Welcome to the National Leiomyosarcoma Foundation
There is a great deal of reliable, helpful, and factual information available on the Internet, but there also is a lot of misinformation. We have…
Continue Reading Welcome to the National Leiomyosarcoma Foundation
Message from Peri Gilpin
My family has been touched by Leiomyosarcoma, not once, but twice. I know the heartbreak of this rare disease, and I believe that being aware of…
Navigating Resources
NLMSF patient family information brochure : (Link Here)The informal NLMSF BUDDY PROGRAM (Click here) Imerman Angels Mentor Program in Collaboration with the NLMSF (Sign up…
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There is a great deal of reliable, helpful, and factual information available on the Internet, but there also is a lot of misinformation. We have found the most reliable medical information will come from well-known cancer organizations, research facilities, hospitals, libraries, government agencies, and professional journals.
How Has NLMSF Helped Others?
From patients to doctors, NLMSF is helping people across the world.
“You are doing so much for so many” You should be proud of all you have accomplished within the Foundation.”
Dr. M Druta
Doctor“You and Mitch are doing great things in the Foundation, and the Research Roundtable approach to taking things to the next level – this is a good thing!”
Dr. S Okuno
Doctor“You have made a huge difference in the infrastructure of the NLMSF.. You should be proud of what you have done. Beverly and I congratulate you both! It is a great Foundation.”
Bruce and Beverly
Family“Annie and Mitch are both so special, and make me want to live in this world. I love you guys and NLMSF.”
Sharon
Patient“Dear Annie and Mitch, Thank you so very much for your Godly service, direction, precious time, and great knowledge. You have given me a new perspective. You are an awesome duo and I am grateful for your wonderful work.”
Darlene
Patient“This is exciting – and the way the Research Roundtable has unfolded is the right approach.”
Dr. B VanTine
Doctor“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers. It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
Sherry
Patient“We are all interconnected through one big LIFE, Annie, so it is each of our duty to be mutually supportive. Looking forward to your new and useful insights.”
Ed
Patient“I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such great patient advocates which I admire.”
Dr. Rebecca Gladdy
Doctor“I found NLMSF 3 years after my diagnosis of LMS; wish I’d found them sooner. The resources and information they provide is so helpful and the foundation’s commitment to furthering research on this disease is vital.””I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such great patient advocates which I admire.”
Michelle
DPatientLeioMyoSarcoma Facts
- SARCOMA is 1% of all cancers
- LMS Represents 17 – 20% of all Sarcomas
- Leiomyosarcoma Can Affect the Whole Body, From Face and Throughout the Body
- By 2020, LMS Will Exceed 15,000 Cases Annually
How Can You Help?
The National LeioMyoSarcoma Foundation funds vital research and support for this rare cancer. By donating, you can have a profound impact on accelerating potential breakthroughs in research and treatment!
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Participate in
MyPart Network
The MyPART Network is coordinated through the NCI Center for Cancer Research (CCR). This program brings patients and their families together with healthcare providers, and researchers to work together to find treatments for rare cancers affecting youth and adults. Patients are invited to participate in the MyPART Network Natural History Study of Rare Solid Tumors.
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Community Group
Within the LMS community, everyone has a unique experience and sharing our narratives empowers the storyteller and all those who listen. Within the sarcoma community, those individual voices unite to serve as a core transformative component for the care paradigm with an emphasis on patient experience. This network can generate change and awareness.
NLMSF Mission
Our mission is to advance research in order to accelerate treatment options and offer supportive resource assistance to patients and caregivers throughout the diagnosis and treatment journey.