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Research Saves Lives

Research Saves Lives

The Rare Cancer Research Foundation (RCRF) united with the National Leiomyosarcoma Foundation in 2017. Through Pattern.org, patients can help drive pioneering LMS research by donating excess tumor tissue.

Participating is straightforward—simply decide to provide your consent before your surgery through Pattern.org. By opting to donate excess tumor tissue prior to your scheduled surgery, you play a vital role in advancing Leiomyosarcoma (LMS) research. Your tumor tissue will be dispatched to MIT’s Koch Institute, specifically the Boehm Lab, under the guidance of Dr. Jesse Boehm, the Principal Investigator. The lab’s primary emphasis will be on genomics and model derivation for leiomyosarcoma, with all research findings shared widely after de-identification.

As a patient, you have the opportunity to play a crucial role in advancing rare cancer research by participating in initiatives such as Pattern.org.

Featured Videos

Dr. Jesse Boehm on tissue donation with Pattern.org

Dr. Jesse Boehm on Tissue Donation

Dr. Jesse Boehm discusses the importance of tissue donation with Pattern.org for advancing LMS research.

Watch video
Pattern.org step-by-step guide for patients

Step-by-Step Guide for Patients

A quick walkthrough for patients to participate with Pattern.org.

Watch guide

Questions?

Should you have any inquiries regarding this program, feel free to reach out to Barbara Van Hare, President of Pattern.org. She is dedicated to addressing all your questions or concerns, ensuring your comfort and confidence in taking this significant stride forward in global Leiomyosarcoma (LMS) research.

barbara@rcrf.org844-472-7273 ext. 700