About Us

The NLMSF Team Of Volunteers

"Our Mission is Our Passion"

(Click the Link Below To View)

 
Our Mission

Our mission is to advance research in order to accelerate treatment options and offer supportive resource assistance to patients and caregivers throughout the diagnosis and treatment journey.

The NLMSF-SPAEN International LMS Research Roundtable and Executive Committee: https://leiomyosarcoma.info/irr-forum/

Our Board

The National Leiomyosarcoma Foundation is comprised of volunteer Board members committed to the foundation’s vision.

The Board members serving the Foundation are here for YOU – for patients, families, and caregivers.  They are passionate about answering your questions and being available to respond to requested assistance. They represent and advocate for you.

The Board members have been touched by LMS in some way, whether as a survivor/thriver or as a family member/caregiver.

Annie Achee

President and Community Education / Research Liaison 

I am devoted to the mission and goals of the Foundation,
since its inception in 1999 – through the vision of Mr. Edmund
Hoag.  My aim is to preserve his legacy – preserve the Foundation
as he wanted it to be, by continuing all the focus that he had from
the beginning –  patient-centric programs and initiatives to promote
support and advocacy within the LMS Community.  My dedication
and commitment to this is unwavering – to faithfully serve the
Champions of Hope – the patients; and promote collaborative
relationships and partnerships with the Research Community  –
the Heroes Among us.

An interview from Global Genes with the President of the National LMS Foundation:

https://globalgenes.org/ raredaily/rare-leader-annie- achee-president-of-the- national-leiomyosarcoma- foundation/

Mitch D. Achee, M.D.

NLMSF Medical Advisory / Patient Access/ International LMS Research Roundtable Executive Committee

I am a Board Certified Diagnostic Radiologist, practicing in Colorado for over 30 yeas I am also an  LMS survivor, diagnosed in 2011.   My undergraduate degree is from Johns Hopkins University and my MD from the University of Virginia.  I was on active duty in the Army, in my internship and residency at Fitzsimons Army Medical Center in Aurora, Colorado, having also served in a leadership capacity for the Denver Medical Society; Also, a member of the Colorado Radiological Society and the Colorado Medical Society.   I wish to “pay it forward” to the LMS Community through assisting in answer general questions about the disease and explaining imaging results to help have a good understanding of their case, and be able to ask good the right questions of their care team as a result. 

NOTE:  Both Dr. Achee and Annie are members of the following research organizations: Connective Tissue Oncology Society (CTOS); the American Society of Clinical Oncologists  (ASCO); the American Association of Cancer Research (AACR).

Lynne Greco Forges, M.B.A., C.P.M.

NLMSF Treasurer

I was diagnosed with uterine leiomyosarcoma in 2015.  I have undergone numerous surgeries and chemotherapies.  Throughout this time, I have done all I can to maintain a positive attitude.  This, along with my strong faith and an excellent team of doctors, has carried me through. 

I enjoyed a 32-year career in Purchasing for various steel companies in Pittsburgh, PA. I love spending time with family and friends, cooking, reading, working on my house, spending time outdoors, yoga, walking and biking.  I do a lot of volunteer work and do as much as possible to help others. 

The NLMSF has been such a great resource for me, being Treasurer is the least I can do to show my appreciation.

Shaekya Allen

NLMSF Community Outreach

I am Founder and Director of Uterine Cancer Awareness Network Inc and a 10-year uterine cancer survivor! I am thankful to have met Mrs. Achee and excited to join forces and collaborate to educate more individuals about Leiomyosarcoma. Specifically, I want to educate women in the uterine cancer community about the disease in hopes that they take that information back to their families and we spread more awareness to save more lives as early detection is key!  I am honored to be part of the team and I believe together we will make a difference around the world! 

Denny Noh

NLMSF Community Outreach

Survivor of UPS sarcoma since 2013, and my wife is also an Ovarian cancer survivor (2018). We are both in NED
status, and volunteer at MD Anderson to support patients.

Prior to retirement I worked at: the Human Space Flight division
of North American Aviation, Rockwell International , and Boeing”
Space and Defense Systems. I have been involved in 10 short term
mission trips to Guatemala, working with local churches to build homes
for the poor and provide medical services.   
I support patients, families, and caregivers, by sharing experiences,
information, and resources and am happy to be affiliated with the NLMSF
for like-minded goals.

Jim Matthews

Community Awareness Outreach Coordinator

I hail from New Jersey, and am a graduate in Economics from Seton Hall University.   I am long time survivor, having been diagnosed in 1996 and treated at Memorial Sloan Kettering in NY.  I was one of the original members of the National Leiomyosarcoma Foundation, having attend their first HugFest in Lancaster, PA.

I am blessed with a loving family and blessed to be affiliated with the NLMSF.
I believe in the goodness of my fellow board members and want to help the LMS Community through collaborative Foundation support and advocacy in
to honor the legacy of Mr. Edmund Hoag and his board members  – carrying on
their original mission of supporting the LMS patients and their families.

Christopher Hancock

NLMSLF Webmaster/Consultant

My name is Christopher Hancock, owner of Corvus SEO
I am a former Machine Gunner in the Marine Corps and proud to have had the privilege to honorably serve the country I love.
I have been working with the NLMSF for the last 2 years, ever since my mother Shannon Shapiro met Annie Achee at a convention, as she is a survivor of LMS since 2018.
I am very pleased to serve as a Board Member for the NLMSF in her honor. My values and work ethic aligns with the mission and success of the NLMSF in assisting the LMS community. Their dedication, tenacity and can-do spirit is inspirational to me and I’m honored to be a part of it.

Pamela Randall

NLMSF Community Outreach

As a  Survivor of LMS,  I would love to give back
and help the NLMSF. Together we can get the word out in our communities about this disease. People need to know how much it means for You and Dr M Achee to be in my life
I felt so good after talking with you the other day.
It only takes one person to understand your mission like I do.

Ed Vigden

NLMSF Community Outreach
 

Husband of Danka Vidgen, ✝️ 2003/ULMS and retired bio-statistician from Toronto’s St Michael’s Hospital and University of Toronto with about 60 publications listed at PubMed repository.  Father of son Anton.   Ed is retired permanently in Thailand after having lived for 7 years in Mexico.  Wants to be a Champion of hope for the NLMSF’s mission and goals.

Tom Kubinski

NLMSF Community Outreach
 

After having gone through two rounds of his own “dance with the devil” in the form of stage four throat cancer, Tom “Papa Kubs” Kubinski feels strongly about using the knowledge he gained through those experiences to help others navigate their own cancer journeys with hope and awareness.
Tom is a 20-year member of Alcoholics Anonymous and a proud husband to Katie and dad to three awesome kids. He is honored to be a member of the National Leiomyosarcoma Foundation board and its mission to advance research on leiomyosarcoma and provide resources to those going through the disease’s diagnosis and treatment. Books written by Tom can be found at: bit.ly/Kubs2020

Chandalyn Williams

NLMSF Community Outreach
 

Chandalyn Williams is a highly motivated and experienced executive professional, regarded for her ability to deliver outstanding results with the highest degree of expertise and professionalism. She holds a Bachelor of Arts degree in Business Administration and Communication Management from Jones International University, graduating Cum Laude; a Master of Business Administration from Texas Woman’s University and; is currently within one year of completing her Doctorate of Business Administration at Trident International University. Chandalyn has served as an inpatient volunteer with M. D. Anderson Cancer Center, advocated on public platforms, such as Rare Disease Day at the Texas State Capitol and led annual 5K Run/Walks for over nine years in support of Leiomyosarcoma (LMS) Cancer research.

“When my mother, Cynthia Solomon Holmes, was

diagnosed on April 8, 2010 with Leiomyosarcoma (LMS) after visiting her doctor for a persistent cough, I was not prepared for how my world as I knew it would

be turned upside down. Watching my mother fight this disease with the strength and vigor I knew to be her was an overwhelmingly painful experience. I felt physically helpless – but I knew how to pray. For her, my family and me. Following only a three-month battle with this dragon, my mother succumbed to the disease, passing away at the age of 52. I vowed to turn my personal tragedy into something that could be triumph for others who are faced with this disease through the creation of The Cynthia Solomon Holmes Foundation. I pray that through my efforts, individuals are inspired to support those battling this disease and in the daily fight for their right to live!” ~ Chandalyn Williams

Marlana Stoddard

NLMSF Community Outreach

My name is Marlana Stoddard Hayes and I am a 6 year survivor of uterine LMS, presenting as STUMP in 2011.
Formerly, I have been a Professor of Art for 35 years with my last position as faculty at Marylhurst University in Oregon. In 2015, my diagnosis called me to step away from all teaching in order to focus on my health. In my current professional life I am represented by A.I.R. Gallery in NYC as a National Member and have a listing in Who’s Who of America. I am happy to help support the NLMSF foundation as a Board Member, as well as with donations of cards and pillow making in support of this cancer journey on behalf of cancer patients and their families. We are also parents of an amazing Chinese girl, now 18!