Annie Achee ([email protected]) To: l-m-sarcoma Details
TO: The LMS Community
From: The National LeioMyoSarcoma Foundation
Inform – Inspire – Empower
“What we can do today can affect what happens tomorrow”
Patient / Caregiver Perspectives:
Positive Patient/Caregiver Perspectives shared . . .
Hoping you would like to share your perspectives as well – your message of hope would be a valuable addition to this webpage . . . more good thoughts and perspectives to collect and share with each other is always a good thing -very helpful and positive. send your message to: [email protected]
The more we can share – showing that we care, the better we can help each other cope and build hope!
Reminder: The NCI MyPart Network- to share your patient experience by providing information to the National Cancer Institute’s (NCI) Natural History Data repository.
Natural History Data from patients helps research clinicians shape clinical studies and more. https://leiomyosarcoma.info/mypart-network/ Participation will make a positive difference!
Reminder: The Patient Caregiver Advocacy Network (PCAN) Roundtable
February 19, 4 pm PST, 5 pm MST, 6 pm CST, 7 pm EST
Help contribute to making the difference in “changing the story” on
standard of care – contribute to the LMS International Research Roundtable focus on this topic for the future of anyone newly diagnosed.
https://nlmsf.org/patient-advocacy-peer-group-roundtable/ Your Voice Matters!
Thank you all,
“The information in the NLMSF’s three websites helps shape the journey and build hope.”