Support the National Leiomyosarcoma Foundation at the Truman Charities Annual Derby Party
National Leiomyosarcoma Foundation
Providing education, support, research funding and advocacy for the
Global LMS Community as we move forward in the quest for the cure.
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Receive the latest research news and community updates
Join Community
Connect with our Facebook support group
A guiding light for patients and caregivers facing a LeioMyoSarcoma diagnosis.
A quiet space for words, hope, and connection.
Joseph Jang
Boulder 70.3 & Ironman California
Training for two IRONMAN races to raise funds for NLMSF-supported LMS research. Every swim, bike, and run represents a step forward in the fight against leiomyosarcoma.
What Our Experts Say
Brian Van Tine, MD
Sarcoma Program Director, Alvin J. Siteman Cancer Center
"I love this group, it makes a difference."
Seth Pollack, MD
Professor, Northwestern University Feinberg School of Medicine
"I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers..."
Arun Singh, MD
Director of UCLA Sarcoma Medical Oncology
"The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians..."
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Important Videos & Education
Access our comprehensive library of educational videos, webinars, and resources designed to help patients, caregivers, and healthcare providers better understand LMS.
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Stay updated with the latest LMS news and support resources.
Our Mission
To support the LMS patient, family, and caregiver community through education, information sharing, resource assistance, and 24/7 direct phone support.
To address unmet needs in treatment, research, clinical trials, and care through the Foundation's International LMS Research Roundtable—collaborating with researchers, clinicians, partner organizations, and especially the LMS community—to achieve meaningful progress.
To fund LMS-specific research that advances the field of study and accelerates development of clinical trials and treatments.
To raise global, national, and community awareness of this disease, prioritizing actionable goals and delivering measurable progress.
Learn More About Us
Annual Accountability Reports
Access our comprehensive annual reports documenting our progress, achievements, and financial stewardship
2024
Latest Report2024 Accountability Report
Our comprehensive 25th anniversary report detailing research funding, grant awards, repurposed drug initiatives, and expanded international collaborations.
- ✔ Research Awardees
- ✔ 60+ Roundtable Researchers
- ✔ Repurposed Drug Initiative
- ✔ International Collaborations
2023
Previous Report2023 Accountability Report
Our annual report highlighting achievements in leiomyosarcoma research, patient support programs, and community advocacy initiatives.
- ✔ Research Awardees
- ✔ SPORE LMS Project
- ✔ MD Anderson Collaboration
- ✔ 24 Years of Service
Our Partners
Working together with leading organizations to advance LMS research and patient care
Dr. Raphael Pollock, M.D., Ph.D
James Cancer Center, Ohio State Univ
The NLSMF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease...
Arun Singh, M.D.
Associate Professor, Sarcoma Service
The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians to learn more about this rare disease...
From Patients and Caregivers to You
Hear directly from LMS survivors and specialists who have been where you are. Their stories provide insight, guidance, and hope for your journey.
Dr. Mitch Achee
Diagnostic RadiologistLMS SurvivorChairman, NLMSF Medical Advisory Board
“As both a medical professional and an LMS survivor, I understand the importance of accurate information and community support in navigating this complex journey.”
Watch Full VideoTembi Locke
Actress & AuthorNLMSF Technical Advisor
“From Scratch chronicles my personal LMS journey with my husband. The NLMSF provided invaluable guidance, which is why I selected them as the technical advisor for the Netflix adaptation of my memoir.”
Watch Full VideoChandalyn Williams, Ph.D
NLMSF Board Member
“The NLMSF serves as a guiding light to face the LMS journey. Their resources and community support make a significant difference in the lives of patients and caregivers.”
Watch Full VideoThese personal stories offer unique insights from those who understand what you're going through. Remember, you're not alone on this journey.
Join Our Mission To Support The LMS Community
Your support makes a real difference in the lives of patients and families affected by LMS.