Patient Education

PATIENT AND FAMILY 
EDUCATION PROGRAMS

The NLMSF collaborates annually with major sarcoma centers of excellence to bring important and special educational opportunities to the LMS Community. Listed are program collaborations current and past, (some recorded). 

2020

Note:  Due to the COVID-19 health crisis,  all five in-person LMS education programs originally scheduled in 2020  were postponed.  More updates will be provided as available.   However, special education programs are taking place by phone or online meeting within the new NLMSF Patient Caregiver Initiatives: NLMSF Patient-Caregiver Advocacy Roundtable and NLMSF Survivors Inspire Peer Network .

EDUCATIONAL WORKSHOPS

AUGUST 20, 2020

Participate in the upcoming Survivors Inspire Peer Network as we are joined by Dr. Elizabeth Davis , from the Sarcoma Center at Vanderbilt-Ingram Cancer Center. She will speak about a review of LMS statistics, treatments, and clinical trial updates, as well as self-advocacy in care.

AUGUST 3, 2020

Join the upcoming Patient-Caregiver Advocacy Roundtable when we are joined by Dr. Alexander Lazar, Department of Pathology, MD Anderson Cancer Center. His topic: Pathology and what it means for patient care, treatment protocol impact, second opinions, and self-advocacy in care.

JULY 16, 2020

Survivors Inspire Peer Network Virtual Meeting featured guest speaker the Founder and Director of REACH for SURVIVORSHIP PROGRAM who discussed Survivorship Care Planning and Nutrition during and after treatment. Both impact maintenance of good health and quality of life.

JULY 13, 2020

Patient-Caregiver Advocacy Roundtable featured guest speakers from The Rare Cancer Research Foundation and the Broad Institute of MIT/Harvard speaking about the Cancer Cell Line Project. Patients’ consenting to tumor donation helps global research. Learn more about the collaboration of the NLMSF and the Broad Institute’s Cancer Cell Line Project and Dependency Map – tumor screening.

JUNE 8, 2020 

During the Patient -Caregiver Advocacy Roundtable, a special presentation was made by the NCI on their MyPart initiative and what it can mean for the LMS community and future research. Awareness of this information is important to us all as stakeholders of our survivorship.  A summary of the presentation is available by emailing annie@nlmsf.org. You can also learn more here.

MAY 4, 2020

During the Patient – Caregiver Advocacy Roundtable meeting, we heard from Dr. Anette Duensing, MD, of the Hillman Cancer Center in Pittsburgh, PA,  She presented information on the importance of pathology and second opinion opportunities for patients. She also discussed current translational research updates going on in her lab. Dr. Duensing is a member of the NLMSF-SPAEN International LMS Research Roundtable.

APRIL 21, 2020

The Federal Drug Administration (FDA)  met with the NLMSF to discuss several questions posed by the Patient-Caregiver Advocacy Roundtable and offered an extensive Q & A session for participants.  10 representatives from the FDA were on hand for this teleconference.    A summary of the meeting is available by emailing annie@nlmsf.org.

SARCOMA WEBINAR SERIES

Dr. Paul Huang of the Royal Marsden Hospital is hosting an ongoing series of Weekly Sarcoma Webinars. The series, organized by Priya Chudasama of the German Cancer Research Center, will be every Wednesday beginning at 11:00 am EDT (unless otherwise specified). These webinars are free and open to the community.  LMS and other sarcoma subtypes will be discussed as we connect the clinical and research communities regarding the latest scientific advances.  Learn more and register here….

2019

JAMES CANCER CENTER/SOLOVE CANCER INSTITUTE: TACKLING LMS, A TEAM SPORT
FRED HUTCHINSON CANCER CENTER/SEATTLE CANCER CARE: FACING SARCOMA / LMS TOGETHER
MD ANDERSON CANCER CENTER: FACING LMS TOGETHER
SARCOMA ONCOLOGY CENTER: FACING LMS TOGETHER
DANA FARBER CANCER CENTER: 2019 SARCOMA CONFERENCE 

2018

HILLMAN COMPREHENSIVE CANCER CENTER: FACING LMS TOGETHER
TORONTO INTERNATIONAL SARCOMA SYMPOSIUM
MAYO CLINIC: Facing LMS Together
STANFORD HEALTH CARE : FACING LMS TOGETHER
DANA FARBER CANCER INSTITUTE: Annual Sarcoma Conference
MOFFITT CANCER CENTER: FACING LMS TOGETHER Part 1, Part 2, Part 3

2017

UCLA/RONALD REAGAN MEDICAL CENTER
FRED HUTCHINSON CANCER CENTER / SEATTLE CANCER CARE
DANA FARBER CANCER CENTER
KNIGHT CANCER INSTITUTE