In 2017, the Rare Cancer Research Foundation (RCRF) united with the National Leiomyosarcoma Foundation. Harnessing the power of RCRF’s patient-driven initiative,, individuals with leiomyosarcoma can actively contribute to pioneering LMS research. The profound influence of tissue donation resonates as a catalyst for transformative advancements in rare sarcoma research.

Participating is straightforward—simply decide to provide your consent before your surgery through By opting to donate excess tumor tissue at prior to your scheduled surgery, you play a vital role in advancing Leiomyosarcoma (LMS) research. Your tumor tissue will be dispatched to MIT’s Koch Institute, specifically the Boehm Lab, under the guidance of Dr. Jesse Boehm, the Principal Investigator. The lab’s primary emphasis will be on genomics and model derivation for leiomyosarcoma, with all research findings shared widely after de-identification.

As a patient, you have the opportunity to play a crucial role in advancing rare cancer research by participating in initiatives such as

Should you have any inquiries regarding this program, feel free to reach out to Barbara Van Hare, President of She is dedicated to addressing all your questions or concerns, ensuring your comfort and confidence in taking this significant stride forward in global Leiomyosarcoma (LMS) research. 

Email: Phone: 844-472-7273 extension 700.