National LeioMyoSarcoma Foundation

helping to empower and educate about leiomyosarcoma a rare smooth tissue cancer

More Testimonials

Patient Testimonials

"Annie and the NLMSF work tirelessly on behalf of patients with LMS, seeking ways to support needed research, offering free patient programs throughout the US, and providing support for caregivers. The website has tons of great information for those with this diagnosis, and the weekly newsletter includes lots of links to other valuable information. NLMSF has its own active Facebook group where patients can pose questions and gain support. Highly recommended!"
Heidi
MDiv from Thriver Soup
I cannot thank you enough for your kindness and support. You are a lighthouse during a dark storm.
Alexandra
LMS Patient
I so appreciate your lovely caring ways. I love your warm and powerful message: "...anchor that we all must hold on to in order to build bridges to resilience and strength to get through to get through the journey."
Mary Z
LMS Patient
Another year full of achievements for the LMS community! Thank you Annie and Mitch Happy New Year.
Edith
LMS Patient
Dear Annie and Mitch,You give of yourselves unconditionally, and brighten the days of many many people. May our Lord God give you His peace and His Blessings
Yoryeah
LMS Patient
You are a wonderful gift, Annie! You give so much to all of us. Thank you for everything you do. Have a joyous holiday season.
Paula Zmuda
LMS Patient
You are amazing! Thank you so much for your arrangement and hosting. It was my honor to attend this amazing event and interact with you and your LMS community. I had a great time hearing wonderful questions and the passion of everyone.
Mooney
LMS Patient
Annie Achee you a a very kind hearted and caring person. Your light surely signs bright for all. Thank you for the kind words.
Terri
LMS Patient
The truth strengthens us. Please try and insulate your kind heartedness and distance yourself. You know who you are. To those who matter, you are loved for who you are. - you have aided me. Be at peace. .And, of course, all of us want to live in peace and prefer those who agree with us. But the real test of virtue and deserving of praise is to live at peace with the perverse, or the aggressive and those who contradict us, for this needs a great grace. ... in this mortal life, our peace consists in the humble bearing of suffering and contradictions, not in being free of them, for we cannot live in this world without adversity. Those who can best suffer will enjoy the most peace, for such persons are masters of themselves, lords of the world, with Christ for their friend, and heaven as their home." Thomas á Kempis
Mary
LMS Patient
Hi Annie. I see most of your posts here and I've seen has been nothing but useful and a great service to those of us struggling to cope bravely with a rare cancer. LMK if I can help in any way., and I am no even diagnosed with LMS but rather Lipo.
Robin
LMS Patient
Thank you so much for your help and support. It has been invaluable! I feel so much more prepared and comforted.
David
LMS Patient
You're such a loving, giving inspiration to me and countless others.
Mary Z
LMS Patient
I feel secure knowing that i have all your help to support my Son.
Edith
LMS Patient
I appreciate very much all that you and your husband do for Leiomyosarcoma research and education. We patients have a resource we would not have otherwise.
Ruth Anne
LMS Patient
Thank you so much! ❤ May God Bless this foundation with all the tools needed to find a cure for this nasty disease.
Dale Ayscue
Admin
Thank you for the plethora of information. I think God led me to send a "thank you" email to you this afternoon. I wanted to share my appreciation and gratitude. You and Mitch were so kind to share your information and time with me this afternoon. Pre-cancer I was not very emotional or a hugging person, except with my family. However, I would like to send you a virtual hug because I am so touched with your (and Mitch's) kindness and thoughtfulness. I am blessed.
Kevin
LMS Patient
Annie Achee Thank you Annie for stand up for what you have completely given your all for. You have always been accurate and self explanatory in anything I have ever read or listened to in a conference or in person.You and Mitch are medically educated and have personally experienced lMS . I don’t know if anyone else who has ever worked as hard as the both of you for any health foundation. Keep up what you are doing. LMs needs you and stay strong don’t let someone bully you. You are the backbone of NLMSF and I for one am grateful.Thank you Annie
Gail Gore
LMS Patient
Your email gave me huge support and honestly it made me cry too to know that somewhere there are people who are so generous to offer support as yours. I am also thankful for your kind reply and remembering me
Munazza
LMS Patient
My name is Franka and I'm from Trinidad and Tobago. I learnt of this foundation through Facebook. My sister was diagnosed with undifferentiated Phlemorphic Sarcoma cancer in March of 2020 and the doctors in Trinidad told us to seek medical attention abroad due to Covid restrictions we are faced with challenges. My sister is in constant pain and I'm trying my best. I spoke with Annie via Facebook and she gave me her contact number to call her for advise because she has some experience. I called Annie at 4am because of our time difference I actually woke her up from sleep and she was so pleasant and she stayed with me on the phone for half hour chatting with me and giving me sarcoma specialist name and contact number. I really appreciate Annie everyday we will chat and she is always pleasant and helpful I really hope to meet her one day. Thanks so very much for being there for me
Franka
LMS Patient
Thanks again for all that you do. Merry Christmas to you and Mitch and your family. You are a gift to the world.
Jacqui and Maryam
LMS Patient
Dear Annie and Mitch - I'm so grateful to have met you both. Thank you for your generous, enormously helpful, loving support on behalf of me and our family. May God continue to bless you with his grace, optimal health, balance, and contentment.
Ziva
LMS Patient
The Foundation and Annie’s reputation is excellent - because we all know her!
Anne
LMS Patient
I have known Annie Achee many for years . I can truthfully say she is the most kind hearted person that I know. She is a very knowledgeable in the lMS [community]or family .If ever a time or need Annie is there for ANYONE. She has completely devoted her life to helping those of us that have developed this horrible cancer in anyway possible. I regard Annie to the utmost esteem as a person, friend and a voice for reaching for a cure for this horrible cancer. There is absolutely no reason whatsoever for this lady to be Kicked off of any fb group concerning LMS for she has done nothing but continuously work to make life a little better and help those in need. I have known Annie since day one of her desires to find a cure of LMS. It is in her heart and in her bones to continue the NLMSF and I don’t think she can be silenced. There is to much fight and too much good in Annie Achee . Sincerely Gail Gore
Gale
LMS Patient
Thank you so much, Annie. You're an amazing person and I am so grateful to God for having put you in my life
Huda Q.
LMS Patient
Annie, you do so much to help all of us, Thank YOU.
Paula Z
LMS Patient
Thank you so much for the LMS medical appt organizer. I so appreciate your personal note, which means a lot knowing we are not alone in the path to overcome LMS! The information and support provided through the National LMS Foundation is invaluable.
Freida
LMS Patient
Thank you Annie, you do so much for us all. So appreciative.
Diana
LMS Patient
I 'm really happy that people like you still exist to give some hope to people like me. Thanks for everything - advice, help for my Mom - From (Romania)
Ionut
LMS Patient
Hello Annie wishing you the best for the coming 2022,and send you blessings for your outstanding job in helping the community, be well and continue please sending us the latest information for the sarcoma community.
Edith S
LMS Patient
Hello Annie wishing you the best for the coming 2022,and send you blessings for your outstanding job in helping the community, be well and continue please sending us the latest information for the sarcoma community. Take good care ,hoping to hear from you soon happy 2022 Edith from Israel
Edit Scwarz
LMS Patient
Thank you Annie and Mitch for the resources you sent and for spending the time to listen to my situation and offer such helpful advice. Your care and concern has come at a time when I really needed it and I am truly grateful!!
Judy
LMS Patient
We can't thank you enough for your insight and support on today's zoom. I feel like God connected new angels with my Italian angels. Your kindness and warmth are amazing.
Luz C
LMS Patient
Thank you for everything you do. In a sea of uncertainty and fear you are a lighthouse of hope.
Marco
LMS Patient
Thank you for everything you do for our leiomyosarcoma community Annie!
Deb
LMS Patient
Thank you, for the fantastic website. Blessings to you and your loved ones!! Your email brought tears to my eyes! To be a stranger and to offer this wealth of information and support. Thank you!!! I appreciate all that you are doing. You have already made a difference, just this email support has been huge to me.
Christy
LMS Patient
May you be blessed with good health, happiness, success, ,peace ,prosperity and abundance in all aspects of life as you continue making difference in the lives of all leiomyosarcoma patients.
Rashi
LMS Patient
Both of you impacted my life personally this year. I might have given in to this illness. I certainly had a doctor that was done. Thank goodness I called and talked with each of you. Blessings to you, Mitch, mom and auntie! Love you!
Marcia
LMS Patient
This is beautiful! Thank you, Annie and Mitch. You give us all such calm reassurance, such hope, and you deliver this with such a gentle touch. You remind us all of our better selves
Jeanne
LMS Patient
Thank you for this beautiful post Annie Achee! Also, thank you for spending so much time talking with me the other day and then following up with informative emails. You give so much, I feel supported and cared about - many blessings to you and yours
Robin
LMS Patient
Thank you, Annie Achee, your kindness, gentleness, and incredible hard work on behalf of us all are so beautiful to me
Heidi
LMS Patient
I have always seen nothing but useful and a great service to those of us struggling to cope bravely with a rare cancer. LMK if I can help in any way. Thanks to both of you for the kind, smart and generous giving you do for all of us who are doing our best to cope with a difficult and rare cancer. My gratitude and best wishes to you always!
Robin
LMS Patient
You are generous and informative in your posts and your availability. I am grateful to have you as a resource since you're obviously so knowledgeable and connected in this field.
Robin K
LMS Patient
“As an LMS patient with a history of active disease, the National Leiomyosarcoma Foundation has been both balm and beacon. It is a source of support and knowledge as well as an outlet for sharing and communication. Often a medical journey can be isolating and lonely, so finding these connecting points to knowledge and conversation is so helpful. I am ever thankful for this association.” With blessings and love to you Annie,
Marlana
LMS Patient
Thank you again for all you do Annie. It means a lot to us.
Chris
LMS Patient
You have always been so kind to me. I've spoken with Marlana in Portland and we both agreed that you are a lovely and giving woman. I know you've really educated yourself on so many aspects of sarcomas and share your knowledge, caring, and support with anyone who connects with you.
Robin
LMS Patient
Annie, you have no idea just how much you and Dr Mitch have come to mean to me in such a short period of time. You were there constantly during a very difficult and challenging period of my time pre, peri and post surgery and now for all the additional tests and procedures I am required to undergo. It's extremely heartening to know that you both are there, supporting me and I can't describe just how good that makes me feel, especially to have a mother figure during these difficult times. Thank you from the bottom of my heart
Huda
LMS Patient
Thank you to you and Mitch for all that you do for cancer patients and the medical community
Denny Noh
LMS Patient
There are no words to express the many thanks for all you and Mitch have done for NLMSF and to finding a cure for LMS . I truly believe that if not for you the research would not be where it is today. Thank you for everything.
Gail G
LMS Patient
This heartening to know there are steps forward in research. I am tremendously grateful for what you and your team do to spearhead these types of initiatives. 
Christine Z
LMS Patient
We are very grateful for Dr. Schuetzes expertise and strong convictions and that through my contact with you that Kim is being treated by him. She now has to go in only every six months for check ups. I want you to know that your faith in Dr. Schuetze was right. Thank you for always being available and for all of your help. Warmest Regards.
Cornetta
LMS Patient
Thank you for being you. You give so much to others when you could easily keep your knowledge for your own family's benefit.
Robin
LMS Patient
I value helping people to be advocates for whatever disease they are working with. You are so devoted, and that's inspirational.
Robin
LMS Patient
As the year has begun, please know you are never too far from thoughts and we are grateful to you. You are a beautiful, loving couple.
Mary
LMS Patient
I discovered NLMSF two years into my LMS diagnosis. Since then, it has been a great source of support, research, and guidance. I've benefited from the work of the Research Roundtable, been able to interact with several of those docs, and enrolled in ongoing studies to contribute to the research. I've also forged friendships with other LMS Warriors. Continuing to support NLMSF and their invaluable work is vital for our entire community. Prayers and wishes for health for all of us in the coming year.
Michelle
LMS Patient
Thank you for that special message, and MOST especially for all you do, ALL year long, for LMS patients, caregivers, and family! You both are truly a blessing!
Jeff and Annette
LMS Patient
Annie and Mitch, I wish I could meet you face to face. You’ve given me courage on days that you don’t realize. Thank you for all that you do.
Marcia
LMS Patient
I really appreciate all that you do. Your friendship means so much!
Marcia
LMS Patient
Thank you for your support and sharing a common bond of LMS and our fight to survive! Happy thanksgiving to all. Share the time with family and friends!
Mike
LMS Patient
Annie Achee we love your heart and I strive everyday I guess I put it yesterday as I aspire to inspire so I think you and I have a lot in common as we just want what's best for the greater good but for me I need a team to accomplish that with. I can't thank you enough for working with my Mayo oncology specialist! For the rest of you who didn't know I got into doing unique because of the fact I had cancer so I guess that's how this all ties together
Anne
LMS Patient
Thank you again. You, Mitch and the support group materials have reduced my stress levels greatly and helped me become so much more knowledgeable than if I was just plugging away on my own
David M
LMS Patient
I want to thank you for all your moral and physical support and for trying to figure out the next steps. Words are not enough to thank you both. May God Bless you both and protect you for giving your invaluable time to review her case and reaching out to the specialist in the US to help my sister.
Fauzan
LMS Patient
I want to thank you and Mitch for spending time with me today. You both are a lifeline for me. Mitch was outstanding in his clear and insightful explanation of the CT scan showing the relationship of arteries to my mesenteric tumors. I learned a lot. But just as important is the special support you both have shown. Authentic caring! Many Thanks
LOU
LMS Patient
I appreciate all that you and Mitch do for LMS patients. I am so thankful for the network of patients and caregivers and the medical professionals who share their expertise with us. My new "career" of being an LMS patient has required an immense series of new skills. I the National LMS Foundation has played a major role in helping me with my new skill set. I would be in a very different place without your help.
Susan T
LMS Patient
May you and your husband be blessed this year. Thank you for the magnitude of work you do. These are abundant gifts that we all receive by your grace.
Diana M
LMS Patient
I am very blessed you reached out and enjoyed our conversation and all your help God bless you - I appreciate you!
Andrea
LMS Patient
Annie,I am so honored to have you as a part of my little circle. I have worked very hard to try to make a difference to as many people of all ages as i can. You are a real blessing and a God send. Hope we can work together and just maybe I can make a difference in someone's life. I have many ideas on what I want to do but I don't think it will ever happen. Thanks for all you are doing and again it is an honor to be in your corner of what you are doing for others. God bless you. Keep safe and have a great weekend
Dayle
LMS Patient
You all have been such a Godsend to me to help support us to help our son ever since meeting you - An instant connection with your because of your sincerity for what you are doing to help patients. Its all about the future and a cure for cancer - we have to hang on to our HOPE. My son is a father if a son who was treated at St. Judes for retiinolblastoma just like his Dad.
Susan N
LMS Patient