NLMSF Logo
NLMSF Logo

Inform – Inspire – Empower

Our Mission Is Our Passion

Through Education / Advocacy / Research

“What we can do today can affect what happens tomorrow – We Have what it Takes to Help Each Other!”

Our Programs

  • The NLMSF- SPAEN INTERNATIONAL RESEARCH ROUNDTABLE
  • The PATIENT-CAREGIVER ADVOCACY NETWORK [ROUNDTABLE]
  • The SURVIVORS INSPIRE PEER NETWORK
  • The LMS LIFELINE BUDDY PROGRAM
  • 24/7 Direct Patient/Caregiver Helpline: 303 808-3437
  • Annual Patient-Family LMS Education Symposia throughout the USA/Canada
  • Education Webinar collaboration with other cancer organizations
  • The Cancer Cell Line Project – patient drive tumor registry for Crisper Crispr / repurposed drug screening / global data access for Research
  • NCI MyPart Network – patient natural history data collection partnership
  • Connect with a Clinician Program for general Q & A
  • Collaborative Partnerships with other organizations to enhance Patient – Family resource support
  • Sarcoma Coalition – Steering Committee membership for collaboration with 20 other sarcoma organizations
  • Research Advocacy Council – to collaborate with other sarcoma organizations to impact clinical trial patient participation and outcomes
  • Three Foundation websites – to offer resource assistance throughout the diagnosis / treatment journey of patients and caregivers
  • Weekly News Letters for clinical trial updates, research updates and wellbeing educational opportunities, well-being resource information

Direct Contact to the Foundation

A N N I E   A C H E E

annieachee@aol.com or 303 808-3437