Hello, my name is Shannen Shapiro and I was diagnosed with LMS in April 2018. As I write this, I am celebrating my 49th birthday. It’s a day, I really wasn’t sure I’d see. This past year and half has been the biggest rollercoaster of my life, emotionally, for sure.
At first, I read everything about LMS that I could find and in doing so, I scared myself to death. My tumor was very large, 19 cm at it’s largest point. This put me in a less than favorable category, so they gave me the harshest of treatments even after the tumor had been removed. Five months later, the cancer was back. I had not made it six months cancer free. We tried another chemo and again, it didn’t work.
Finally, we found something that worked for me, the tumor is shrinking and I am scheduled for surgery in December to remove what’s left of that tumor and to get a good look around and remove anything else that looks suspicious.
I know this may not be the end of this journey for me, but I am hopeful. So much work is being done to find the cure, if not more and better treatments, and NLMSF is leading the charge in these efforts. I have hope that I will see my children grown. Stay positive, stay informed, ask questions. Don’t forget to just live your life. When you’re done with the hospital and the doctors and the meds, put it out of your mind.
Spend time with the kids. Go to the football game. Read the book. Watch the movie. Just live and be happy. You can still be happy. God bless you all. My prayers are with you.