LMS Lifeline Connection
Compass Connection
Direct support line for LMS patients and families
Call anytime, the LMS Lifeline/Compass Connection:
Connect With A Clinician Program
Professional medical guidance for your questions
Send general questions to annieachee@aol.com, to be forwarded anonymously to research clinicians to provide general help. This program was developed to encourage medical questions to be directed to medical professionals rather than social media communities in an effort to provide helpful information from medical professionals - sarcoma specialists from sarcoma centers of excellence.
NOTE: This connection never takes the place of your own oncologist / multidisciplinary care team. You must always seek help from your own team first for your specific medical case.
If you are seeking case-specific second opinions, the Telemedicine option is offered by sarcoma centers of excellence – contact the Foundation for more information/assistance: 303-783-0924. Happy to help you!
LMS Lifeline Buddy Program
Peer Support Network
Connect with others who understand your journey
The NLMSF Lifeline Buddy Program connects LMS patients with trained peer supporters who have personal experience with LMS. These buddies provide emotional support, share experiences, and help navigate the challenges of an LMS diagnosis.
To learn more about the Buddy Program or to be connected with a buddy, contact the Foundation at:
Resource Assistance
NLMSF Life Change Resource Assistance
Support for life changes due to LMS
The NLMSF Life Change program provides resources and assistance to help patients and families navigate the life changes that come with an LMS diagnosis. This includes emotional support, practical guidance, and connections to helpful services.
Emotional Support Resources
Help for handling cancer and your emotions
Dealing with the emotional aspects of cancer is an important part of the journey. NLMSF provides guidance on handling cancer and your emotions throughout the cancer journey.
Support Organizations
List of Resources Assistance Organizations
American Cancer Society (ACS)
800-ACS-2345 (800-227-2345) provides information about specific cancers and has resources for supportive care and services around the country.
Association of Cancer Online Resources
A group of online cancer communities that provides information in a supportive environment.
Sarcoma Research Resources
Podcast from Dr. Vinod Ravi (MD Anderson Cancer Center) on LMS research efforts.
YouTube presentation by Dr. Bharat Aggarwal on nutrition and Curcumin (Turmeric).
Cancer.Net
888-651-3038, this patient education website from the American Society of Clinical Oncology (ASCO) provides information on more than 50 types of cancer and their treatments, clinical trials, side effects, and coping.
CancerCare
800-813-HOPE (800-813-4673), this national organization provides a toll-free counseling phone line, telephone support groups, and educational programs. All services are free of charge.
Finding a Caregiver When you Have Cancer
Resource guide for finding caregiving support during cancer treatment.
National Cancer Institute (NCI)
800-4-CANCER (800-422-6237) provides access to many types of information resources on different cancers, treatments, and supportive care.
National Institutes of Health (NIH)
The nation's medical research agency – supporting scientific studies that turn discovery into health.
National Comprehensive Cancer Network (NCCN)
Made up of experts from many of the nation's leading cancer centers. It develops cancer treatment guidelines for doctors to use when treating patients.
National Coalition for Cancer Survivorship (NCCS)
877-NCCS-YES provides tools that empower people afflicted by cancer to advocate for themselves.
Sarcoma Recurrence Information
Six Things to Know about a Sarcoma Recurrence
Information from Memorial Sloan Kettering Cancer Center