THE SARC RESEARCH ADVOCACY COUNCIL-” “Representing Patients/Families/Caregivers”
THE SARC RESEARCH ADVOCACY COUNCIL
The NLMSF is a member of the SARC Research Advocacy Council tobring the voice of LMS patient community to the table through to:
* Developing recommendations and providing input based on experience and understanding of treatment protocols.
* Developing recommendations to enhance programs and activities that may currently be experiencing barriers to implementation.
* Disseminating to patients available trial information and distribute research findings once trials are completed.