The Cancer Financial Assistance Coalition (CFAC) is a consortium of organizations that help patients manage financial challenges that can emerge as a result of a cancer diagnosis.
Patient Advocacy/Support organizations, such as Sarcoma Alliance, offer financial assistance/ reimbursement for certain expenses connected to second opinion medical appointments–up to $500 upon meeting eligibility requirements. Advocacy support organizations may offer various program and services to assist with cancer care expenses. Organizations offer different types of assistance with their own eligibility/regulatory parameters. Additionally, there is no guarantee that funds would always be available. Funds are limited and the amount of funding varies, therefore each should be contacted for specific information.
- Co-Pay Relief Program– Many voluntary organizations offer some financial relief to cancer patients who cannot afford insurance coverage, co-pays, deductibles, and other associated out-of-pocket costs if eligibility requirements are met.
- Government Programs – Check into a government program to see if you may qualify. State government programs may be able to assist with medical and living expenses if eligibility requirements are met.
- Public and Nonprofit Hospitals– Contact a social worker at a local health dept. for more information.
- Patient Assistant Programs– (from pharmaceutical companies that have patient assistant programs for insurance reimbursement; referrals to co-pay relief programs; medication cost reduction offers) if eligibility requirements are met.
- Voluntary Organizations– Voluntary organizations may offer assistance with childcare, transportation, or home maintenance needs. Different organizations have different types and levels of assistance with eligibility/regulatory parameters.
- Personal Financial Planning– Getting advice from a financial planner may be a valuable appointment. An accountant can help guide you on income taxes. Qualifications for tax credits can be evaluated to reduce your taxes, especially if you have significant out-of-pocket medical expenses, such as insurance deductibles. There are free and low-cost financial planning seminars as well, usually sponsored by investment management companies or even AARP.
- Health Insurance– Your own health insurance benefit entitlements need to be carefully reviewed to best understand your policy’s coverage. Your insurance company case manager can offer more personalized assistance with answering questions.
- Your Community— Local organizations or advocacy organizations can provide assistance.
- Patient Guide— Read Cancer.net’s new patient guide to financial help: “Managing the Cost of Cancer Care,” published by the American Society of Clinical Oncology.
- Paying for Cancer Treatments – Personal Loans, HSAs, and More— The Simple Dollar’s, “Guide to Paying for Cancer Treatments”. Receiving a cancer diagnosis can take a toll on a person’s life not only emotionally and physically but also financially. We created a resource that outlines how to afford some of the most common cancer treatments. Our guide discusses payment options, important questions to ask and recommendations from experienced medical professionals.
CFAC Coalition Organizations that help patients:
- American Cancer Society
- CancerCare – cancercare.org/financial
- CancerCareCo-Payment Assistance Foundation
- HealthWell Foundation
- Patient Access Network Foundation
- Patient Services Incorporated
- National Organization for Rare Disease
- Sarcoma Alliance – for second opinion appts – stipends for travel and medical expenses
- The Max Foundation
- GO TO: http://www.cancerfac.org/ for more information.
- Dream Foundation – Grants final dreams from the heart to adults with life-threatening illnesses. May include vacation with a couple of family members, help with a utility bill, an appliance, or gift for ill adult’s child.
How to help patients navigate health insurance from start to finish – a comprehensive guide to help you:
For more direct / LIVE help:
CALL: C SC at 888-793-9355
How Do I Get Health Insurance?
If you do not have health insurance, below are some options that might be available to you.
State Health Insurance Marketplaces
Can be found at www.HealthCare.gov. Marketplaces provide one location for people to learn about private and some public health insurance plans available to them, where they live. Individuals who choose plans in the Marketplace may be eligible for financial assistance.
A federal health insurance program, which provides coverage to individuals who are entitled to Social Security retirement benefits and are 65 years of age or older, individuals who are under the age of 65, but have been receiving Social Security Disability Insurance (SSDI) for no less than 24 months, individuals entitled to Railroad Retirement benefits or Railroad Retirement disability benefits, individuals with end-stage renal disease (ESRD) and individuals with Amyotrophic Lateral Sclerosis (ALS). For more information visit www.medicare.gov. You may be eligible to receive both Medicare and Medicaid benefits if you are over 65 or disabled and have very limited income. Medicaid might cover what Medicare does not.
A federal health insurance program with eligibility criteria and benefits that vary from state to state. Thirty-one states provide coverage for low income adults, while in other states individuals have to meet other requirements, such as having a disability, having a dependent child or being over age 65. For more information visitwww.medicaid.gov. You may be eligible to receive both Medicare and Medicaid benefits if you are over 65 or disabled and have very limited income. Medicaid might cover what Medicare does not.
If you have health insurance coverage through your employer or a spouse’s employer, COBRA may allow you to maintain that coverage if you experience a qualifying event, such as leaving your job. For more information visit www.dol.gov/ebsa/COBRA.html.
You may be eligible to receive health care through the Veterans Administration. For more information visit www.va.gov/health.
Health Insurance for Cancer Patients – Resources
ACS Health Insurance Assistance Service: 1-800-ACS-2345
Triage Cancer has a tool on their website to find all types of insurance options and other government benefits options. You can apply directly at http://triagecancer.org/services/health-care-options/
Communicating with Your Health Insurance Company
If you have health insurance, it’s important to learn about the specifics of your policy, including:
- What’s covered
- Deductibles (what you must pay out-of-pocket before your insurance company will begin to cover claims)
- Co-payments or co-pays (a dollar amount set by your insurance provider required to be paid by a patient each time care or a drug is received)
- Other out-of-pocket costs
- How to best use your insurance benefits
A good place to start is with your health insurance card. Your insurance card will have numbers you can call to learn more about your policy.Many health insurance companies offer insurance case managers to assist insured individuals diagnosed with cancer. These trained individuals (often registered nurses or licensed social workers) will follow your case closely, helping to coordinate care and insurance benefits. Contact your insurance company to ask if they will assign you a case manager.Learning more about what your policy does and does not cover will help you better work with your insurer to make sure you receive all the benefits and coverage to which you are entitled. You will also be better prepared to deal with any questions or disputes you may encounter.
Appealing Insurance Denials
It is not unusual for claims to be denied or for insurers to say they will not cover a test, procedure or service that your doctor ordered. However, you can appeal your health insurance company’s decision and you may be able to get the decision overturned. Check with your health care team to see if there is someone on staff who can help you. If the appeal is for coverage of a specific medication, some manufacturers may be able to help you with your appeal. If you choose to file the appeal yourself, remember that courtesy and a cool head will increase your chances of success. It is normal to be frustrated, irritated or angry that a claim was denied.
However, how you share that frustration and anger may affect the success of your appeal.If your appeal is denied, you still have options. You can ask for a final decision in writing and then file an external appeal. However, if your issue is urgent, you don’t have to wait to get a final decision from your insurance company before filing an external appeal. An external appeal involves a review of your claim by an independent organization outside of your insurance company. All private health insurance plans are now required to have external appeals processes.You can also request help from your state’s Consumer Assistance Program, your state’s insurance agency or the Department of Labor if you are insured under a federal policy. For more information, visit www.cms.gov/CCIIO/Resources/Consumer-Assistance-Grants/.Download Tips for Appealing a Denial of Coverage
* INSURANCE GUIDANCE – REMINDERS
To get the most out of your coverage, you’ll need to keep track of all the paperwork, as well as the conversations and transactions that take place between you and your insurance provider. This convenient checklist can be used to help you manage your insurance information during your cancer care.
- Read your insurance policy before chemotherapy and try to determine what your plan will cover. Discuss costs with your oncologist—often there will be several effective treatment options that may vary in costs and what your insurance may cover.
- Open, review and file bills and insurance notices immediately.
If you have COBRA coverage, pay premiums in full and on time.
- Create a system for recording your expenses and claims by filing things under categories like “submitted” and “paid.”
- Pay by check so you have a record, and attach any canceled checks to the related bill and file them.
- See if your insurance company has assigned you a case manager. If so, keep him or her informed about your treatment.
If your claim is denied:
Resubmit it. Make copies of any paperwork you send to your provider.
Record names, dates and conversations you have with your insurance company in a notebook.
Enlist the help of your doctor’s billing office to deal with claims or disputes.
Call a social worker or nurse on your healthcare team to discuss unresolved problems. Ask one of them or a family member to contact your insurer.
Request that your doctor, hospital and/or cancer treatment center provide scientific studies to your insurance company to demonstrate the effectiveness of your treatments.
Contact your Medicaid office prior to receiving treatments to see if you are eligible for reimbursements, or check with pharmaceutical companies to see if there’s a reimbursement specialist who can help you.
Then ask to speak to a nurse navigator, social worker or financial advocate. Every hospital has at least one of these pros available, and they can help you resolve a multitude of frustrating issues. Some of their good deeds: They can locate interpreters, explain confusing consent forms, describe how to get assistance with high copays or the cost of expensive drugs, and even show you the layout of the hospital so you’re less likely to get lost!
You can also reach out to organizations that help with health care issues like insurance denials and medical debt. CoPatient and Patient Advocate Foundation are two such organizations.