Volunteer
Join the NLMSF TEAM and bring your ideas, creativity, commitment, and enthusiasm to help make a difference for the LMS Community.
You Can Help
The National Leiomyosarcoma Foundation (NLMSF TEAM) embraces a dedicated and committed volunteer community of active LMS patients/survivors, caregivers, families, friends, co-workers, advocates/supporters who all contribute to the mission and purpose of the Foundation.
Become a Foundation Community Ambassador
Be a Volunteer Foundation Community Ambassador
Help the Foundation with a small project or initiate a project you feel passionate about doing, based on your time and availability.
Who Can Be a Community Ambassador?
- LMS patients and survivors
- Caregivers and family members
- Friends and coworkers
- Students and young professionals
- Anyone passionate about making a difference
The Foundation has at least 50 fundraising ideas to share. Students and young professionals can also be Community Ambassadors to help raise awareness and LMS research funding.
Community Ambassador Spotlight: Bonnie Shaw
Bonnie has led multiple creative fundraising initiatives for NLMSF, rallying her community to support patients, families, and research. Her dedication and energy are a powerful example of how one Community Ambassador can make a meaningful impact.
Ready to Become a Community Ambassador?
Contact Annie at 303-808-3437 or email annieachee@aol.com to join our team or for more information.
Community Ambassador Moments
Attend Patient Education Programs
Patient Education Programs
Throughout the year, the NLMSF hosts various educational programs for patients, caregivers, and medical professionals. These events provide valuable information about LMS treatments, research developments, and support resources.
Upcoming Events
Check our Patient Education page for calendar updates on upcoming programs and events that you can attend or help organize.
View Education CalendarWays to Help With Education Programs:
- Assist with event planning and coordination
- Help with registration and check-in
- Share your personal story as a speaker
- Distribute educational materials
- Provide technical support for virtual events
Fundraising Opportunities
Create a Fundraising Project
Think of a project at church, school, work, or club affiliation, in connection with a holiday to make it a festive fundraising effort. Fall is a great time to launch a fundraising project.
July 15th is LMS Awareness Day
A fundraising event on this day would highlight awareness of LMS. Contact Annie for the Ideas List to help you get started.
Fundraising Project Ideas:
5K Run/Walk
Organize a community race with registration fees benefiting NLMSF.
Dinner Fundraiser
Host a dinner event with ticket sales supporting LMS research.
Holiday Gift Wrap
Offer gift wrapping services during holiday seasons for donations.
For a complete list of fundraising ideas or to discuss your own creative project:
Contact Annie for IdeasSpreading the Word
Be a Part of "Spreading the Word"
Help reach out to the Non-Sarcoma Community Providers where you live with doctors, nurse navigators, and P.A.'s involved in your care.
Get Your Small Tool Kit
Reach out to Annie at 303-808-3437 to discuss how to help in this initiative - we have your small tool kit to get you started.
See the image for detailed instructions on how to use your tool kit effectively.
The Golf Ball Project
If You See a Lump or a Bump – Could it Be Sarcoma?
Learn all about this initiative by the NLMSF and the Sarcoma Coalition initiative started in 2020 and jump on board to help us help others in the future. We can do this together and pay it forward.
The card shown above contains the same information as the instructions below.
What is it? Could it be a Sarcoma?
LUMPS and BUMPS of any size on any part of the body.
Do not ignore - a possible red flag.
A lump or bump can be deep or subcutaneous and may be painful. It may change size over time, be persistent, or involve deep tissue.
Be Alert
An in-depth consultation and evaluation is necessary to eliminate the potential for possibly overlooking a form of Sarcoma. Delays in treatment can be critical.
Imaging / Biopsy is the best practice
MRI imaging is best; ultrasound at a minimum initially.
Biopsy or surgical intervention will reveal whether or not there is a sarcoma. Consult with a Sarcoma Specialist if it is.
Educational Resources:
Become a "Boots on the Ground" Ambassador
As a patient or family member/caregiver, if you would like to be the boots on the ground ambassador for this initiative:
Contribute to Research
Invest in Research Breakthroughs To Advance Treatment
It is all about the present and the future of Leiomyosarcoma research breakthroughs to advance treatment options and extend survival for patients.
Honor Someone Special
It is easy to make a contribution to research in honor or tribute for someone who has been a special part of your life.
Through investing in LMS Research, patients, families, and friends come together to support and contribute to the Foundation's funding of important LMS research projects.
Donate TodayRegional Volunteer Opportunities
Get Involved in Your Region
The NLMSF supports volunteer opportunities across the United States, with regional coordinators who can help you get involved in your local area:
Local Patient Support Groups
Help coordinate and facilitate support group meetings for LMS patients and caregivers in your community.
Find Local GroupsRegional Awareness Events
Participate in events across the country to raise awareness about LMS and support patient education.
View CalendarMedical Center Partnerships
Support our partnerships with sarcoma centers of excellence nationwide by helping distribute educational materials and resources to patients.
Join ProgramNo matter where you live, you can make a difference. Contact our National Volunteer Coordinator for information about opportunities in your region.
Call: 303-808-3437
Social Media Participation
Be a Facebook/Twitter Participant
Connect with patients, supporters, and Foundation board members on social media. See information updates posted about research articles, news, and updates.
How You Can Help on Social Media: