National LeioMyoSarcoma Foundation

helping to empower and educate about leiomyosarcoma a rare smooth tissue cancer

Our Testimonials

"You are doing so much for so many" You should be proud of all you have accomplished within the Foundation."
Dr. M. Druta
"You and Mitch are doing great things in the Foundation, and the Research Roundtable approach to taking things to the next level - this is a good thing!"
Dr. S. Okuno
This is exciting - and the way the Research Roundtable has unfolded is the right approach."
Dr. B. Van Tine
Doctor
Dear Annie and Mitch - Thank YOU for supporting the cause You could have just done other stuff. But you choose to fight for this disease. it makes and will further make a difference!! Dr. Sebastian Bauer
Dr. Sebastian Bauer
Doctor
You have made a huge difference in the infrastructure of the NLMSF.. You should be proud of what you have done. Beverly and I congratulate you both! It is a great Foundation.
Bruce and Beverly Shriver
“From the bottom of our hearts, thanks for all the great work that you do for LMS. It is clear that your organization goes above and beyond the call of duty. I admire the work and the diligent efforts to research and aid in moving forward in the quest for a cure. You can be assured that your efforts are greatly appreciated by our friends and families. You are an inspiration to us all.”
Evan
Caregiver
Thank you 100x's over, thank you. I have been praying and asking God to send me someone good and kind to help me Thank you both for all your doing. Only wish you could be with me and hold my hand. Your wonderful! Thank you. Sincerely, Mary & Steve Lloyd
Mary
LMS Patient
NLMSF: Thank you so much for your kind words and your recommendations regarding speakers and your great passion and commitment got us to the finish line in pulling this Rare Cancer / Sarcoma Webinar program together.

All is possible with our team work. I am so thrilled to finally after all this time collaborate on a webinar program together. I know that we will both work hard to create more opportunities to offer programs on LMS.
Carolyn
Cancer Care
“We are all interconnected through one big LIFE, Annie, so it is each of our duty to be mutually supportive. Looking forward to your new and useful insights.”
ED
LMS Patient
"I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such great patient advocates which I admire."​
Dr. Rebecca Gladdy​
Sinai Hospital, Toronto, Director of GI Sarcoma Clinical Research Program, Co-Chair of Toronto International Sarcoma Symposium
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey.  You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers.  It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
Cathie
LMS Patient
“Annie and Mitch are both so special, and make me want to live in this world. I love you guys and NLMSF.”
Sharon
LMS Patient
“Dear Annie and Mitch, Thank you so very much for your Godly service, direction, precious time, and great knowledge. You have given me a new perspective. You are an awesome duo and I am grateful for your wonderful work.”
Darlene
LMS Patient
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You’re not alone. Annie Achee has been my life coach through this. If I’m concerned about any treatment, I can call her for guidance. Thank you for your love and support.”
Pamela
LMS Patient
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers. It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
Sharon
LMS Patient
"Annie and the NLMSF work tirelessly on behalf of patients with LMS, seeking ways to support needed research, offering free patient programs throughout the US, and providing support for caregivers. The website has tons of great information for those with this diagnosis, and the weekly newsletter includes lots of links to other valuable information. NLMSF has its own active Facebook group where patients can pose questions and gain support. Highly recommended!"
Heidi
MDiv from Thriver Soup
"I am very much engaged in understanding LMS and hoping to improve care. Also you and Mitch are such great patient advocates which I admire." Dr. Rebecca Gladdy, Department of Surgery at Mount Sinai Hospital , Toronto Ontario Canada
  • Surgical oncologist specializing in sarcoma - with special interest in LMS
  • Director of the GI Sarcoma Clinical Research Program
  • Co-Chair of the Toronto International Sarcoma Symposium

    "NLMSF is recommended for patients and care givers looking for information on Leiomyosarcoma."
Dr. Sant Chawla
Sarcoma Onlcology Center
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You’re not alone. Annie Achee has been my life coach through this. If I’m concerned about any treatment, I can call her for guidance. Thank you for your love and support.”
Pamela
LMS Patient
“I found NLMSF 3 years after my diagnosis of LMS; wish I’d found them sooner. The resources and information they provide is so helpful and the foundation’s commitment to furthering research on this disease is vital.”
Michelle
LMS Patient
“Thank you NLMSF and Annie for your support and giving me information to get under the best hospital and doctor care”
Christina
LMS Patient
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