Newly Diagnosed with LMS

Click Here

Navigating Treatment/
After Treatment

Click Here

Resource Assistance

Click Here

Research Updates /
About Clinical Trials

Click Here

Patient Education

Click Here

FOUNDATION MISSION AND FOCUS:

♦ Patient-Family/Caregiver Education And Support

♦ Patient Advocacy Resource Program Collaboration

♦ Leiomyosarcoma Research Funding Support

♦ Organizational Collaborative Partnerships -Bridging Patient Resource Assistance

NOTE:

TWO ADDITIONAL COMPANION WEBSITES OF THE NLMSF TO ACCESS FOR MORE INFORMATION:

VISIT: LEIOMYOSARCOMA.INFO

THE "INFORMATION compass" FOR RESEARCH/CLINICAL TRIAL UPDATES, ARTICLES, WEBCASTS, VIDEOS, INTERVIEWS WITH RESEARCHERS

VISIT: LIFE CHANGE - "A NEW NORMAL" - When treatment is completed - what's next? https://nlmsflifechange.wordpress.com/

A resource support website for rebuilding quality of life after treatment for patients and caregivers. "Hope on the Horizon - What's working for you?" blog - for patients and caregivers to share their viewpoints, suggestions, and more.

Peri Gilpin, star of the NBC hit comedy show Frasier

When you’re doing your research, check out the National Leiomyosarcoma Foundation and their website to see what they can offer in terms of patient support and advocacy, funding efforts for LMS treatment advancements, and medical research information. It is so important to stay informed and know that you’re not alone in fighting this battle… read more

– Peri Gilpin, star of the NBC hit comedy show Frasier, and CBS Drama SCORPION

The NLMSF Foundation is Represented Through Collaboration with the Following Organizations:

American Cancer Foundation

American Society of Clinical Oncology (ASCO)

Cancercare

Cancer Support Community

Cure's Advocacy Spotlight Partnership

Dragonfly Angel Society

EveryLife Foundation For Rare Diseases

Genetic and Rare Diseases Information Center (GARD)

Ignyta

Imerman Angels

International Cancer Advocacy Network (ICAN)

Jannsen

The Li-Fraumeni Syndrome Association

Lilly

National Organization for Rare Disorders (NORD)

Northwest Sarcoma Foundation

Novartis

Rare Foundation Alliance-Global Genes

Rare Disease United Foundation

Sarcoma Patients Euro Net (SPAEN)

Seattle Cancer Care Alliance

Sarcoma Alliance for Research Collaboration (SARC)

The Rare Cancer Research Foundation

The Life Raft Group

THE NLMSF SUPPORT PROGRAMS:

To view the NLMSF Support Programs, click here

THE NLMSF IS WORKING HARD FOR- Y O U!

National Leiomyosarcoma Foundation Privacy Policy

We respect your confidentiality

National Leiomyosarcoma Foundation requires that your personal information be held in strict confidence. We use your information only for its intended business purpose. We do not sell or trade your information to other organizations or individuals.

We protect your information

National Leiomyosarcoma Foundation takes every possible measure to insure that your information is not compromised in any way. Our privacy promise extends online to our Internet website too.

If you choose to send us email, we may retain the contents of your email message, our reply and your email address as part of our ongoing customer service efforts. We reserve the right to contact you after you have contacted us and may send future email and/or surveys to you about National Leiomyosarcoma Foundation. You may notify us via email if you wish to discontinue electronic communication.

We keep accurate records

We keep your personal information as accurate, complete, and up to date as is required to fulfill the purpose(s) for which you provided us with your personal information. Upon request in writing we will remove your personal information from our databases, except where legislation or regulation requires our retention of it (for example, charitable giving history tied to income tax receipts.)

If you have any questions about our website or our Privacy Promise, please contact us at

303-783-0924.

Approved by the National Leiomyosarcoma Foundation Board of Directors, February 5, 2017

National Leiomyosarcoma Foundation Conflict of Interest Policy

CONFLICT OF INTEREST

We, the Directors of the National Leiomyosarcoma Foundation, resolve that no member of the Board of Directors shall participate in any discussion or vote on any matter in which he or she or a member of her or his immediate family, has potential conflict of interest due to having material economic involvement regarding the matter being discussed. When such a situation presents itself, the director must announce his or her potential conflict, disqualify herself or himself, and be excused from the meeting until discussion is over on the matter involved. The President of the meeting is expected to make inquiry if such conflict appears to exist and the board member has not made it known.

Approved by the National Leiomyosarcoma Foundation Board of Directors, February 5, 2017

National LeioMyoSarcoma Foundation

Newly Diagnosed with LMS

Navigating Treatment/
After Treatment

Resource Assistance

Research Updates /
About Clinical Trials

Patient Education

THE NLMSF SUPPORT PROGRAMS:

THE NLMSF IS WORKING HARD FOR- Y O U!

National Leiomyosarcoma Foundation Privacy Policy

National Leiomyosarcoma Foundation Conflict of Interest Policy

Reaching For the Cure Together

Newly Diagnosed with LMS

Navigating Treatment/ After Treatment

Resource Assistance

Research Updates / About Clinical Trials

Patient Education

THE NLMSF SUPPORT PROGRAMS:

THE NLMSF IS WORKING HARD FOR- Y O U!

Reaching For the Cure Together

Navigating Treatment/
After Treatment

Research Updates /
About Clinical Trials