In This Issue:
- Upcoming Online Patient Education Sessions
- 3/18/25 - Patient Perspectives in Clinical Trials
- 4/17/25 - The ABC's of The Sarcoma Diagnosis
- 4/29/25 - Caregiving Counts
- LMS Research Highlights
- Clinical Trial Highlights
- Tips for Living with LMS
- What Is the Difference Between Staging and Grading a Cancer Tumor?
- 2025 Medicare Guidance
- Social Security Benefits, Health Insurance Rules, & More
- Important IRS Information to Support Patients and Families on the Sarcoma Diagnosis Journey
- The Dos and DON’Ts of Eating For Immune Support During Cancer
- Get Ready for Spring
In This Issue:
- Upcoming Online Patient Education Sessions
- 3/4/25 - Dr. Javier Martin Broto: Phase Ib Study for the Combination of Doxorubicin, Dacarbazine, and Nivolumab
- 3/5/25 - Dr. Hari Deshpande: Sarcoma Patient & Family Education Virtual Symposium
- 3/18/25 - Patient Perspectives in Clinical Trials
- 4/17/25 - The ABC's of The Sarcoma Diagnosis
- 4/29/25 - Caregiving Counts
- LMS Research Highlight
- Tips for Living with LMS
- 5 Steps for Creating Successful, Sustainable Change after a Cancer Diagnosis
- Cancer Survivorship Guidance and Support
- Understanding Caregiving
- Join the Movement!
In This Issue:
- Upcoming Online Patient Education Sessions
- Feb. 21 - Radiation Strategies in Soft Tissue Sarcoma
- Feb. 26 - Clinical Trial Discussion: Peposertib Plus Liposomal Doxorubicin
- Feb. 28 - Progress in LMS and Sarcoma Research
- Previously Recorded Information Session
- Leiomyosarcoma Treatment for Metastatic Disease
- LMS Research Highlights
- LMS Clinical Trial Highlights
- Tips for Living With LMS
- Tips for Coping with Cancer “Scanxiety”
- Natural Remedies for Anxiety
- How are you Really?
- A SPECIAL MESSAGE TO OUR FRIENDS AND SUPPORTERS
n This Issue:
- Online Patient Information Sessions
- Dr. Seth Pollack on his Latest Clinical Trial: TKI (Pill) for LMS Patients
- Recorded Research in Review Session: Dr. John Mullinax on the STRASS II/III LMS Clinical Trial
- Recorded Webinar: Premier Physician-Scientist Panel of Experts Addresses Patient Questions
- Clinical Trial Resources
- How Does a Clinical Trial Work?
- Different Kinds of Clinical Trials
- LMS Research Highlights
- Sarcoma Research Spotlight
- Sarcoma Centers Registry
- Tips for Living with LMS
- Financial Assistance Resource Organizations
- The Benefits of Walking
- Caregiving and Coping
In This Issue:
- Dedication
- A Special Message to LMS / Sarcoma Patients
- New Year, New Newsletter Look!
- Recent Online Presentations
- Report on an ASCO Presentation: Combining ICIs with TKIs
- Genetic Testing
- Clinical Trials – FDA Guidance
- Clinical Trials in Process
- Cultivating Well-Being through Gardening
In This Issue:
- Building Courage, Hope, Resilience and Strength Through Ongoing Support and Advocacy!
- GREAT NEWS: NLMSF Research Awardee for 2025-26 Announced
- Sarcoma/LMS Research Updates
- Tips for Living with LMS
- Ways To Be Your Own Best Advocate
- We're Doing More, With Your Support
- What the LMS Community Is Saying About Us
In This Issue:
- Upcoming Online Patient Education Sessions
- o Jan. 10 - ABC’s of an LMS Diagnosis
- o Jan. 13 - Dr. John Mullinax: STRASS II Study
- o Jan. 22 - Sarcoma Research and Treatment Updates
- Sarcoma/LMS Research Update
- Tips for Living with LMS
- Looking for Resources?
- Coping Support During the Holidays
- NLMSF Bookshelf
- We're Doing More, With Your Support
In This Issue:
- Keeping Gratitude as a Centerpiece for the Holidays
- Current Studies & Research in Review Presentations
- Jan. 13, Dr. John Mullinax: STRASS2 Study
- Jan. (date TBA), Dr. Richard Riedel: Invincible-3 Trial
- Jan. (date TBA), Dr. T. Chen: TRPV4 in LMS Progression
- Feb. 7, Dr. Seth M. Pollack: XL092 (Zanzalintinib)
- Stereotactic Radiosurgery for Metastatic Spinal Sarcomas
- The Next Generation of Genomic Profiling
- Tips for Living with LMS
- Supplements and Your Prescriptions
- Today Is Giving Tuesday!
In This Issue:
- A Thanksgiving Message
- From the NLMSF Bookshelf
- CTOS Meeting Report
- Tips for Living with LMS
- Survivorship Care
- Vitamins and Supplements (When Chemotherapy Is Over)
- Toolkit for Taking Charge of Your Care
- Laughter Is the Best Medicine
- Giving Tuesday
In This Issue:
- Upcoming Online Patient Education Session
- Help Shape the Future of Cancer Research
- Exploring LMS Patients' Perspectives on Heritability and Interest in Genetic Testing
- Share Your Experience – Diagnosis Pathway Survey
- LMS Count Me In Project
- Rare Cancer Research Foundation - Are You Scheduled for Surgery Soon?
- Drug Repurposing
- Clinical Trial Spotlight
- Join the Movement
- 10/29/24 NLMSF News Tracker
In This Issue:
- Help Shape the Future of Cancer Research
- Share Your Experience – Diagnosis Pathway Survey
- NIH Opportunities in Cancer Research
- Approaching Cancer as a Disease That Affects the Entire Body
- Clinical Trial Highlights
- LMS Research Highlights
- Tips for Living with LMS
- Sarcoma Patient Stories and More
- A Prescription for Exercise
- Getting a Second Opinion
In This Issue:
- NLMSF Book Club
- Upcoming Online Patient Information Sessions
- Oct. 14 – The ABC’s of an LMS Diagnosis (or Recurrence)
- Oct. 21 – NLMSF Survivorship Care Clinic
- Tips for Living with LMS
- Oral Hygiene During Chemotherapy - What to Know
- Tax Guidance for Cancer Patients
- LMS / Sarcoma Research Spotlight
- Join the Movement
In This Issue:
- Previously Recorded Information Sessions
- The Sarcoma Patient Advocacy Global Network (SPAGN) – Wants Us to Help
- Collaboration with BostonGene
- Research / Clinical Trial Spotlight
- Tips for Living with LMS
- Practical Tips for Coping with a Diagnosis of Leiomyosarcoma or Sarcoma of Any Subtype
- Two Recommended Books
- Cranberries – The Benefits of Eating Them
- Why the Flu Shot is Important for Cancer Patients
- Palliative Care
- End-of-Life Tips for Caregivers
- Support Research
In This Issue:
- Upcoming Online Patient Education Sessions
- What’s a Saculator-Nomogram?
- ABC’s of the LMS Diagnosis
- Previously Recorded Information Session
- Clinical Trial Discussion with Dr. Vishu Avutu
- Interested in a Telehealth Opinion with Dr. Kristen Ganjoo?
- Research / Clinical Trial Spotlight
- How Do We Overcome Treatment Resistance in a Sarcoma Cancer with Already Limited Treatment Options?
- Clinical Trial Perspectives - Clinicians, Patients, and Families
- Clinical Trials
- NLMSF Board Member Spotlight - Marlana Stoddard Hayes
- HOPE REIGNS
- What Are They Saying About Us This Week?
In This Issue:- Upcoming Online Patient Education Session
- Immunotherapy in Sarcoma: Current Data and Promising Strategies, Aug. 23
- Note: Aug. 27 program to be rescheduled
- Practical Tips for Coping with the Diagnosis of Leiomyosarcoma or Sarcoma of Any Subtype
- Research / Clinical Trial Spotlight
- Treatment and Prognosis of Uterine Leiomyosarcoma
- Palliative Care
- How to Cope with a Diagnosis and Manage the Disease
- Guidance From the American Society of Clinical Oncology (ASCO)
- Please Help the Sarcoma Patient Advocacy Global Network (SPAGN)
- Take the Global Sarcoma Diagnosis Pathway Survey for Patients and Caregivers
- End-of-Life Tips for Caregivers
- Add your Impact to LMS Research
- What Are People Saying About the NLMSF?
In This Issue:
* National Sarcoma Awareness Month - July and National LMS Awareness Day - July 15
* Clinical Trial Discussion with Dr. Vishu Avutu of Memorial Sloan Kettering Cancer Center
* Recorded Presentations by Dr. Neeta Somaiah, MD Anderson Cancer Center
* Recorded Presentation of the UCLA - NLMSF Patient-Family Education Forum
* Clinical Trial Spotlight
* Research Saves Lives
In This Issue:
- National Awareness Day/Month for LMS
- Support at Your Fingertips
- Upcoming Online Presentation
- July 29 - The ABC’s of an LMS Diagnosis / Recurrence, and Caregiving Counts Guidance Support
- Clinical Trial Spotlight
- LMS/Sarcoma Research Highlights
In This Issue:
- Upcoming Online Presentations
- June 20 - Neeta Somaiah, MD: Clinical Trials; also Durvalumab
- June 21 - Emily Jonczak, MD: A New Clinical Trial for LMS
- June 28 - Gina D’Amato, MD: Clinical Trials in the Pipeline at Sylvester Cancer Center, Miami
- Previously Recorded Session
- Alison Tierney, Cancer Dietician
- News
- Introducing Promising Pathway 2.0
- Living with LMS
- Getting the Psychosocial Support You Need to Get Through Cancer
- The NLMSF’s LMS LifeLine Buddy Program
- New Approach May Help People with Cancer Better Manage Depression, Pain, and Fatigue
- Cancer “Remedies” That Don’t Work
- Clinical Trials Information for Patients and Caregivers
- LMS/Sarcoma Research Highlights
- CURE Magazine Speaks with the National LMS Foundation
In This Issue:
- June Is National Cancer Survivors Day (and Month!)
- A Special Message to Patients in Survivorship
- Help Save a Life!
- July Is Sarcoma Awareness Month, and . . .
- LMS and Sarcoma Research Highlights
- Tips for Living with LMS
- Research Saves Lives
In This Issue:
- Online Patent Information Sessions
- May 20 – Combined Session: Caregiving Counts & The ABC's of LMS
- May 22 – Nutrition and Cancer: Virtual Discussion with an Expert
- May 29 – Benefits for Veterans with Cancer
- Rescheduled - Count Me In Project
- Previously Recorded Research in Review Sessions
- Radiation Therapy and Research Updates
- Soft Tissue and Uterine LMS Research Review
- Thoracic Procedures for Metastatic Sarcoma
- LMS/Sarcoma Research Highlights
- The Golf Ball Project
- Tips For Living with LMS
- Financial Assistance Resources and Sarcoma Centers of Excellence with their Lodging Resources: Transportation Resource Information
- Research Saves Lives
In This Issue:
- Online Patent Information Sessions
- May 8 – Radiation Therapy and Research Updates
- May 20 – Caregiving Counts
- May 22 – Nutrition and Cancer: Virtual Discussion with an Expert
- Be Part of Research!
- New Developments: RCRF Impacting LMS Research on a Global Scale
- Count Me In Project
- Repurposed Drug Initiative
- LMS/Sarcoma Research Highlights
- Tips For Living with LMS
- Manage Your Dental Care
- How To Care for Your Skin During and After Cancer Treatment
- NLMSF Podcast
- Drive LMS Research
In This Issue:
- Upcoming Online Patient Information Session
- April 25 - LMS Live - Research in Review - Josephine Dermawan, MD
- Previously Recorded Presentation
- Eric Toloza, MD - Thoracic Surgery Procedures for Metastatic Sarcoma
- Cardiotoxicity: Cancer Treatment and the Heart
- LMS Research Highlights
- Tips for Living with LMS
- Vitamins and Supplements to Fight Inflammation (When Chemotherapy Is Over)
- Survivorship Care - What You Should Know
- The “Write” Way to Heal
- Quality of Life Podcasts
- Drive LMS Research
In This Issue:
- Online Patient Information Sessions
- April 12 – Thoracic Procedures for Metastatic Sarcoma
- April 25 – Soft Tissue and Uterine LMS Research Review
- May 8 – Radiation Therapy and Research Updates
- Online Support Group
- May 10 - Circle of Hope: Caregiving Guidance Session
- Recorded Educational Webinar
- Making The Mouth-Body Connection in Cancer Care
- LMS Research Highlights
- Tips For Living with LMS
- Financial Assistance Resource Information
- Tips For Caring for Someone With LMS
- Cure Magazine Speaks with the National LMS Foundation on Caregivers in the Clinical Trial Process
- Seven Tips for Managing Caregiver Stress
- Research Saves Lives
In This Issue:
* Upcoming Online Program
* Save the Date! April 9, Research Update with Dr. Kalbasi
* Previously Recorded Presentation
* Research & Review with Kristen Ganjoo, MD
* Patient-Driven Initiatives to Advance Research
* Why Do Patient-Driven Initiatives Matter?
* Patient-Driven Initiatives Currently in the Pipeline
* Count Me In LMS Project: New Pilot Uterine Program
* Repurposed Drug Initiative
* Clinical Trials
* LMS Research Updates
* Tips for Living with LMS
* Cancer Camps for Families
* National Leiomyosarcoma Awareness Day
In This Issue:
- Upcoming Online Program
- 3/15/24 - Circle of Hope with Kristen Ganjoo, MD
- Previously Recorded Information Session
- Panel Discussion - Clinical Trials Perspectives
- Count Me In LMS Project News
- Clinical Trials
- LMS Research Updates
- Tips for Living with LMS
- Rare Disease Day
- What is the LMS Community Saying About Us?
In This Issue:
Rare Disease Day is Feb. 29
Upcoming Online Program
(From Triage Cancer) Managing Medical Bills & Getting Financial Help, Feb. 27
Count Me In LMS Project Update, March 6
Tips for Living with Cancer
Military, Veterans and Cancer
What Should I Eat Now? Coping with Cancer
Need an Appointment Organizer?
Integrative Medicine – What Is It?
Clinical Trials
Clinical Trial Spotlight
Clinical Trial Listings
NLMSF Book Club
Be Part of Research Advancement and Acceleration!
In This Issue:
NLMSF Book Shelf
Upcoming Online Presentations
2/20 - Clinical Trials - Perspectives
2/23 - A Journey From Grief To Hope
Clinical Trial Resources
Research Updates
Survivorship Tips and Resources
ASCO Welcomes New Rule Establishing Electronic Prior Authorization in Federal Health Plans
10 Chemotherapy Tips From Cancer Patients Who’ve Been There
‘What’s going to come next is really hard’
Tax Guidance for Patients/Resource Information from Triage Cancer
Be Part of Research Advancement and Acceleration!
1/30/24 NLMSF News TrackerIn This Issue:
- NLMSF 2023 Accountability Report Released
- Upcoming Online Presentations
- Clinical Trials - Perspectives, Feb. 20
- Discussion: Termination of PCT Biosciences’ UNESBULIN Clinical Trial, Feb. date TBA
- Clinical Trials Highlighted
- Research Updates
- Survivorship Tips and Resources
- Social Security Disability Insurance
- Tax Guidance for Cancer Patients
- Take Special Care with Food to Avoid Infections During Cancer Treatment
- Be Part of Research Advancement and Acceleration!
1/16/24 NLMSF News TrackerIn This Issue:
- New Year's Message
- Online Presentations and Discussions
- Sarcoma Drug Repurposing Webinar (Sarcoma Foundation of America)
- ABCs of the LMS Diagnosis and the Survivorship Care Planning Clinic
- Circle of Hope Panel Discussion
- Tips for Survivorship
- Current NLMSF Collaborations
- Clinical Trials
- LMS Research Updates
- What are they saying about us... 2024 Testimonials
- Ignite Research Advancement and Acceleration
1/2/24 NLMSF News TrackerIn This Issue:
Reflections on Entering a New Year
- Online Patient Information Session 1/22 - ABCs of the LMS Diagnosis and the Survivorship Care Planning Clinic
- Previously Recorded Research In Review SessionLMS/Sarcoma Research UpdateTips for Living with LMSLegal Tips for the New Year
- Our MissionWhat Our Community Says About Us A Recent Testimonial from the Research Clinician Community Recent Testimonials from Patients and Caregivers
A Year-End Request
2023 News Trackers
In This Issue:
2022
2021
