Patient and Family Education Programs
The NLMSF collaborates annually with major sarcoma centers of excellence to bring important and special educational opportunities to the LMS Community. Listed are program collaborations current and past, (some recorded).
Note: Due to the COVID-19 health crisis, all five in-person LMS education programs originally scheduled in 2020 were postponed. More updates will be provided as available. However, special education programs are taking place by phone or online meeting within the new NLMSF Patient Caregiver Initiatives: NLMSF Patient-Caregiver Advocacy Roundtable and NLMSF Survivors Inspire Peer Network .
EDUCATIONAL WORKSHOPS
of the
National Leiomyosarcoma Foundation
Patients - Caregivers Advocacy Roundtable
First MONDAY of each month – 7 pm EDT
Join the Patient-Caregiver Advocacy Roundtable Virtual Meeting
Guest Speakers featured for most meetings on topics selected by participants
Survivors Inspire Peer Network
Third THURSDAY of each month – 7 pm EDT
Join the Survivors Inspire Peer Network Virtual Meeting
Guest speaker featured at not meetings on important topics selected by participants.
Contact annieachee@aol.com or call 303 808-3437 to join the virtual meetings
The NLMSF Newsletters and FB Support Group will always announce scheduled meetings and guest speakers for each meeting.
Leiomyosarcoma Education Videos for Patients and Caregivers
2023
January
Use of Trabectedin in the Treatment of LMS By Dr. Jonathan Trent 1/20/23
2022
December
Neeta Somaiah, MD
Sarcoma Medical Oncologist, MD Anderson Cancer Center
Houston, TX
The Use of Votrient in the Treatment of Sarcomas(Leiomyosarcoma) dicussed Dr. Neeta Somaiah 12/29/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/zk6CNU11VE0
November
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October
Survivorship Care Planning Presented by Shelley Fuld Nasso, MPP, CEO of the National Coalition for Cancer Survivorship 10/4/22 (hosted by the NLMSF)
Video recording: https://youtu.be/kwyZaw5-2yU
September
Clinical Trials in Soft Tissue Sarcoma: The Efficacy of Early – Phase Clinical Trials Presented by Dr. Elise Nassif of the MD Andeerson Cancer Center 9/22/2022 (hosted by the NLMSF)
Video Recording: https://youtu.be/mY2q7q5VOlA
His presentation to the NLMSF Patient – Caregiver Advocacy Roundtable is once again offered
Clinical Trial on Uterine LMS last updated August 24, 2022:
A Phase II Clinical Trial Evaluating the Combination of Olaparib and Temozolomide for the Treatment of Advanced Uterine Leiomyosarcoma
Principle Investigator: Mathew Ingham, MD https://clinicaltrials.gov/ct2/show/NCT03880019 Additionally, Dr. Ingham’s colleague, Dr. Gary Schwartz presented to the NLMSF Patient -Caregiver Advocacy Round table:
● Dr. Gary Schwartz discussed the large clinical trial going into Phase III for uterine LMS clinical trial update: https://www.onclive.com/view/olaparib-temozolomide-shows-encouraging-efficacy-manageable-safety-in-uterine-leiomyosarcoma?fbclid=IwAR05Ks-v50HFqLBY6zgv
Recorded presentation: https://youtu.be/62gyn3nt6Z8
August
VANDERBILT SARCOMA CENTER EDUCATION VIDEO – with Dr. Elizabeth Davis Patient Learning hour about sarcoma and information about the NLMSF
William Tseng, MD
City of Hope National Medical Center
Sarcoma Surgical Oncologist
Retroperitoneal Leiomyosarcoma — Consensus Guidelines and Daily Practice presented by Dr. Tseng 8/22/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/2FuOuLewaJI
July
VANDERBILT SARCOMA CENTER EDUCATION VIDEO – with Dr. Elizabeth Davis – Patient learning hour about sarcoma and its treatment – multiple disciplinary treatment at Vanderbilt University(Co-hosted by the NLMSF)
THE A B C’s OF A NEW DIAGNOSIS – THE MAYO CLINIC and the NLMSF present: The ABC’s of a Sarcoma Diagnosis
Video Recording: https://www.youtube.com/watch?v=nv2HP9TbaYA
The Importance of Telemeres in Leiomyosarcoma presented by Dr Priya Chudasama of Heibelberg University, Germany 7/19/2022 (Hosted by the NLMSF)
(Video Here)(
June
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Brian Van Tine, Md, PhD
Medical Oncologist at the the Siteman Cancer Center, Washington University, St. Louis, MO
Unesbulin, New Treatment for Leiomyosarcoma(Upcoming Clinical trial) Presented by Dr. Van Tine 6/28/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/HbwUvXcl7wg
May
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April
Christian Meyer, MD
Sarcoma Medical Oncologist at the Johns Hopkins Sidney Kimmel Comprehensive Cancer Center Baltimore, MD
Immunotherapy for Sarcoma: A Work in Progress – Dr. Meyer discusses his recent article published in the Journal of Clinical Oncology 4/14/2022 (Hosted by the NLMSF)
Recording here: https://youtu.be/w9o46xJ0cvA
You can read his article here: https://ascopubs.org/doi/10.1200/JCO.21.01338
March
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February
Joanna Przybyl, PhD.
McGill University Montreal, Canada
Circulating DNA in Uterine Leiomyosarcoma and Benign Uterine Leiomyosarcomas Presented by Dr. Przybyl 2/24/2022 (Hosted ny the NLMSF)
Video Recording: https://youtu.be/Lhh_uvjK8uU
Kenneth Cardonna, MD
Sarcoma Surgeon at the Emorty University Winship Cancer Institute Atlanta, GA
The Role of Nomograms in the Treatment of LMS and the Potential Future Impact of Circulating Tumor DNA on the Treatment of LMS Presented by Dr. Cardonna 2/17/22 (Hosted by the NLMSF)
Video Recording: https://youtu.be/Gy2u7QRLuqU
January
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