2843 E. Grand River Avenue – #230 East Lansing, MI 48823 annie@nlmsf.org 303-783-0924

About All of Us

Its About All of Us

Champions of Hope-

Champions of Hope-










'Sunflower Brigade" - Boston



About Us- Its about all of us

Dr. Mitchell D. Achee
NLMSF Medical Advisory Committee Chair
LMS Survivor
Diagnostic Radiology - Kaiser Permanente, Denver, CO

The National Leiomyosarcoma Foundation (NLMSF) was founded on July 14, 2001 and exists today as a 501(c)(3) charitable non-profit organization and a member of the GuideStar Exchange (Silver Participant). The Foundation continues to be dedicated to general sarcoma and specific LMS research projects that hold promise for advancing LMS treatment breakthroughs.

We honor our patients/ families/caregivers for supporting and believing in the mission of the foundation.

We honor our sarcoma/LMS researchers for their collaborative partnership with the foundation for patient education /advocacy.

The foundation and its followers stand behind the researchers in funding support of their sarcoma/LMS research efforts. They are our lifeline for survivorship.

Our Mission Matters: 

  • Patient/family/ caregiver education and support
  • LMS research funding
  • Patient advocacy
  • Resource collaboration with other organizations 
Dr. Raphael Pollock
Prof. and Director, Division of Surgical Oncology Vice Chairman, Clinical Affairs, Dept. of Surgery Surgeon in Chief, James Comprehensive Cancer Center/Ohio State University Health System

The National Leiomyosarcoma Foundation is a premier patient advocacy organization devoted to this rare form of cancer, provides the basis outstanding service in so many different ways: as a source of authoritative information for leiomyosarcoma patients via numerous annual patient education conferences held throughout the United States annually, by connecting patients to physician experts in this disease for their treatment, and by fundraising to support the cutting edge research needed if we are to successfully develop new therapies for leiomyosarcoma. Unique in these functions, the National Leiomyosarcoma Foundation, under the leadership of Mitch and Annie Achee, is a beacon of hope for patients, caregivers, and researchers alike!

Staff portrait George Demetri, M.D.

Dr. George Demetri

Director, Center for Sarcoma and Bone Oncology


Dr. Jonathan Fletcher
Assoc. Professor of Pathology
Harvard Medical Pathology - Dana FarberBrighan & Women's Cancer Center
"Crucial research support from NLMSF brings together leiomyosarcoma research programs from several countries. This support is enabling a “divide and conquer” approach so that coordinated studies from different leiomyosarcoma research teams can move more quickly towards new leiomyosarcoma therapies."-Dr. Fletcher


Dr. Matt Van de Rijn 

Surgical Pathologist and Molecular Pathologist,

Stanford University Medical Center

"For more than a decade, the National Leiomyosarcoma Foundation has supported the research on novel prognostic markers and potential therapeutic targets for LMS in our laboratory at Stanford University.  This support has allowed us to pursue many projects and we hope to continue this collaboration in the future."-Dr. Matt Van de Rijn


Dr. Kurt Weiss, M.D.  

Orthopedic Surgical Oncologist Ass't Prof. Orthopedic Surgery Director - Bone /STS lab UPMC Cancer Center - Pittsburgh

The National Leiomyosarcoma Foundation (NLMSF) is truly committed to research, education, and support. They have been a major force in building successful collaborations between researchers so that we can better serve our heroic patients. As a sarcoma surgeon and scientist, I am grateful for the NLMSF's continued support and unwavering commitment to find better treatments for leiomyosarcoma.


Dr. Vinod Ravi

Assistant Professor, Department of Sarcoma Medical Oncology, Division of Cancer Medicine, the University of Texas M.D. Anderson Cancer Center, Houston, Texas

Adjunct Faculty, Translational Genomics Research Institute, Phoenix, Arizona

"The NLMSF is providing valuable support to the leiomyosarcoma patient community with its collaborative patient education symposia across the USA, in the UK, and Canada. The LMS Research Work Group at MD Anderson appreciated the patient program opportunity with the NLMSF, and future LMS research support will be important."-Dr. Ravi

Everyday Heroes Among Us

Below are our researchers introduced in alphabetical order:
Yasmin Asvat, Ph.D. Clinical Psychologist Siteman Cancer Center Barnes-Jewish Hospital
Edwin Choy, M.D. / Ph.D. (Medical Oncologist) Assistant Professor of Medicine Harvard Medical School Dana Farber/Harvard Cancer Center Massachusetts General Hospital Director of Sarcoma Clinical Research Clinical Director of Sarcoma Oncology
Dr. Rashmi Chugh, M.D. Rashmi Chugh, M.D. (Medical Oncologist) Clinical Assistant Professor of Internal Medicine—Hematology/Oncology University of Michigan Health System Washington University School of Medicine in St. Louis
Rebecca Gladdy, MD, PhD, FRCSC Division of General Surgery Mount Sinai Hospital 600 University Avenue Toronto, ON
Dr. Robin Jones, BSc, MB, MRCP, MD Head of Sarcoma Unit, Royal Marsden Hospital, London
Anusha Kalbasi, MD Health Sciences Clinical Instructor Jonsson Comprehensive Cancer Center – Ribas Lab Division of Molecular and Cellular Oncology UCLA Department of Radiation Oncology
Dr. Khandan Keyomarsi, Ph.D. Professor, Department of Experimental Radiation Oncology, Division of Radiation Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX
Alexander Lazar, M.D., Ph.D. Associate Professor, Department of Pathology, Division of Pathology/Lab Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX Director, Selective (Soft Tissue) Pathology Fellowship Training Program, Department of Pathology, The University of Texas MD Anderson Cancer Center, Houston, TX
Dr. Gonzalo Lopez Research Scientist Biomedical Research Tower (BRT) Ohio state University
Dr. Robert Maki, MD Sarcoma Program Leader/Medical Director Center for Cancer Therapies Monter Cancer Center New Hyde Park, New York
Mohammed Milhem, MD University of Iowa Co-Leader, Melanoma Deputy Director, Clinical Cancer Service Research for Holden Comprehensive Cancer Center Clinical Professor, Melanoma and Sarcoma/Clinical Trials Program
Dr. Sujana Movva   Menatology/Oncology specialist/researcher Fox Chase Cancer Center - Philadelphia
Dr. Scott H. Okuno, M.D. Professor, Oncology Mayo Clinic, Rochester, MN Medical Officer/Chair, Clinical Trials, SARC
Dr. Seth Pollack, MD Clinical Research Division, Program in Immunology Seattle Cancer Care Alliance
Denise Reinke, MS, NP, MBA  President & CEO SARCDenise Reinke, MS, NP, MBA  President & CEO SARC
Scott Michael Schuetze MD, PhD Professor, Medical Oncology University of Michigan Health System
Dr. Arun Singh Medical oncologist, Santa Monica, California UCLA Medical Center and UCLA Medical Center Santa Monica.
Neeta Somaiah, M.D. Assistant Professor, Department of Sarcoma Medical Oncology, MD Anderson Cancer Center
Dr. Brian Van Tine Research Oncologist Washington University School of Medicine