Patient and Family Education Programs
The NLMSF collaborates annually with major sarcoma centers of excellence to bring important and special educational opportunities to the LMS Community. Listed are program collaborations current and past, (some recorded).
Note: Due to the COVID-19 health crisis, all five in-person LMS education programs originally scheduled in 2020 were postponed. More updates will be provided as available. However, special education programs are taking place by phone or online meeting within the new NLMSF Patient Caregiver Initiatives: NLMSF Patient-Caregiver Advocacy Roundtable and NLMSF Survivors Inspire Peer Network .
EDUCATIONAL WORKSHOPS
of the
National Leiomyosarcoma Foundation
Patients - Caregivers Advocacy Roundtable
First MONDAY of each month – 7 pm EDT
Join the Patient-Caregiver Advocacy Roundtable Virtual Meeting
Guest Speakers featured for most meetings on topics selected by participants
Survivors Inspire Peer Network
Third THURSDAY of each month – 7 pm EDT
Join the Survivors Inspire Peer Network Virtual Meeting
Guest speaker featured at not meetings on important topics selected by participants.
Contact annieachee@aol.com or call 303 808-3437 to join the virtual meetings
The NLMSF Newsletters and FB Support Group will always announce scheduled meetings and guest speakers for each meeting.
Leiomyosarcoma Education Videos for Patients and Caregivers
TOPICS
ABC’s of a New Diagnosis
Basic Research
Caregiving
Chemotherapy and Targeted Agents
Circulating Tumor DNA and Liquid Biopsies
Clinical Trials
Chemotherapy and Targeted Agents
General Information on Sarcoma Care – Multidisciplinary Approach
Imaging/Radiology
Immunotherapy
The Microbiome (Gut Health) and its Impact on the Effectiveness of Chemotherapy Treatment
Pathology
How to Participate in Patient Centered Research
Count-Me-In
Pattern.orgRadiation Therapy
Surgical Treatment
Survivorship Care Planning
Uterine Fibroids – What You Should Know Before Having Fibroid Surgery
ABC's of a New Diagnosis
The ABC’s of a New Diagnosis 5/22/23 (Presented by the NLMSF)
Video recording: https://youtu.be/9pnKTkzqOw0
Introduction to the ABC’s of a New Diagnosis 1/16/22 (Presented by the NLMSF)
Video recording: https://youtu.be/BJBK8bJOOaw
Basic Research
The Importance of Telemeres in Leiomyosarcoma presented by Dr Priya Chudasama of Heibelberg University, Germany 7/19/2022 (Hosted by the NLMSF)
(Video Here)(
LMS Connect Live 3/18/22 (Hosted by the NLMSF)
Program Moderator 
Jonathan Trent, MD, PhD
Slyvester Comprehensive Cancer Center, Miami University, Miami, FL
Speakers:
Matthew Hemming, MD, PhD
Research Oncologist, Harvard Medical School/Dana-Farber Cancer Institute, Boston, MA
Discusses his work to develop and interrogate much needed laboratory models of leiomyosarcoma.
Nicolas Llosa, MD
Research Oncologist, Johns Hopkins University, Baltimore, MD
Discusses his work to translate a better understanding of the immune microenvironment of LMS into improved immunotherapies for patients affected by this condition.
Video recording: https://youtu.be/lgXPwxdB8pM
Caregiving
Lararex Foundation’s Dr. Marya Shegog discusses “Caregiving Counts” 8/20/22 (Hosted by the NLMSF)
Video recording: https://youtu.be/EhYR2LHtSdU
Chemotherapy and Targeted Agents
Elise Nassif, MD, PhD.
Sarcoma Medical Oncologist, MD Anderson Cancer, Center
Houston, TX
How patient co-morbidities can impact chemotherapy treatment
(14 Apr 2023) Hosted by the NLMSF
Jonathan Trent, MD, PhD. Sylvester Comprehensive Cancer Center, Sarcoma Center, Miami, FL
The Use of Trabectedin in the Treatment of LMS (29 Jan 2023) Hosted by the NLMSF.
Neeta Somaiah, MD
Sarcoma Medical Oncologist, MD Anderson Cancer Center
Houston, TX
The Use of Votrient in the Treatment of Sarcomas(Leiomyosarcoma 20 Jan 23 (Hosted by the NLMSF)
Circulating Tumor DNA and Liquid Biopsies
Kristin Ganjoo, MD
Sarcoma Medical Oncologist at Stanford University Stanford, CA and Katie Baker, PhD. Medical Science Liaison – Oncology at Natera/Signatera
The Role of Circulating Tumor DNA (ctDNA) in Leiomyosarcoma 3/27/22 (Hosted by the NLMSF)
Video Recorfing; https://youtu.be/4DdhdoP8BOQ
Joanna Przybyl, PhD.
The Research Institute of Montreal at McGill University Montreal, Canada
Circulating DNA in Uterine Leiomyosarcoma and Benign Uterine Leiomyosarcomas Presented by Dr. Przybyl 2/24/2022 (Hosted by the NLMSF)
Video Recording: https://youtu.be/Lhh_uvjK8uU
Kenneth Cardonna, MD
Sarcoma Surgeon at the Emorty University Winship Cancer Institute Atlanta, GA
The Role of Nomograms in the Treatment of LMS and the Potential Future Impact of Circulating Tumor DNA on the Treatment of LMS Presented by Dr. Cardonna 2/17/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/Gy2u7QRLuqU
Dale Shepherd, MD
Medical Oncologist at the Cleveland Clinc in Cleveland, OH
Current LMS/Sarcoma research projects at the Cleveland Clinic and perspectives on the statue of ctDNA for Sarcoma/LMS application for the future – were do we stand now? 2/2/22 (Hosted by the NLMSF)
Video recording: https://youtu.be/fqo32_wgRpU
Brian Crompton, MD
Dana-Farber Cancer Institute Boston, MA
ct-DNA Proof of Concept Research for Sarcoma (30 Nov 2021) Hosted by the NLMSF.
Video recording: https://youtu.be/a98XOq_BE6k
Clinical Trials
Dr. Gregory Cote, MD, PhD
Medical Oncologist at Massachusetts General Hospital, Boston MA
Dr. Cote provides a thorough overview of how clinical trials are done to bring new drugs such as Lurbinectedin to patients. He also dicusses his current clinical trial using Lurbinectedin in combination with Doxorubicin in the treatment of advanced Leiomyosarcoma.
(8 August 2023). Hosted by the NLMSF
Brian Van Tine, MD, PhD
Medical Oncologist at the the Siteman Cancer Center, Washington University, St. Louis, MO
Dr. Van Tine discusses a new clinical trial: A Randomized Phase II Plus Ttial of Cabozantinib Combined with PD-1 and CTLA-4 Inhibition versus Cabozantinib in Metastatic Soft Tissue Sarcoma.
He also gives updates on three on-going clinical trials for leiomyosarcoma patients. (20 July 2023) Hosted by the NLMSF.
- Unesbulin (PTC596) in Combination with Dacarbazine – a Phase III Trial for Patients with Advanced LMS (SUNRISE Trial)
- Pegylated Arginine Deiminase in Combination with Gemcitabine and Doxcetaxel Phase III Trial for Treatment of Soft Tissue Sarcomas
- Randomized Phase 2/3 Trial Using Olaparib Plus Temozolomide Versus Investigators Choice Treatment for Treatment of Advanced Uterine Leiomyosarcoma
https://www.youtube.com/watch?v=ZHpMtNTwSRw
Brian Van Tine, MD, PhD
Medical Oncologist at the the Siteman Cancer Center, Washington University, St. Louis, MO
Updates on Three Promising Active LMS Clinical Trials (14 April 2023) Hosted by the NLMSF
Elise Nassif, MD, PhD.
Sarcoma Medical Oncologist, MD Anderson Cancer Center
Houston, TX
Clinical Trials in Soft Tissue Sarcoma: The Efficacy of Early – Phase Clinical Trials (21 Sep 2022) Hosted by the NLMSF.
Video recording:https://youtu.be/vArSCfUnAbM
Brian Van Tine, Md, PhD
Medical Oncologist at the the Siteman Cancer Center, Washington University, St. Louis, MO
Unesbulin, New Treatment for Leiomyosarcoma(Upcoming Clinical trial) Presented by Dr. Van Tine 6/28/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/HbwUvXcl7wg
Matthew Ingham, MD
Sarcoma Medical Oncologist, Herbert Irving Comprehensive Cancer Center, Columbia University Medical Center, New York, NY
Discussion on New Treatment Approaches for LMS that are in Preclinical or Clincal Trials (8 Jun 2022) Hosted by the NLMSF
His recent Presentation at the ASCO Meeting:
His ongoing clinical trials:
ATX-101 in Advanced Dedifferentiated Liposarcoma and Leiomyosarcoma
https://clinicaltrials.gov/ct2/show/NCT05116683?term=NCT05116683&draw=2&rank=1
A Phase II Clinical Trial Evaluating the Combination of Olaparib and Temozolomide for the Treatment of Advanced Uterine Leiomyosarcoma )Last updated August 24, 2022)
https://clinicaltrials.gov/ct2/show/NCT03880019
Additionally, Dr. Ingham’s colleague,
Gary Schwartz, MD discussed this trial as it is going into Phase III on this Onclive Presentatiion https://www.onclive.com/view/olaparib-temozolomide-shows-encouraging-efficacy-manageable-safety-in-uterine-leiomyosarcoma?fbclid=IwAR05Ks-v50HFqLBY6zgv
Dr. Schwartz. also, discussed this trial on this presentation hosted by the NLMSF.
https://youtu.be/62gyn3nt6Z8
General Information on Sarcoma Care - Multidisciplinary Approach
VANDERBILT SARCOMA CENTER EDUCATION VIDEO – with Dr. Elizabeth Davis – Patient learning hour about sarcoma and its treatment – multiple disciplinary treatment at Vanderbilt University 14 July 2022(Co-hosted by the NLMSF)
Video recording: https://youtu.be/2FuOuLewaJl
Elizabeth Davis, M.D., Vanderbilt Cancer Center, Nashville, KY
Brief background on LMS
Treatment of LMS
1. Systemic
2. Importance of supportive care during and after systemic therapy
3. Clincal Trials on the horizon (20 Aug 2020) Hosted by the NLMSF
Vieo recording: https://youtu.be/U-JW4GYi3tA
THE A B C’s OF A NEW DIAGNOSIS – THE https://youtu.be/2FuOuLewaJIMAYO CLINIC and the NLMSF present: The ABC’s of a Sarcoma Diagnosis
Video Recording: https://www.youtube.com/watch?v=nv2HP9TbaYA
How to Participate in Patient Centered Research - Count-Me-In / Pattern.org
Count Me In LMS Project and how to participate discussed by Ben Zola the director of the project
Video recording: https://youtu.be/EACPtT7cnK4
Imaging/Radiology
Imaging/radiology
Immunotherapy
Elise Nassif, MD, PhD
MD Anderson Cancer Center
Targeting the Molecular and Immunological Features of LMS 9 Jun 2023 (Hosted by the NLMSF)
Video recording: https://youtu.be/qaYjM2GPYzk
Article that the presentation is based on:
https://www.mdpi.com/2072-8894/15/7/2099
Jonathan Trent, MD, PhD. Sylvester Comprehensive Cancer Center, Sarcoma Center, Miami, FL
Current Status and Future Directions of Immunotherapies in Soft Tissue Sarcomas 28 Feb 2023 (Hosted by the NLMSF)
Video recording: https://youtu.be/W9QnMxDOeQM
Article on this Topic:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8945421/#B68-biomedicines-10-00573
Christian Meyer, MD
Sarcoma Medical Oncologist at the Johns Hopkins Sidney Kimmel Comprehensive Cancer Center Baltimore, MD
Immunotherapy for Sarcoma: A Work in Progress – Dr. Meyer discusses his recent article published in the Journal of Clinical Oncology 4/14/2022 (Hosted by the NLMSF)
Video Recording: https://youtu.be/w9o46xJ0cvA
You can read his article here: https://ascopubs.org/doi/10.1200/JCO.21.01338
The Microbiome (Gut Health) and it Impact on the Effectiveness of Chemotherapy Treatment
Elise Nassif, MD, PhD.
Sarcoma Medical Oncologist, MD Anderson Cancer Center
Houston, TX
The Microbiome (Gut Health) and it Impact on the Effectiveness of Chemotherapy Treatment 17 Feb 2023 (Hosted
Video Recording: https://youtu.be/NtEdB4bno5E
Pathology
Alexander Lazar, M.D., Sarcoma Pathologist
MD Anderson Cancer Center, Houston, TX
Basic Lecture on Pathology of Sarcoma (3 Aug 2020) Hosted by the NLMSF.
Video recording: https://www.youtube.com/watch?v=gjvcYEdOZmw
Patient Centered Research How You Can Participate
Radiation Therapy
Anush Kalbasi, MD
Radiation Oncologist, UCLA Department of Oncology and UCLA Comprehensive Cancer Center
The Role of Radiation Oncology in LMS (5/15/2021)
Hosted by the NLMSF.
https://youtu.be/NuNNaaOV_9Q
Surgical Treatment
William Tseng, MD
City of Hope National Medical Center
Sarcoma Surgical Oncologist
Retroperitoneal Leiomyosarcoma — Consensus Guidelines and Daily Practice presented by Dr. Tseng (8/22/22) Hosted by the NLMSF
Video Recording: https://youtu.be/2FuOuLewaJI
Brian Kadera, MD
Surgeon, Complex General Surgical Oncology,
Ronald Reagan UCLA Medical Center and Santa Monioca Medical Center
Surgical Management of Leiomyosarcoma/Sarcoma (4/15/2021)
Hosted by the NLMSF.
Aime Crago, MD
Sarcoma Surgical Oncologist, Memorial Sloan Kettering Cancer Center, New York, NY
Surgical Management of LMS (2 Nov 2020) Hosted by the NLMSF.
Jeffery Farma, MD
Sarcoma Surgeon, Fox Chase Medical Center, Philadelphia, PA
Perspectives on Surgical Management of LMS/Sarcoma (4/2/2020)
Hosted by the NLMSF.
Survivorship Care Planning
Survivorship Care Planning Presented by Shelley Fuld Nasso, MPP, CEO of the National Coalition for Cancer Survivorship 10/4/22 (hosted by the NLMSF)
Video recording: https://youtu.be/kwyZaw5-2yU
Uterine Fibroids - What You Should Know Before Having Fibroid Surgery
Panel Experts discuss this topic. Hosted by the NLMSF.
http://bit.ly/2K82sFO – Introductory brief about the medical panel you tube presentation
Video recording: https://youtu.be/3d0FoUPv738