Inform – Inspire – Empower
Through Education / Advocacy/Research
OUR MISSION IS OUR PASSION
“What we can do today can affect what happens tomorrow –
We Have what it Takes to Help Each Other!”
- The NLMSF- SPAEN INTERNATIONAL RESEARCH ROUNDTABLE
- The PATIENT-CAREGIVER ADVOCACY NETWORK [ROUNDTABLE]
- The SURVIVORS INSPIRE PEER NETWORK
- The LMS LIFELINE BUDDY PROGRAM
- 24/7 Direct Patient/Caregiver Helpline: 303 808-3437
- Annual Patient-Family LMS Education Symposia throughout the USA/Canada
- Education Webinar collaboration with other cancer organizations
- The Cancer Cell Line Project – patient drive tumor registry for Crisper
Crispr / repurposed drug screening / global data access for Research
- NCI MyPart Network – patient natural history data collection partnership
- Connect with a Clinician Program for general Q & A
- Collaborative Partnerships with other organizations to enhance
Patient – Family resource support
- Sarcoma Coalition – Steering Committee membership for
collaboration with 20 other sarcoma organizations
- Research Advocacy Council – to collaborate with other sarcoma organizations
to impact clinical trial patient participation and outcomes
- Three Foundation websites – to offer resource assistance throughout the
diagnosis / treatment journey of patients and caregivers
- Weekly News Letters for clinical trial updates, research updates and wellbeing
educational opportunities, well-being resource information
DIRECT CONTACT TO THE FOUNDATION: A N N I E A C H E E
annieachee@aol.com or 303 808-3437