EDUCATION – SUPPORT – ADVOCACY – RESEARCH
We want to inform, inspire and empower.
"The NLSMF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease, with the direct intent to provide sorely needed new therapeutic approaches. The LMS Research Roundtable process provides this unique and heretofore mission function, and for this reason we are so very grateful to Annie and Mitch Achee for providing the inspiration and resources needed to forge this connection."
"I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers. LMS is common enough to have had a specific focus initiative- and the NLMSF was many steps ahead of the curve, to launch the LMS International Research Roundtable – to support patients in this way, and focus on LMS-specific research and support in the research landscape. Annie and Mitch are such a good team for the LMS Roundtable. They compliment each other with their unique strengths in moving forward to help patients and giving a special spotlight to LMS in particular."
A description the Count Me In Project is found in the link provided below, along with a description of the NCI MyPart Network.
The Count Me In Project is under the direction of Dr. Corrie Painter, PhD of the Broad Institute. Visit: https://leiomyosarcoma.info/mypart-network/
New therapies for LMS can't be discovered until we systematically map the best drug targets. The Rare Cancer Dependency Map Initiative is creating patient models from living tissue from your consent to donate your tumor tissue prior to surgery.
Within the LMS community, everyone has a unique experience and sharing our narratives empowers the storyteller and all who listen.
A telecon network of survivors of the journey to share about end of treatment in particular tips, suggestions, new information from guest speakers from different sarcoma centers of excellence.
The MyPART Network is coordinated through the NCI Center for Cancer Research (CCR). This program brings patients and their families together with healthcare providers, and researchers to work together.
