Reaching For the Cure Together
Disclaimer
Information provided on the NLMSF website and Facebook page as well as any referenced information links are provided for informational purposes only and do not represent medical advice or opinions. All information provided has a referenced source indicated for further access to the information being provided to followers. Followers are responsible for interactions with this website, the Facebook page, and any links relative to the medical information offered/posted.
Q & A Patient / Clinician Disclaimer:
Please be advised that only general questions may be directed to a volunteer clinician, and to only expect a general response – one that does not take the place of your medical care team/oncologist’s guidance and care.
Please do not include personal information such as your full name, date of birth, personal medical information in any emails sent through the Foundation’s open Facebook group or webpage on its website. No one can diagnose your condition from email or any other written communication and communication via the Foundation’s Facebook group / website cannot replace the relationship you have with your health care provider(s).
Copyright © 2020 · All Rights Reserved · National LeioMyoSarcoma Foundation
Nonprofit Website by GivingPress · RSS Feed · Log in
NLMSF Articles Posted in Cure Magazine
CURE MEDIA GROUP TEAMS WITH NATIONAL LEIOMYOSARCOMA FOUNDATION
AND NATIONAL COALITION FOR CANCER SURVIVORSHIP
IN ADVOCACY SPOTLIGHT PARTNERSHIP PROGRAM
Partnership expands advocacy and empowerment for patients fighting cancer
PLAINSBORO, N.J. (November 1, 2016) — CURE Media Group, the nation’s leading digital and print media enterprise focused on cancer patients, cancer centers and advocacy groups, today expanded its Advocacy Spotlight Partnership by teaming with the National Leiomyosarcoma Foundation and the National Coalition for Cancer Survivorship.
“CURE’s Advocacy Spotlight Partnership is focused on empowering and encouraging patients, families and their caregivers,” said Mike Hennessy Jr., president Michael J. Hennessy Associates, Inc. (MJH).
“We are proud to stand with these two advocacy champions: The National Leiomyosarcoma Foundation providing crucial support for those facing these rare conditions, and the National Coalition for Cancer Survivorship providing a strong voice for anyone whose life has been touched by cancer.”
CURE Media Group’s offerings also include online resources, live meetings, recognition events; and a resource guide for the newly diagnosed. CURE Media Group combines science and humanity to make cancer understandable.
Founded in 2001, the National Leiomyosarcoma Foundation is dedicated to the notion that knowledge equals patient power and works to help patients learn as much as possible about leiomyosarcoma (LMS) so they can self-advocate. Leiomyosarcoma is a relatively rare form of soft tissue sarcomas. About 12,020 new soft tissue sarcomas are diagnosed each year.
The National Coalition for Cancer Survivorship, founded in 1986 by and for cancer survivors, has replaced the notion of “cancer victim” with “cancer survivor”—including family, friends and caregivers.
NCCS has worked with legislators and policymakers to represent cancer patients and survivors in efforts to improve their quality of care and quality of life after diagnosis.
“These partners shared our commitment to promoting advocacy by providing reliable and up-to-date information,” Hennessey said. “The Advocacy Spotlight Partnership continues to expand to meet the needs of our community.”
NLMSF is dedicated to ensuring LMS research is fully supported and raising awareness of LMS as a rare form of cancer. The Foundation hosts multiple patient/family/caregiver education symposia through the year. The Foundation also supports and funds promising LMS research. an annual patient education symposium series, provides patient education opportunities and support, collaborates with cancer research centers throughout the United States, UK and Canada, and advocates on issues affecting research, treatment advancements, clinical trials, and drug development. To learn more, visit https://www.nlmsf.org/
About the National Coalition for Cancer Survivorship
NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis. That experience has value and can be a transforming, positive force. NCCS also knows that cancer survivors and those who care for them face many challenges. For 30 years, NCCS has been a recognized leader in advocating to improve cancer related public policy and empowering cancer survivors by sharing self-advocacy tools and collaborating with other cancer organizations to address national policy issues. To learn more, visit http://www.canceradvocacy.org/.
About CURE Media Group
CURE Media Group’s flagship product, CURE® magazine, is the indispensable guide to every stage of the cancer experience. With nearly 1 million readers, CURE® is the largest consumer publication in the United States focused entirely on cancer, with broad distribution to cancer patients, cancer centers and advocacy groups. CURE Media Group’s offerings also include its online resource, curetoday.com; live meetings; a resource guide for the newly diagnosed; and the Extraordinary Healer® national nursing award. CURE Media Group combines science and humanity to make cancer understandable. CURE Media Group is part of the Plainsboro, N.J.-based Michael J. Hennessy Associates, Inc. family of businesses, which includes the acclaimed OncLive® (www.onclive.com) platform of resources for the practicing oncologist. For more information, visit www.curetoday.com or www.mjhassoc.com.
Media Contacts
For National Leiomyosarcoma Foundation: Annie Achee, [email protected]
For National Coalition for Cancer Survivorship: Dan Weber, [email protected]
For CURE Media Group: Becky Taylor, 609-240-6886, [email protected]
Convert Pages to Any Language
Inform – Inspire – Empower
Our Mission is our Passion:
“What we can do today can affect what happens tomorrow”
Think Tank of the Sarcoma Research Community in support of advancing
LMS-specific precision research initiatives
The National LeioMyoSarcoma Foundation (NLMSF) is a 501(c)(3) Non-Profit Charitable Organization and a member of the GuideStar Exchange.
National LeioMyoSarcoma Foundation – NLMSF
2843 E. Grand River Avenue – #230
East Lansing, MI 48823
Sarcoma Coalition – We are here for you.
The Sarcoma Coalition brings together advocacy groups throughout the United States,
to build bridges of collaborative resource advocacy and support and Sarcoma Research
Community alliances.
By working together, the Sarcoma Coalition members extend their advocacy strength
and provide a united presence for patients and their families/caregivers.
“Achieving More Together!”