Star of Hit NBC Comedy “Frasier” and CBS Drama “Scorpion”
Peri Gilpin
“My family has been touched by Leiomyosarcoma, not once, but twice. I know the heartbreak of this rare disease, and I believe that being aware of what to look for and asking the right questions is so important on this journey.
When my mom was diagnosed years ago, there wasn’t as much information out there about this specific form of cancer. The doctors discovered it in her spine, where it had lain for years, undetected. She lost at least two vertebrae during her first emergency surgery. Many years later, my sister went through the same thing! She went into the hospital due to terrible pain and was sent to get an MRI. She had to be rushed to another hospital and had two vertebrae removed. My sister’s prognosis, however, was better than my mom’s because doctors knew what to look for, based on family history.
Doctors won’t always make the connection or know everything about your family history, so you need to be an advocate for yourself and your loved ones and research all that you can. My mom said, “Make friends with your cancer,” and that is so true. When you’re doing your research, check out the National Leiomyosarcoma Foundation and their website to see what they can offer in terms of patient support and advocacy, funding efforts for LMS treatment advancements, and medical research information. It is so important to stay informed and know that you’re not alone in fighting this battle. I truly believe that if we can all get on board to bring awareness and help find a cure for cancer in general, we can make a difference for all of us affected by the many forms of this disease, like Leiomyosarcoma. There is hope, one step at a time.”
Inform – Inspire – Empower
Our Mission is our Passion:
“What we can do today can affect what happens tomorrow”
Annual LMS research funding for promising LMS research projects
Founded by the NLMSF: The Annual International LMS Research Roundtable
Think Tank of the Sarcoma Research Community in support of advancing
LMS-specific precision research initiatives
Continuously bridging partnerships/collaboration with organizations to
increase/strengthen resource assistance support
The National LeioMyoSarcoma Foundation (NLMSF) is a 501(c)(3) Non-Profit Charitable Organization and a member of the GuideStar Exchange.
National LeioMyoSarcoma Foundation – NLMSF
2843 E. Grand River Avenue – #230
East Lansing, MI 48823
The Sarcoma Coalition brings together advocacy groups throughout the United States,
to build bridges of collaborative resource advocacy and support and Sarcoma Research
Community alliances.
By working together, the Sarcoma Coalition members extend their advocacy strength
and provide a united presence for patients and their families/caregivers.
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Star of Hit NBC Comedy “Frasier” and CBS Drama “Scorpion”
Peri Gilpin
“My family has been touched by Leiomyosarcoma, not once, but twice. I know the heartbreak of this rare disease, and I believe that being aware of what to look for and asking the right questions is so important on this journey.
When my mom was diagnosed years ago, there wasn’t as much information out there about this specific form of cancer. The doctors discovered it in her spine, where it had lain for years, undetected. She lost at least two vertebrae during her first emergency surgery. Many years later, my sister went through the same thing! She went into the hospital due to terrible pain and was sent to get an MRI. She had to be rushed to another hospital and had two vertebrae removed. My sister’s prognosis, however, was better than my mom’s because doctors knew what to look for, based on family history.
Doctors won’t always make the connection or know everything about your family history, so you need to be an advocate for yourself and your loved ones and research all that you can. My mom said, “Make friends with your cancer,” and that is so true. When you’re doing your research, check out the National Leiomyosarcoma Foundation and their website to see what they can offer in terms of patient support and advocacy, funding efforts for LMS treatment advancements, and medical research information. It is so important to stay informed and know that you’re not alone in fighting this battle. I truly believe that if we can all get on board to bring awareness and help find a cure for cancer in general, we can make a difference for all of us affected by the many forms of this disease, like Leiomyosarcoma. There is hope, one step at a time.”
Inform – Inspire – Empower
Our Mission is our Passion:
“What we can do today can affect what happens tomorrow”
Think Tank of the Sarcoma Research Community in support of advancing
LMS-specific precision research initiatives
increase/strengthen resource assistance support
The National LeioMyoSarcoma Foundation (NLMSF) is a 501(c)(3) Non-Profit Charitable Organization and a member of the GuideStar Exchange.
National LeioMyoSarcoma Foundation – NLMSF
2843 E. Grand River Avenue – #230
East Lansing, MI 48823
Contact Us:
Annie Achee
Home: 303-783-0924 Cell: 303-808-3437
[email protected]
Sarcoma Coalition – We are here for you.
The Sarcoma Coalition brings together advocacy groups throughout the United States,
to build bridges of collaborative resource advocacy and support and Sarcoma Research
Community alliances.
By working together, the Sarcoma Coalition members extend their advocacy strength
and provide a united presence for patients and their families/caregivers.
“Achieving More Together!”