Our Mission Is Our Passion

Our Programs

• The NLMSF- SPAEN INTERNATIONAL RESEARCH ROUNDTABLE
• The PATIENT-CAREGIVER ADVOCACY NETWORK [ROUNDTABLE]
• The SURVIVORS INSPIRE PEER NETWORK
• The LMS LIFELINE BUDDY PROGRAM
• 24/7 Direct Patient/Caregiver Helpline: 303 808-3437
• Annual Patient-Family LMS Education Symposia throughout the USA/Canada
• Education Webinar collaboration with other cancer organizations
• The Cancer Cell Line Project – patient drive tumor registry for Crisper Crispr / repurposed drug screening / global data access for Research
• NCI MyPart Network – patient natural history data collection partnership
• Connect with a Clinician Program for general Q & A
• Collaborative Partnerships with other organizations to enhance Patient – Family resource support
• Sarcoma Coalition – Steering Committee membership for collaboration with 20 other sarcoma organizations
• Research Advocacy Council – to collaborate with other sarcoma organizations to impact clinical trial patient participation and outcomes
• Three Foundation websites – to offer resource assistance throughout the diagnosis / treatment journey of patients and caregivers
• Weekly News Letters for clinical trial updates, research updates and wellbeing educational opportunities, well-being resource information