF has joined the National Cancer Institute (NCI) My Pediatric and Adult Rare Tumor (MyPART) Network as an advocacy partner to represent the LMS… Read More

Rare Artist Reception Photos

The Rare Artist Reception, a most important event of  the 2017 Rare Disease Week in Washington, D.C. showcased Rare Disease artists from 2015 and 2016 entries. The artists of these beautiful artworks are patients – of all ages,… Read More

How to Survive Hospital “Nutrition”

How to Survive Hospital “Nutrition” By: Heidi Bright, M.Div. http://www.heidibright.com Author, Thriver Soup: A Feast for Living Consciously During the Cancer Journey http://thriversoup.com/ Hidden Voices: Biblical Women and Our Christian Heritage http://www.helwys.com/sh-books/hidden-voices/ From 1988 to 1993 there were over 2,700 articles dealing with… Read More

What Does it Mean to Thrive?

By Heidi Bright Dr. Pat Baccili, with the Dr. Pat Show, explored this topic on Monday through her radio program. Listen to find out some ways to heal one’s life. http://www.thedrpatshow.com/play/23277/baccili-20170116-bright.mp3 During the interview, Dr. Pat said, “Only… Read More