TESTIMONIALS FROM THE RESEARCH AND PATIENT COMMUNITIES IN SUPPORT OF THE NLMSF
Research Clinicians Testimonials
"You are doing so much for so many" You should be
proud of all you have accomplished within the Foundation."
Dr. M. Druta
"NLMSF is recommended for patients and care givers looking for information on Leiomyosarcoma."
Dr. Sant Chawla
Sarcoma Onlcology Center
The NLSMF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease, with the direct intent to provide sorely needed new therapeutic approaches. The LMS Research Roundtable process provides this unique and heretofore mission function, and for this reason we are so very grateful to Annie and Mitch Achee for providing the inspiration and resources needed to forge this connection.
Dr. Raphael Pollock
James Cancer Center, Ohio State Univ
The LMS Roundtable offers the possibility to work with all
researchers in the world dedicated to a rare tumor such as
LMS – gathering the community of experts dedicated to LMS
and hearing the patients’ perspectives as well. It is an honor
to lead the gynecological working group within the NLMSF-
SPAEN International Research Roundtable – thank you NLMSF
for launching this important initiative on behalf of patients
and the research community.
Dr. Roberta Sanfilippo
Fondazione IRCCS Istituto
"You and Mitch are doing great things in the Foundation, and the Research
Roundtable approach to taking things to the next level - this is a good thing!"
Dr. S. Okuno
"I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such
great patient advocates which I admire."
Dr. Rebecca Gladdy
Sinai Hospital, Toronto, Director of GI Sarcoma Clinical Research
No better way to advance LMS research – the Roundtable is an achievement to
focus on LMS-specific study, and harness scrambled data with different histology's of various sarcomas – a clear signal for this disease type.
Dr. Evan Rosenbaum
Memorial Sloan Kettering
I strongly support he NLMSF in their efforts to fight LMS by brining together world-wide experts – this is a major achievement. Together we are stronger and smarter to fight this disease.
Dr. W. J. Van Houdt
Netherlands Cancer Institute
This is exciting - and the way the Research Roundtable has unfolded is the
right approach."
Dr. B. Van Tine
Thank you so much for all you have done for us and for LMS research community! We really appreciate!
Wantong Yao, PHD
The essential benefit arising from Foundation’s LMS Roundtable working groups is the opportunity to bring an assembly of researchers and clinicians into a conversation that spans basic research to clinical application. By working together we learn from each other’s expertise and build future innovations in LMS patient care. I support the NLMSF’s mission to support patients and families in the way that it does – in addition to supporting the research community. We are all working towards a better future for those diagnosed with LMS.
Dr. Matthew Hemming
Dana Farber Cancer Institute
“ I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers. LMS is common enough to have had a specific focus initiative- and the NLMSF was many steps ahead of the curve, to launch the LMS International Research Roundtable - to support patients in this way, and focus on LMS-specific research and support in the research landscape. Annie and Mitch are such a good team for the LMS Roundtable. They compliment each other with their unique strengths in moving forward to help patients and giving a special spotlight to LMS in particular.
Dr Seth Pollack
Northwestern Medicine
Dear Annie and Mitch -
Thank YOU for supporting the cause
You could have just done other stuff. But you
choose to fight for this disease. it makes and will
further make a difference!!
Dr. Sebastian Bauer
Dr. Sebastian Bauer
You have made a huge difference in the infrastructure of the NLMSF..
You should be proud of what you have done. Beverly and I congratulate you
both! It is a great Foundation.
Bruce and Beverly Shriver
SARC Research Award Sponsor
I think that the LMS Research Roundtable is a valuable model of brining clinicians and scientists together to discuss the state of LMS and to develop ideas for pushing the field forward.
Dr. Arun Sing
UCLA Ronald Reagan Medical Center
Annie and Mitch! Thanks for all you for our patients.
Dr Sandra D’Angelo
Memorial Sloan Kettering
Patient Testimonials
I am so glad that Dr. Shepard came through to answer my question, through your efforts to make it happen.
Annie, you have so much integrity and warmth in the way you live and give to others.
Robin K
Patient
“From the bottom of our hearts, thanks for all the great work that you do for LMS. It is clear that your
organization goes above and beyond the call of duty. I admire the work and the diligent efforts to
research and aid in moving forward in the quest for a cure. You can be assured that your efforts are
greatly appreciated by our friends and families. You are an inspiration to us all.”
Evan
Caregiver
Thank you 100x's over, thank you. I have been praying and asking God to send me someone good and kind to help me
Thank you both for all your doing. Only wish you could be with me and hold my hand. Your wonderful!
Thank you.
Sincerely, Mary & Steve Lloyd
Mary
LMS Patient
“Annie and Mitch are both so special, and make me want to live in this world. I love you guys and NLMSF.”
Sharon
LMS Patient
NLMSF:
Thank you so much for your kind words and your recommendations regarding speakers and your great passion and commitment got us to the finish line in pulling this Rare Cancer / Sarcoma Webinar program together.
All is possible with our team work. I am so thrilled to finally after all this time collaborate on a webinar program together. I know that we will both work hard to create more opportunities to offer programs on LMS.
All is possible with our team work. I am so thrilled to finally after all this time collaborate on a webinar program together. I know that we will both work hard to create more opportunities to offer programs on LMS.
Carolyn
Cancer Care
“We are all interconnected through one big LIFE, Annie, so it is each of our duty to be mutually supportive. Looking forward to your new and useful insights.”
ED
LMS Patient
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have
access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly
diagnosed or long term thrivers. It is very powerful to know there are others who are many years into
their LMS journey, and are leading happy, productive lives.”
Cathie
LMS Patient
"Thank you so much with all of your help, if my situation is getting worst, I will contact you to ask for help again. Here is Canada, it is so different to Us, and in Vancouver, we dont have many options.
In my heart, I am always thinking of you and all of your help to me- a person you never know, but you work hard to help."
Hanna
LMS Patient
“Dear Annie and Mitch, Thank you so very much for your Godly service, direction, precious time, and great knowledge. You have given me a new perspective. You are an awesome duo and I am grateful for your wonderful work.”
Darlene
LMS Patient
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You’re not alone. Annie Achee has been my life coach through this. If I’m concerned about any treatment, I can call her for guidance. Thank you for your love and support.”
Pamela
LMS Patient
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers. It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
Sharon
LMS Patient
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You’re not alone. Annie Achee has been my life coach through this. If I’m concerned about any treatment, I can call her for guidance. Thank you for your love and support.”
Pamela
LMS Patient
“I found NLMSF 3 years after my diagnosis of LMS; wish I’d found them sooner. The resources and information they provide is so helpful and the foundation’s commitment to furthering research on this disease is vital.”
Michelle
LMS Patient
“Thank you NLMSF and Annie for your support and giving me information to get under the best hospital and doctor care”
Christina
LMS Patient
"Annie and the NLMSF work tirelessly on behalf of patients with LMS, seeking ways to support needed
research, offering free patient programs throughout the US, and providing support for caregivers. The
website has tons of great information for those with this diagnosis, and the weekly newsletter includes
lots of links to other valuable information. NLMSF has its own active Facebook group where patients can
pose questions and gain support. Highly recommended!"
Heidi
MDiv from Thriver Soup
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