The National Leiomyosarcoma Foundation is comprised of volunteer Board members committed to the foundation’s vision.
The Board members serving the Foundation are here for YOU – for patients, families, and caregivers. They are passionate about answering your questions and being available to respond to requested assistance. They represent and advocate for you.
The Board members have been touched by LMS in some way, whether as a survivor/thriver or as a family member/caregiver.
Having lived in Cincinnati, Ohio for 44 years, I consider myself a Cincinnatian even though I was raised and educated near Detroit, Michigan. My background was in primary and intermediate education. After 30 years of teaching primary and intermediate grades, I moved on to a supervisory student teacher position for the Miami of Ohio University.
Not unlike others, when my daughter, Annemarie, at age 46 was diagnosed with peritoneal Leiomyosarcoma (LMS), my world changed its course. As a result, my passion was totally focused on being an active member of the National Leiomyosarcoma Foundation (NLMSF). My tenacity to investigate, rise to the challenge to fight this disease, through research and awareness, let my husband John and I to actively join the Foundation in 2011. In 2012, I became recording secretary, for two years and now the membership chairperson.
My husband, John, vice-president since 2013 of the NLMSF, joined me, as did close friends, to organize/coordinate the 2-5K runs in Cincinnati. I held numerous fundraisers from home parties to “wine and dine” events, to Shop for Cause with Macy’s department store.
Fortunately, our daughter is in remission. It warms my heart to meet other survivors who may still be battling the disease and leave me saddened when I hear of the LMS angels we lose. Rather than concentrate on me, I would like to concentrate on you and them.
My dream is to see the NLMSF increase its following/membership, as well as fundraising efforts through regions with others who agree with our very necessary cause. Thank you to those who have joined us, and to you who have not, please consider it.
“Together we can… Reach for the Cure.”
I am a certified packaging engineer with twenty years in the medical device arena. I recently lost my wife to Leiomyosarcoma. She was still a young 60 years when LMS took her from me. At her initial diagnosis we quickly realized how little attention was being given to LMS versus other cancers (breast, prostate, lung, pancreatic, and so on). After her death I have made it a priority to honor her by volunteering with the LMS Foundation, with my goal of increasing awareness and education about this terrible disease.
I live in Jacksonville, Florida and intend to retire here at the end of 2017. My plan is to actively support the mission and vision of the NLMSF. If I can help to return one life from LMS then I have achieved my goal of honoring my wife.
Mitch has developed a strong interest in cancer patient support and advocacy and sarcoma research.
Web Administrator/ Project Manager
I am a Biochemistry and Physiology graduate from the University of Colorado. I started working at the NLMSF in August 2016.
Currently, I am working for a biotech company that involves extensive genetic/ drug research. I hope to apply the skills I learned thus far for LMS research and provide patients with readily accessible and comprehensible information on new treatment advancements.
Although LMS is a rare disease, it certainly deserves more attention and I am honored to help spread awareness and support the foundation in empowering patients and searching for the cure!
Christopher is the son of an LMS survivor which is precisely why he started contributing to the National Leiomyosarcoma Foundation (NLMSF) in April 2019.
He is a Marine Corps combat veteran and currently owns Corvus SEO LLC, a Digital Marketing and Search Engine Optimization company based in Seattle, Washington.
His younger brother was diagnosed with chronic myelogenous leukemia at age 26 in 2015 and his mother was diagnosed with LMS in 2018.
He recently had his first child in 2018, a beautiful baby girl named Rosalie, with his fiance Shaylah. After his mother attended a wonderful conference put on by the NLMSF in 2019, Chris received and opportunity to contribute to the NLMSF and has been honored to help make forward progress for this rare disease!