Valentine’s Day is coming up . . .and it may be difficult . . .if this might be the case . . .Empower yourself. How? Incorporate the special someone in your life or that was in your life . . .because that person always has a special place in your heart . . . incorporate that special someone in your plans. Light a candle to signify a legacy, a presence . . . how has your heart and life been illuminated by someone special who struggled, who is struggling, who is an inspirational presence in your life?
Journal something -“for your eyes only” – or if you want to blog or facebook to remember or reflect . . .it is therapeutic to be able to express yourself. We all gain something from the courage, strength, and inspiration imparted by a special message of hope, endurance, love, and respect shared.
Practice self-love too – pay attention to “YOU.” The people who care/cared about you – would want you to. Do something special for you. You are special!
A suggested book: “The Human Capacity to Thrive in the Face of Potential Trauma” by George A. Bonnano, PhD and Anthony D. Mancini.
FEBRUARY 28 – NATIONAL RARE DISEASE DAY –
How can you make a difference by expressing yourself on this day in your community? For the sake of a special someone, for yourself as a survivor? How can family members, friends, co workers, stand with you to do the same? Spreading the word about LMS as a designated Rare Cancer is important – to let people know that it exists, how to pronounce it /spell it, better understand its rarity in the world of cancer. Sarcomas are 1% of all cancers. LMS is between 13 – 17% of all sarcomas. There are several subtypes of LMS, making this form of cancer even more complex and research more challenging as a result. These are the talking points to be able to spread community awareness. We can all make the difference – either one person at a time or collectively in groups. Our young people can help make the difference too!
Create an event that your community can rally around to support you . . . to observe National Rare Disease Day. Talking about it on Facebook, Blogging, Tweeting . . .can certainly be a start to something more. Call if you need support to get started: Annie 303 783-0924 or firstname.lastname@example.org. Call anytime! Always here for you in any capacity possible.
THANK YOU . . . . .
Thank you all for your ongoing support – of each other . . . We are working hard for YOU . . .as a Patient Compass from initial diagnosis, to navigating treatment, to survivorship after treatment – guidelines on what to do, what to ask, who to ask, when to ask (through the www.nlmsf.org). through New patient and family support programs launched in 2016: LMS LIVE CONNECT CONFERENCE CALL IN – Patient to Patient; CONNECT WITH A CLINICIAN PROGRAM . . . reflective of the continued mission and purpose of the Foundation . . . and our collective focus on the future – together to support LMS specific Research.
Annie Achee – NLMSF
MOVING FORWARD TOGETHER . . .Focusing on the Future . . .REACHING FOR THE CURE- TOGETHER!
Inform – Inspire – Empower
Our Mission is our Passion:
“What we can do today can affect what happens tomorrow”
Annual LMS research funding for promising LMS research projects
Founded by the NLMSF: The Annual International LMS Research Roundtable
Think Tank of the Sarcoma Research Community in support of advancing
LMS-specific precision research initiatives
Continuously bridging partnerships/collaboration with organizations to
increase/strengthen resource assistance support
The National LeioMyoSarcoma Foundation (NLMSF) is a 501(c)(3) Non-Profit Charitable Organization and a member of the GuideStar Exchange.
National LeioMyoSarcoma Foundation – NLMSF
2843 E. Grand River Avenue – #230
East Lansing, MI 48823
Sarcoma Coalition – We are here for you.
The Sarcoma Coalition brings together advocacy groups throughout the United States,
to build bridges of collaborative resource advocacy and support and Sarcoma Research
By working together, the Sarcoma Coalition members extend their advocacy strength
and provide a united presence for patients and their families/caregivers.
“Achieving More Together!”
Information provided on the NLMSF website and Facebook page as well as any referenced information links are provided for informational purposes only and do not represent medical advice or opinions. All information provided has a referenced source indicated for further access to the information being provided to followers. Followers are responsible for interactions with this website, the Facebook page, and any links relative to the medical information offered/posted.
Q & A Patient / Clinician Disclaimer:
Please be advised that only general questions may be directed to a volunteer clinician, and to only expect a general response – one that does not take the place of your medical care team/oncologist’s guidance and care.
Please do not include personal information such as your full name, date of birth, personal medical information in any emails sent through the Foundation’s open Facebook group or webpage on its website. No one can diagnose your condition from email or any other written communication and communication via the Foundation’s Facebook group / website cannot replace the relationship you have with your health care provider(s).