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NLMSF NCI MyPART Announcement-“FOR PATIENT PARTICIPATION”

 

                                                            

THE NATIONAL LEIOMYOSARCOMA FOUNDATION ( NLMSF)  JOINS THE  NCI  MyPART  NETWORK
The NLMSF has joined the National Cancer Institute (NCI) My Pediatric and Adult Rare Tumor (MyPART) Network as an advocacy partner to represent the LMS Community.
The MyPART Network is coordinated through the NCI Center for Cancer Research (CCR).
The NLMSF has joined the National Cancer Institute (NCI) My Pediatric and Adult Rare Tumor (MyPART) Network as an advocacy partner to represent the LMS Community. The MyPART Network is coordinated through the NCI Center for Cancer Research (CCR).
This program brings patients and their families together with healthcare providers, advocacy organizations, and researchers to work together to find treatments for rare cancers affecting children, adolescents, and young adults.
The National Leiomyosarcoma Foundation is going to be instrumental in helping the NCI MyPART Network in providing information and connecting patients to the Natural History Study for Rare Solid Tumors. This study will follow patients of all ages with rare solid tumors, including LMS, over the course of their disease to learn how these tumors develop and to discover treatments.
The NLMSF-SPAEN International LMS Research Roundtable will be communicating/coordinating with the  MyPART Network Initiative for mutually beneficial information sharing.  Such a collaboration will facilitate information gathering for better understanding of the LMS tumor biology and molecular makeup,  and facilitate MyPART collaboration with the NLMSF – SPAEN International LMS Research Roundtable precision studies and LMS treatment objectives.
The National Leiomyosarcoma Foundation will facilitate the exchange of information between LMS patients, healthcare providers, researchers, and the MyPART Network. This program is very important and has the potential to impact LMS tumor study and study design by the research community.   Such collective / collaborative efforts can only help in future studies to accelerate and advance new treatment options.
Patients are invited to participate in the MyPART Network Natural History Study of Rare Solid Tumors by visiting:  www.cancer.gov/MyPART to learn more.
For Patients:   Contact MyPart to participate in the program:https://www.cancer.gov/pediatric-adult-rare-tumor/about/contact
For any questions regarding participation or for more information about MyPART for the LMS Community, please contact: Annie Achee at [email protected] or 303 808-3437

                                                                           

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